Liver mets: resection, ablation, SBRT, Y-90, anything else?

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  • babs6287
    babs6287 Member Posts: 2,021
    edited April 2018

    JFL. That wonky feeling lasts for a while but thank god it’s all tolerable

    Babs

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  • KarPC
    KarPC Member Posts: 201
    edited April 2018

    BabyRuth - Thanks! I read about how you had fatigue after the Y90 for a while. It can be frustrating when recovery is slower than expected. I agree with your great advice that we cannot hold ourselves to any set recovery time table.

    JFL - Thanks for the welcome! Thanks for sharing your Y90 experience, and I look forward to reading your updates. They gave me something that amped me up after my procedure also. I wanted to sleep, but my mind raced for 24 hours. It's also my natural reaction to eat when my belly hurts. I hope your tummy calms down.

    Jamiemarie - Thanks! Yes, it does sound like we had a similar experience. It's easy to be concerned when you have more pain than expected.

    ~Kari

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited April 2018

    Today I am one year out from y90. Y90VERSARY. Yet another new word for our unique dictionary. The best part is no uptake on PET on January scan.💞

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  • KarPC
    KarPC Member Posts: 201
    edited April 2018

    Yay Grannax2! I am so thrilled to hear about your Y90VERSARY success. I had my follow up scan of my liver on Friday. The microwave ablation removed my 1 small liver met with success, and my liver looks good. It’s great news. I am staying realistic though. I’ve only been on systemic treatment for 2 full months, so it is too early to know if I am also responding to Ibrance and Letrozole.

    Hugs. ~ Kar

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  • JFL
    JFL Member Posts: 1,947
    edited April 2018

    Grannax, congrats on the one-year milestone. Amazing news. Can I ask, in what kind of shape was your liver at the time you had Y90 - how extensive were your mets?

    KarPC, wonderful news the microwave ablation took care of your liver met! With only one liver met, I believe doctors consider you still capable of being "cured".

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited April 2018

    Karpc. I had a total of at least eight. They were in both lobes with a cluster where the two lobes join. So, quite a few.💞

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  • jamiemarie
    jamiemarie Member Posts: 73
    edited April 2018

    congrats grannax and kar! Great news!!!!

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited April 2018

    JFL i had a total of at least eight in both lobes. I had a cluster where the two lobes join. I never actually never looked at my scan, the thought of actually seeing them was TMI.💞

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  • babs6287
    babs6287 Member Posts: 2,021
    edited April 2018

    Grannax and Kar. Great news!!! I get my scans the end of May when I return from babysitting my grandson in Paris. I hope I join you in similar results!

    Bab

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  • KarPC
    KarPC Member Posts: 201
    edited April 2018

    Thanks ladies!

    Bab - Enjoy Paris, how lovely that must be!

    JFL - I hope you are feeling better after your treatment.

    ~Kar

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  • Almosthere
    Almosthere Member Posts: 197
    edited April 2018

    April scans, “no evidence of metastatic disease.” This is 12 months post SBRT to three sub-centimeter liver lesions. I am so grateful! This treatment has worked and my next scan will be in 6 months, not 3 months. Grannax when is your next scan

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited April 2018

    bstein I think it will be at the end of May, after i get back from Hawaii. I see my MO tomorrow and we'll probably schedule it.

    no evidence of metastatic disease. I want this on my report someday. I still have a bunch in my lung and chest. also, on the PET, they can still see the tumors but there is no uptake, they are not active. I hope that means they are DEAD, never to return.💞

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  • KarPC
    KarPC Member Posts: 201
    edited April 2018


    Bstein - your results are so encouraging to me and others. Congratulations
    Grannax2 - enjoy Hawaii! Aloha ;)
    ~Kar




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  • zarovka
    zarovka Member Posts: 3,607
    edited April 2018

    Go bstein!!!!!!

    Thanks for the update.

    >Z<

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  • babs6287
    babs6287 Member Posts: 2,021
    edited April 2018

    Bstein. Great news

    Grannax enjoy Hawaï

    Bab

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  • BabyRuth
    BabyRuth Member Posts: 264
    edited April 2018

    I am so happy to see all the great news on scans from everyone! It is awesome to see so much success with these treatments.

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  • Max_otto
    Max_otto Member Posts: 150
    edited April 2018

    Grannie, Bstien

    Truly joyful news, I'm happy you ae both doing so well.

    I've decided to go ahead with Y90 and my mapping will be done tomorrow. I have seen 2 IR's , a consulting MO and my MO. They are in agreement that I am a good candidate and I should do well, optimistic version versus you can experience toxcity and then my timeline could be considerable short. I saw my MRI's of the liver, numerous tiny mets with some larger lesions. From my conversations with the 2 MO's, there isnt much published data on the efficacy of Y90 for BC liver mets. Dr. Lewandowski at Northwestern has published a paper and experienced success, however , he gave an average of approximate 7 months, but said he did have patients who were 2 or more years out. Although it will shrink or eliminate lesions, it can't prevent new ones.

    I have been on a emotional roller coaster, on one hand taking care of everything “ in case" to make a easier transition for my family and trying to stay positive and cheerful and hoping for good results.

    I am grateful I'm not in pain and have a good support system. I love life and I am not sanguine about exiting.

    JFL, keeping thumbs up for you

    Kathy





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  • KC1010
    KC1010 Member Posts: 71
    edited April 2018

    Kathy -

    My insurance approval for Y90 just came in tonight, so I’ll be right behind you with my mapping being done by Dr. Lewandowski next week. I’m super happy that approval finally came through. I started Opdivo, an immunotherapy, today. Hopefully the combo works wonders.

    Wishing you the best with your mapping—keep us posted.

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  • JFL
    JFL Member Posts: 1,947
    edited April 2018

    Kathy, glad to hear everything is on track with Y90 and the doctors are optimistic. I hope mapping goes well tomorrow!

    KC, dancing happy dance for you!

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited April 2018

    Good y90 news Kc1010 and max otto. We want more in our club with excellent results💞

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  • JFL
    JFL Member Posts: 1,947
    edited April 2018

    Grannax, Hawaii sounds like heaven! Have a fabulous trip.

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  • KarPC
    KarPC Member Posts: 201
    edited April 2018

    Kathy - Great to hear you are starting the Y90 mapping. It’s always nice to hear the more optimistic version because we all deserve some optimism.

    KC - yay! So glad it was approved. You must feel very relieved to have a great new plan in place with both the Opdivo and the Y90.

    Hugs, ~ Kar

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  • babs6287
    babs6287 Member Posts: 2,021
    edited April 2018

    Kathy and KC. So happy you’re both able to do the Y 90 and are goid candidates for it. I hope it serves us all well!

    Babs

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  • BabyRuth
    BabyRuth Member Posts: 264
    edited April 2018

    Max-I am over 2 years out from my Y90. Anything is possible! I am glad you are able to move forward with the Y90.

    KC-I am so happy to see you got insurance approval! It sucks that you had to fight for it but I am so proud that you were able to advocate for yourself and get what you wanted.

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  • KC1010
    KC1010 Member Posts: 71
    edited April 2018

    thanks for the well wishes everyone!! IR wants me to meet with my 2nd opinion MO first before scheduling mapping. (They are at the same hospital). Since I started Opdivo yesterday, they just want to make sure taking them together is the right move. Now that Y90 is approved, I can do it any time. They agree that immunotherapy can trigger an immune response, which would be great. However, they've never personally treated someone while on immunotherapy with MBC. These are in trial settings...so this would be a first. I anticipate both MO's will be okay with it... if not, I either take a break from Opdivo and move forward with Y90, or I stay on Opdivo and save Y90 for later. Mapping would be onMay 1st, if we proceed with Y90 right away

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  • Max_otto
    Max_otto Member Posts: 150
    edited April 2018

    BabeRuth,

    That is really great news, so encouraging. I've asked around but could not find anyone who has had Y90 except for this blog.

    KC,

    Great that you have options and your insurance has been resolved in your favor.

    My mapping went very well yesterday, I arrived at 6:15am, started preliminary prep about 6:45, then went into the procedure room. The prep there took about 45 minutes, but I was comfortable and warm. The nurses and techs were very attentative and explained what they were doing, when the IR and staff started they said the only discomfort I would feel was when they applied the lidocaine and the pressure when they inserted the shealth into the artery. I was in the procedure room for about two hours and my scan in nuclear medicine took 10 minutes and then into recovery. The nurses asked if I wanted a sandwich and as I was not enthused about a sandwich they said I could order from a menu. From the time I ordered, the food came in a half hour, soup, veggie burger and a small dish of watermelon. Recovery lasted three hours and ended with me doing a brief walk. If you had to do this, my experience was excellent,

    I am on the schedule for Tuesday for the first treatment.

    Kathy


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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited April 2018

    Yay Max! Step one went like clockwork. I'm hoping step two on Monday will be just as uneventful. Do you have to have a step three?💞

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  • JFL
    JFL Member Posts: 1,947
    edited April 2018

    Kathy, glad your mapping went smoothly!

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  • KC1010
    KC1010 Member Posts: 71
    edited April 2018

    woohoo, Kathy! Excited to hear about step 2. Do you mean this Tuesday, or next

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  • jamiemarie
    jamiemarie Member Posts: 73
    edited April 2018

    Kathy, thats great, so glad you had a good experience!

    KC congrats on all your hard work getting things approved! Excited for you!

    And bstein- amazing news!!! Congratulations!!!

    Grannax, so jealous of Hawaii! Send us some pics so we can live vicariously through you! :)

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