Oncotype 19; one positive node; chemo?

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ClareCo
ClareCo Member Posts: 66
edited April 2018 in Just Diagnosed

Hi everybody. I am having to decide in the next few days whether or not to get chemotherapy. Two out of three doctors said they definitely thought I should do chemo (TC) - mostly because I had 1 of 3 positive nodes. The third doctor (who I didn't really like) said that in my situation he "offers chemo if the patient wants it." but it was pretty obvious he thought chemo was overkill. I'm pretty sure I'm going for the chemo and one of the two doctors who recommended it, but I feel guilty about it because it will be disruptive and "make a big deal" over my cancer. My husband is being super supportive and says that there's no need to feel this way. It's just my upbringing :( Has anybody out there wrestled with this? I'm in this position now where I just feel bad no matter what I choose. I want to go back to being invisible. Thanks for any encouragement or experience you can offer if you've been there.

Comments

  • CoComedy
    CoComedy Member Posts: 38
    edited April 2018

    Hi Clare,

    I certainly wouldn’t feel guilty about getting chemo and being “disruptive”! You have the right to do what’s best for you no matter what. None of us choose this ugly disease. Do what’s best for you and never look back! I’m really sorry you’re feeling this way. HUGE HEALING HUGS!


  • Georgia1
    Georgia1 Member Posts: 1,321
    edited April 2018

    Agree - no doctor should make you feel difficult in the slightest. 19 is an iffy score, but with one positive node chemo seems perfectly reasonable. Choose the doctor you trust the most, trust your instincts, and get used to being the squeaky wheel! You are your own best advocate and we are here for support.

  • ClareCo
    ClareCo Member Posts: 66
    edited April 2018

    Thanks Georgia1 and Cocomedy! I just needed to have a “sanity check” with people who have been there. I listened to the recordings of the consults with the oncologist too— and all told I feel more confident in my decision to have chemo. Grateful hugs to you both

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2018

    Clareco, hard decisions for sure. I was a 21 and did chemo. MO said it was up to me. Not that much benefit, but it was something I felt I would regret later, should I have a recurrence, if I didn't. Follow your gut. There are not guarantees either way. Best wishes moving forward.

  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2018

    You should do what you want to do. If you feel better do the chemo no one should question you. You are pr- and have a positive node, it isn't overkill to you.

  • OCDAmy
    OCDAmy Member Posts: 873
    edited April 2018

    I had score of 18 with one node (then they found a second during surgery. I had TC. Never wanted to look back and think I didn't blast it with all we could

  • vampeyes
    vampeyes Member Posts: 1,227
    edited April 2018

    Morning ClareCo,

    Quote: "I feel guilty about it because it will be disruptive and "make a big deal" over my cancer. "

    You and I are similar in our ways of thinking of making a big deal over cancer. Honey, Cancer is a big deal and it's taking my therapist a lot of time to get that into my fat head. I always kept thinking that my little cancer is nothing compared to what other people have to go through, mine wasn't that bad, it's not like I am stuck with it forever, bla, bla,bla. Cancer is a big deal, and dealing with what we have all gone through and still go through - the stress, the treatments, the surgeries, the side effects, the decision making.

    In regards to your oncotype and chemotherapy. Your score is low and that is a positive, I was also low 21 I think. I didn't have any positive lymph nodes. My oncologist stated that the tamoxifen would do the same job as the chemo would and he didn't recommend it. I didn't, I did radiation and feel that it would have taken care of any lingering cancer cells in the area radiated. In the end it's your body and your decision on what will make you feel better. It's not an easy decision and I wish you the best of luck.

    {HUGS}

    Cheryl

  • Rambros
    Rambros Member Posts: 78
    edited April 2018

    I was also a 19 and had a positive (macro) node...I did chemo and am happy I did so have no regrets in case it comes back one day. None of the doctors I saw even gave the slightest suggestion that I should skip chemo ( I was diagnosed at 36). Good luck with your decision

  • Hope62
    Hope62 Member Posts: 7
    edited April 2018

    I had the Oncotype test with a score of 3. Oncologist didn't feel comfortable waiting for results and suggested I start chemo. I did and it was stopped after one cycle. Thank goodness. I am starting radiation in a few weeks, 25 sessions. Do most radiation consist of this many sessions.i am stage 2

  • pupmom
    pupmom Member Posts: 5,068
    edited April 2018

    Hope62, most radiation includes more treatments. It's been a long time, but I believe I had 33 treatments.

  • ClareCo
    ClareCo Member Posts: 66
    edited April 2018

    Thank you all so much for the support and wise words!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited April 2018

    Hope—many ROs have adopted the Canadian protocol. I believe most people on my rads thread two years ago were given this (including me). Typically it’s 15 whole breast plus 5 targeted at the tumor bed. Lots of research showing it’s just as effective and easier to schedule

  • tlgio17
    tlgio17 Member Posts: 191
    edited April 2018

    Hi ClareCo,

    I had an onco of 23 (still in the iffy range) and had 2/5 positive nodes, so my onco said he would suggest chemo, to hit that darn cancer w a ton of bricks and say gbye to it!

    He also mentioned that before tests like onco type, any node positive cancer was normally referred to Chemo. I think the thought of Chemo scared me more than anything else, but I made it thru 6 months of it and 5 weeks of rads! 7 months out now, hairs growing back and feeling more back to myself.

    Wishing you the best!

    Traci

  • ClareCo
    ClareCo Member Posts: 66
    edited April 2018

    thanks Tigio17

  • bella2013
    bella2013 Member Posts: 489
    edited April 2018

    Clareco, there is no such thing as “overkill” when it comes to cancer treatment. The goal is to be cancer free and to never have a recurrence in the future. What is the best path for you to take in your treatment plan to achieve that goal? What choice will give you peace when you put your head on your pillow at night?

    Blessings as you walk this journey

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