Just diagnosed and scared.

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78UnbB
78UnbB Member Posts: 10
edited April 2018 in Just Diagnosed

Hi... I felt a lump around St.Patrick's Day and called my doctor. Couldn't get an appointment until the 29th. She was concerned but thought it was not cancer. I went the next day for a mammogram and an ultrasound of my right breast. Before I left the office I was told it was a complex cyst and recommended it be drained.i called my doctor on Monday and she was away all week but her nurse spoke to me and said the radiology office could do the drain procedure. I called for an appointment for the cyst drain and biopsy but they were not doing any biopsies that week because all of the doctor were off. So I scheduled it for Monday. They were able to do a needle core biopsy and suggested that they evacuate the whole cyst... which they did. My doctor called me Thursday and said the biopsy came back as malignant. I was at work and in shock that I didn't ask any questions. She said something about a mastectomy or lumpectomy. I don't even know what the diagnosis is. Do the you usually call you? I thought I would have a face to face appointment??? Don't know what to do next. I feel scared and anxious!!!


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  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2018

    I was told just like you. I was at work and the radiologist who did the biopsy called and told me. She said both biopsies showed invasive lobular cancer. After about a week I had an appointment with a breast surgeon who had more info. I think I had a vague idea of size and the grade and hormone status. The her2 came later. Then I got an mri and I thought I was going to do lumpectomies and radiation. But the tumor board said there was another suspicious area and they recommended mastectomy no radiation.

    I was sick over the mastectomy but the reconstruction DIEP was really good.

    I kept thinking this is it, how I am going to die. Well that was 7 years ago and it never came back.

    If you are having anxiety I would take them up on medication. I took it for 2 months helped me cope.

    Good luck

  • 78UnbB
    78UnbB Member Posts: 10
    edited April 2018

    Thank you Meow13!!

    I will definitely have to look into medicine to help with the anxiety... would that also help me sleep?

    My only son is away at college in his first year. His last final is May 4th. Not sure when I should tell him. He's coming home on the 20th for a family wedding. I'm hoping I can keep my composure while he is home... lol I don't think that will be successful. I just don't want to have him upset so close to finals. I don't know what to do. Ugh... it's just so hard

  • Icietla
    Icietla Member Posts: 1,265
    edited April 2018

    Welcome, 78UnbB. We are so sorry about your diagnosis. We know it is a terrible shock. We all know the fears that come with a breast cancer diagnosis.

    I was informed by phone of my diagnosis a week after my biopsy. It would not be until after the following weekend that all my IHC testing results would be available. I thought of the phone call as merciful, as they knew I was standing by, so to speak, waiting and wondering.

    No matter how it is delivered, a breast cancer diagnosis is always stunning.

    Now things should start to move along more quickly.

    The Pathology Lab examining your biopsy specimen will report some particulars that will be helpful information in planning your treatment. Your Doctor will refer you to a Surgeon and to a Medical Oncologist. Depending on the type of surgery you are to have, and possibly depending on some other factors, you may also be referred to a Radiation Oncologist.

    As soon as you have a treatment plan, you will feel better -- more like in control, and less fearful. Whatever it takes, you can do it!

    You are not alone. We are a true Community of Brothers and Sisters who understand and will support you through your breast cancer experience.

  • Luckynumber47
    Luckynumber47 Member Posts: 397
    edited April 2018

    So sorry about your diagnosis. Right now you are in the information gathering stage. Call your dr back and find out the size and pathology and what kind of malignancy it is. Is it DCIS or LCIS or an invasive type like IDC or ILC? They should know how aggressive it is (grade), whether they suspect any positive lymph nodes, and whether your ER/PR and Her2 are negative or positive.

    You can also get a copy of your report which should have all that information.

    It's a good idea to have an MRI. You want to leave no stone unturned and find out everything possible about your breasts before making surgery decisions.

    Next step is an appointment with your breast surgeon. That's usually a teaching appointment and it's a good idea to take someone with you to write down all the important details.

    If your dr is saying you can have a lumpectomy/radiation or a mastectomy (usually without radiation) it would be good to start thinking about which is right for you. If you choose mastectomy you will also have decisions about reconstruction or going flat. Only you will know those answers.

    We're all here for you. We've been through it and have lots of info based on that experience.

    Sending hugs. Lucky

  • Luckynumber47
    Luckynumber47 Member Posts: 397
    edited April 2018

    You might find it better to wait until you have your whole treatment plan in place before you share with your son. Right now everything is pretty scary but once you meet with your surgeon and understand what to expect you'll be able to share the "facts" with your son and not just your fears.

    I told my husband right away but didn't share with any of my children until after surgery (mostly because my daughter was expecting a baby any day and I didn't want to add stress to a difficult pregnancy)

  • 78UnbB
    78UnbB Member Posts: 10
    edited April 2018

    Thank you for all of your good advise!!! I tried calling my doctor after I got home early from work but I did not get a call back. Hopefully I will be able to talk to her today. Now if only I could fall asleep. Going to try and go to work in the morning... might have to take off time in the near future with treatments. I don't want to worry about my job too.

    Again thank you for all your help and support. Hugs to all of you too!!

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited April 2018

    I have college age sons as well. My older was in his second year when I was diagnosed. I did not tell him until I knew what next steps were. If I were you I'd wait until yours is home. I was diagnosed shortly after we brought him back to school for his second year. I called Residential Life to have them check in with him after we told him. I didn't tell anyone about my diagnosis until the week before my lumpectomy. Good luck to you, you will be just fine! I am 3 years post treatment and doing very well

  • jenndenino578
    jenndenino578 Member Posts: 75
    edited April 2018

    I take a low dose of xanax to help with my anxiety and it also helps me to sleep. You could ask your doctor for that, if you take it for too long a period it is addictive though. A lot of doctors don't like to prescribe it. But if you plan to only take it when absolutely needed you should be able to stop taking it after a short period of use. Just to get you through a very stressful time in your life.

    Hugs,

    jenndenino

  • bluepearl
    bluepearl Member Posts: 961
    edited April 2018

    Ashwagandha is a natural step aid as is kava kava and valerian. passionflower. Even the teas work. Ativan is the one I use when nothing else worked. That said, getting the diagnosis is like a kick in the gut and you feel the anxiety from head to toe as your stomach falls to the floor. The worst part. Once you have an idea of your tumour's structure and have treatment plans in place, it becomes a little easier. Then you work through the shell shock. with friends and family and lots of soft places to fall.....other women who have had breast cancer help a lot too. Wishing you all the best in your journey!

  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2018

    I had lorazapam, avitan is something to think about for sleeping. I have heard good things sbout it.

    You will get through this, time is your friend.

  • 78UnbB
    78UnbB Member Posts: 10
    edited April 2018

    I am so very thankful you all have responded to me with such warm and kind words. I also really need all the advise and suggestions!!!

    I am still waiting on the final biopsy report. I don't know why they call you with such shocking results... I kind of blanked out... I was able to talk to my doctor's nurse. She was very helpful. I made an appointment with a Breast Surgeon Specialist on Monday morning. I think that was very helpful because I have the beginnings to a plan in motion. My Sister and Brother in law are going to come with me to see the doctor.

    I think I was so tired today after not sleeping last night and working a full day that I fell asleep on the couch for several hours. I am going to try some of the herbal suggestions. And on Monday ask the doctor about prescription suggestions for when all else fails. I know in the near future I'm going to get anxious again and I'm sure there will be some more sleepless nights.

    Taking to all of you has been really helpful and comforting.i think I might have said that before but it's worth repeating!!!

    I wish you all the best in your journeys as well.... hugs to all!!


  • beach2beach
    beach2beach Member Posts: 996
    edited April 2018

    Sorry you had to join us, but welcome. I waited until I knew everything I could about what I had and what I was going to do before I told my kids. 2 in college and one in h.s.

    I got the phone call as I was driving for a long weekend. That's not a call you want to take while in the car. Glad you were able to get an appointment with a surgeon quickly. Gather up all those questions.

  • ClareCo
    ClareCo Member Posts: 66
    edited April 2018

    You are definitely in the worst part. I finally have a treatment plan almost in place and, even though I'm going to start chemo, I feel better/relieved. It's the not-knowing on top of the shock that is a really tough combination. Sending you good energy as you navigate the difficult first few weeks. It is going to get easier and you can do this!

  • 78UnbB
    78UnbB Member Posts: 10
    edited April 2018

    Well today was a whirlwind. I met with a wonderful breast cancer surgeon specialist. We didn't have the final biopsy report but she sent me for a MRI. Driving home the doctor called and I found out that my breast cancer is a triple negative. Still have to read up on that. I have an appointment with an oncologist tomorrow!!! I thought Thursday was a blur... today I'm really in shock. So glad my sister, husband and brother in law were with me. I'm also so thankful for all the kind people who helped me today at my doctor's office and the imaging place. I'm even more scared

  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2018

    78UnbB, triple neg sounds scary because there are fewer treatments but it is good they caught in early.

  • Hope-Faith-Love
    Hope-Faith-Love Member Posts: 4
    edited April 2018

    It is scary. I have done tons of research & start first chemo tomorrow.

  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2018

    We are here for you guys. It is a tough scary road you are not alone.

  • Icietla
    Icietla Member Posts: 1,265
    edited April 2018

    Hi 78UnbB. Sounds like Chemotherapy may be your next step. Get psyched-up, not psyched-out!

    Depending on your age and whether there seem to be any familial cancer patterns in your family, you may be a candidate for genetic testing, the results of which might also have some bearing on the treatments and continuing surveillance to be recommended for your case. Just now, though, you have much else to think about, obviously. Put your sister to work on recalling (any talk of) any cancers or likely cancers among your ancestors, your and their collateral relatives, etc.

  • Icietla
    Icietla Member Posts: 1,265
    edited April 2018

    Welcome, Hope-Faith-Love. We hope it all goes very well for you. You too, ClareCo. (((Hugs)))

  • Hope-Faith-Love
    Hope-Faith-Love Member Posts: 4
    edited April 2018

    My onco dx test showed triple negative. I also decided to get curematch run genetic test to find out what gene decided to be rebellious. Curmatch gives a more individualized app

  • jammers61
    jammers61 Member Posts: 3
    edited April 2018

    I am newly dx as well. Taking everything in stride, however this dx was just the cherry. I am the bread winner of the family. Financially life suck, however health insurance is Tricare as I am a retired military dependent. Lumpectomy is Tuesday. . . .I was getting stressed out with work and life. . . .called the surgeon asking for something to just chill, to give my nerves a hearty break. The answer was expected in a way however cold. . the surgeon didn't feel comfortable giving me anything for anxiety and pretty much said I was over thinking the procedure. Im a nurse and feel very confident in dealing with life, rarely do I ask for help of any kind. my job is stressful and just plain life is stressful. Getting the dx of the big C is like a kick in the balls. Last night I was precepting a new nurse which took my mind off myself and issues, so I did get a break. But really, denying someone: that just got slammed that they are overthinking the procedure. . . .really.


    Thanks the rant is over :) I really have respect for the surgeon, it's just like really.. . . .God grant me serenity!!



  • Lula73
    Lula73 Member Posts: 1,824
    edited April 2018

    Jammers-Call your primary care doc and let him know what's going on and request some Xanax or something for anxiety. that surgeon is an idiot to think it’s not stressful. Makes me wonder if he gives his patients any pain meds after surgery or just tells them to take 2 Tylenol and call him in a week if it’s not better.

  • jammers61
    jammers61 Member Posts: 3
    edited April 2018

    OK. . . .sorry I think I posted in the wrong space... I called my primary care, you will never guess what they said. They started with there are some questions we need to ask. . . . then they asked if I was suicidal, I was floored because I had said that I was newly dx with breast ca. If I wasn't suicidal before I just might be now, thanks for putting the thought in place. I just have some anxiety issues with life. I told the nurse that I worked in a psych facility and I am not suicidal. For pete's sake what does one have to the other. I really just needed maybe 1 little pill to ground me again. I am not the type person to need someone's help or even to ask. I was having a moment and no one was trying to rescue me. Well I dealt with the stress, which before any surgery you need to be stress free. Thank God I work with the best nurses, 2 great supervisors and a DON that is really supportive. These peeps let me bounce my concerns off of them and tried to comfort me. I am really grateful for the support.

    Point of this is as a healthcare provider I am having my eyes opened and maybe this is where God id pointing me to go. All along I have thought of the dx as just a new adventure that God has presented me with. On with the adventure. . . . .

  • msphil
    msphil Member Posts: 1,536
    edited April 2018

    hello this is to Encourage you and All to have Hope I was diagnosed while preparing for Our 2nd marriages I found lump in shower before work in 1993 at 42yrs old had my cry then decided to fight for my life with faith Hope n plenty Positive thinking. Am now this yr a 24 yr Survivor Praise God. idc stage2 0/3 nodes Lmast 3mo before n after then got married then 7wks rads 5yrs on Tamoxifen. I wrote a book The Healings of Breast Cancer, A Physical and Spiritual Healing Of My Body and Soul. On Amazon.com n Barnes&noble part of priceeds go to American Cancer Society. God Bless

  • foreverfaith
    foreverfaith Member Posts: 23
    edited April 2018

    Wow. I am surprised at reading some of the posts regarding the reactions of healthcare providers and the anxiety some of us experience. I've really contemplated asking one of my docs for something Xanax or something because I have moments where I feel my heart is racing and I can't catch my breath. I've had anxiety at other times in my life so I am familiar with the feeling. I haven't asked a doc yet, but would be completely shocked if i was told no or questioned about the need. Hello??? We just got one of thee most dreading diagnosis a person can get!

    Stay strong ladies!

  • foreverfaith
    foreverfaith Member Posts: 23
    edited April 2018

    78UnbB- Met with my Onco on Monday and found out I'm triple negative. Per my onco, IV infusion chemo is a must. I'll go for lumpectomy soon, within a week or two, then start chemo 3 weeks after. I'm getting mentally geared up for that while trying to just take one step at a time. I had a good talk with a family member of a friend who is just closing up her treatment. She went through vigorous chemo due to finding her cancer in Stage 3 with 5 tumors in her breast. She had chemo, mastectomy, chemo, then radiation. She gave me some good tips and was so positive about the whole experience and where she is now. She's finally back to work and feeling more like herself again.

    I know this is not where any one of us would choose to be, but hopefully we can find some peace in our hearts to embrace the journey. And punch our cancer in face!

  • 78UnbB
    78UnbB Member Posts: 10
    edited April 2018

    Hello!!! Sorry I've been silent... it's only been a couple of days since the final diagnosis of TNBC... but feels like longer from all the appointments and tests done since this Monday. I've had an MRI after meeting with the breast surgeon. I had a thorough meeting with my oncologist and already scheduled for AC and Taxol treatment starting April 30th. I had to have another two biopsies of two sites today. And next week I'm having a PET scan, an echocardiogram and the IV Port implanted next Friday... it's overwhelming.. I was prescribed xanax without question and have been taking half a pill at night to help me sleep. I'm so thankful for all of your advice and guidance. I just realized I keep saying I ... We are all strong.. have been strong, and wiill be strong!!! You are the patient demand the treatment and prescriptions you need... don't take on anyone else's ignorance or biases. Needing some assistance or medication is absolutely okay!! Peace, Love, and Strength to us All !!!! Trying to take it one day at a time!!

    Hugs to all...

  • RachelCollins
    RachelCollins Member Posts: 4
    edited April 2018

    Sorry about your diagnosis. Get well soon.

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