Diagnosed today--anyone else?

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lisaroz109
lisaroz109 Member Posts: 14
edited May 2018 in Just Diagnosed

Online communities have been so important to me--during my pregnancies, in raising a son with autism, and now as someone with breast cancer. I had a routine screening (tomosynthesis) a month ago and was called back for more images. On Tuesday, I had an ultrasound and was rated a BIRADS 5. Wednesday, I had a biopsy on two sites, and today received the call I was expecting. I have invasive ductal carcinoma, grade I. The malignant node is 1.7 cm and it is hormone positive. It's all been so surreal today. I meet with my multi-specialty team on Thursday to determine the course of treatment. All of this is to say hello to a community that I never wanted to be a part of but one that I know will provide advice, support, and encouragement.

Comments

  • gigibee
    gigibee Member Posts: 192
    edited April 2018

    sorry you have to join this club but you will find a wealth of information and support. It sounds like things are progressing very quickly which is good, waiting is hard, you will feel much better once you have more pathology and a treatment plan.

  • lisaroz109
    lisaroz109 Member Posts: 14
    edited April 2018

    Weirdly, I feel much more at peace than I did last night not knowing. I'm worried about the size of the tumor, though. The radiologists said that it was small and detected early, but the more I see the posts on this site, the more I see that many people are dx'd at 1 cm. Any insight on this would be appreciated.

  • Egads007
    Egads007 Member Posts: 1,603
    edited April 2018

    Hi Lisaroz - surreal is the perfect description of what the early days of diagnosis feels like. I also know well the peaceful feeling once the torturous waiting is over. Waiting to s the WORST part of the process as you'll see all over these boards! Tumor size is dependant inseveral factors...type of cancer, how long it's gone unnoticed or even how long a person may get wait before getting it checked out. Some cancers grow very quickly, some slow. Medical and imaging advancements are also picking up earlier. My lump was originally 7cm before chemo shrunk it down to 4 for surgery. I was originally diagnosed as triple negative (aggressive fast growth), but pathology showed ER+ at 15%(very low). It grew fast so I'm left to wonder if it isn't a mix? I'm almost 5 years out and approaching NED status (oh happy day!).

    I'm so very sorry you find yourself here joining the sisterhood. We're here for you! Keep us posted on how your treatment plan progresses and reach out anytime...the members here are so helpful and supportive! Hugs n' peace

  • Bauer4
    Bauer4 Member Posts: 47
    edited April 2018

    Sorry you have to come to our little community as well. I am new here ( diagnosed about 1 1/2 months now). Many hugs and prayers to you and your family. This is site great for obtaining true experience information.

  • NotBrokenJustBent
    NotBrokenJustBent Member Posts: 394
    edited April 2018

    Lisa, your tumor is still considered quite small. The good news is the grade 1 meaning it is not aggressive and also ER/PR+ is also considered good as it can be treated with the hormone blockers. All in all, if you have to have BC, you have good stats and a good prognosis, although nothing is absolute until the surgery. Hand in there. It gets better.

  • kandyhunt
    kandyhunt Member Posts: 87
    edited April 2018

    I was diagnosed in late March 2018. I am still in the process of getting my act together with all the doctors and etc. How are you doing?

  • Kelly325
    Kelly325 Member Posts: 3
    edited April 2018

    So I haven’t received the results of my biopsy yet although our dates are close. I found a lump on my own on 4/11, had mammo on 4/19, ultrasound on 4/20 both showed “1.7 spiculated mass highly suspicious for malignancy”. Saw the surgeon this oast Monday and biopsy 2 days ago which he found measured 2.3cm and took 5 samples. He told me it’s most definitely Cancer just waiting on pathology results to see what kind and stage etc. supposedly the two lymph nodes they saw we’re clear so they left them alone. I had a clip placed and after results come back I will be getting an MRI done as the mass didn’t show on the mammo only the untrasound.

  • Searcher481
    Searcher481 Member Posts: 2
    edited April 2018

    Hello Ladies, My sentiments exactly, I would never have thought I would have to join a forum for this. I am still in shock. I just had a mammogram 10 months ago! I have gone every year almost to the day since I was 35 years old! Im 44 Just found out today. I have BC. Interductal carcinoma. IDC I guess. Mine is esto/prog positive. Has a very low T67 proliferation rate (good Im told) It is Her 2 negative . And, is not insitu but only slightly beyond insitu. The cancer navigator nurse (she was assigned to me to guide me though) stated mine was very treatable and very curable. Any advise? I have an appointment with a surgeon in 4days to discuss lumpectomy and lymphnode mapping. At first they were going to have an oncologist meet me that same day but after reading my test decided that was a bit to forward for now. I think they want lymph node info first. Any advice, words of wisdom, comforting messages. I just can't believe I'm here! My mother was diagnosed with stage 4 after missing 2 mammograms and finding a lump. I am so affraid they will test and find more! After telling the nurse this fear, she said that nothing about my testing indicated I was in any kind of situation like that. She said, you are a lot younger and it appears you caught this early. I guess I need to take a deep breath and not assume the worst but it is so hard. Boy, just when you think you've got life figured out... God sends you a wake up call. I pray daily, hourly sometimes. I know he walks with me, but this is so hard. Any forum replies would be helpful.

  • Egads007
    Egads007 Member Posts: 1,603
    edited April 2018

    Searcher - too true! You can plan for a whole pile of life's adventures but there's nothing like the hell of a cancer diagnosis that drops out of the sky onto your head at 3pm on a Wednesday afternoon (my timing). All I can advise is to take one step at a time. It's a helluva lot to process so don't get caught up in the feeling that you have deal with it all at once. You sound like you're proceeding with the medical end of things splendidly. Getting your head wrapped around it takes time and changes constantly....be kind to yourself and roll with changes at your pace, this is your time! The terror you spoke about is normal so keep talking to the docs about it when it happens. it's their job to give the type of answers you got from your NP, listen to her and trust the answers unless your absolutely convinced she's wrong. That's when advocating foryourself comes in, and believe me, there's nothing on earth like getting cancer to make you your own best advocate! Be informed by doing your homework on your cancer and treatment plan...ask lots of questions. Get yourself a date book, you'll need it as this business is a full time job during treatment. Lastly, don't lose yourself to it all, don't let it define you. This is a battle for sure, but one you CAN and WILL win. Be determined to come out the other side the same beautiful person you always were, only stronger and better. We're here for you every step of the way! Big hugs

  • Moonrabbit59
    Moonrabbit59 Member Posts: 65
    edited May 2018
    So I was just diagnosed yesterday. I have a 5 cm long area of DCIS with a small IDC component, so far as my biopsy has discovered. HER2 - and Est/pro +. The radiologist said grade2/3 but as far as extent of lymph node involvement, I’m starting the phone calls for surgeon appts today. One thing I’ve noticed is the repeated urges for organization and always carrying the calendar and taking notes. So thankful that this community exists for advice and support!
  • Keboann
    Keboann Member Posts: 1
    edited May 2018

    Hello ladies,

    I was diagnosed on April 20, 2018 with IDC stage 2 grade 3 ER positive. Had an MRI last Friday which my oncologist told me showed 5 more tumors, 3 appear to be benign the other 2 look suspicious so they're going to treat them as if they're cancerous. My surgeon has now recommended a mastectomy as opposed to the lumpectomy that originally was the plan. I'm nervous and very concerned about my prognosis. The oncologist said it's still an early stage, but I have grade 3 which is poorly differentiated cells. I don't fully understand this, it sounds contradictory to me. Everything has been moving so fast as they(my team) has explained to me it's going be like being thrown into a tornado.

  • bluepearl
    bluepearl Member Posts: 961
    edited May 2018

    The tumour may not be the whole 1.7cm. Mine was 2.5 and upon surgery, the invasive component was 1 cm.

  • TwinsMomma
    TwinsMomma Member Posts: 7
    edited May 2018

    Hi Lisaroz, I am in the same boat as you. I was diagnosed when we could go with IDC, grade t I am in the same boat as you. I was diagnosed when we could go with IDC, grade 2, ER+/PR+. Have you had more appointments yet? My first appointment is next Wednesday. The waiting is driving me bonkers. I also have little ones— 2 year old twins

  • NicoleSammann
    NicoleSammann Member Posts: 1
    edited May 2018

    Hi there, I just registered so I am a newbie. About eight days ago I found out that I have invasive stage IA ductal carcinoma stage and stage zero DCIS. It’s a bit shocking and I just went in for a random mammogram. I had switched health insurance and just wanted to get a physical and check up. It is estrogen receptor positive and HER2 positive. The doc says it’s small size of a peanut and I’ll need a lumpectomy and radiation and maybe chemo. The oncologist want me to take tamoxifen and maybe Herceptin because of the HER2. Its all so scary. I haven’t really slept and I have a lot of anxiety. I’m so scared to even put anything in my body I’ve been eating broccoli and egg whites. Both organic. And organic grass fed beef. The doctor also said I can’t really probably have kids. He said he wants me on tamoxifen for five years and that if I get pregnant it’s too high risk for cancer come back. It will all depend on the surgery and the tumor what my treatments will be. I have read through a lot of messages on here this morning and I feel like it’s a great support group. I guess it’s bad luck but good luck that I found it early. The good news is I have my health and my age on my side. But I’m so scared. Support and advice really help.

  • lisaroz109
    lisaroz109 Member Posts: 14
    edited May 2018

    Hi everyone. And hello and welcome to all of you more newly diagnosed. It's weird to say, but in the last 6 weeks, I've kind of gotten used to it. The stages of grief are real though--shock, sadness and depression, denial...but I'm pretty much in an acceptance place right now. Surgery is Monday. Yikes! this weekend, we're doing all the things--cleaning, cooking, stocking up on pillows because I hear they come in pretty handy. I'm chugging sports drinks as advised to go into surgery well hydrated. AND, the royal wedding is the best distraction every since I am an absolute Anglophile. Sending hugs to all of you wrestling with surgery and treatment decisions.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    NicoleSammann, we are all here for you. So much to take in on all fronts. And it can indeed be very scary. You've found a great group, as you can see.

    We are sending all of you amazing people gentle hugs as you go through your week .

  • OkieChick
    OkieChick Member Posts: 2
    edited May 2018

    Hello everyone! I just registered today. I'm 44 and was diagnosed with IDC grade 1, approx. 1cm, ER/PR + on May 1st. I had a mammogram in November that was clear and a breast exam at my annual GYN checkup on March 8th that was normal. I noticed some visual changes prior to finding a lump on April 5th. I waited about 10 days to see if it was hormone related since I have dense breasts anyway. It didn't go away. Had an exam with my GYN on April 25th, an ultrasound on April 26th and the radiologist came right in and did a biopsy (BIRADS 5) which was completely unexpected! The waiting was horrific although deep down I knew the result. My GYN called for a meeting the next Tuesday and here I am. No family history. Cancer was the one medical condition I thought I didn't have to worry about. I have had an initial visit with my surgeon who sent me for lab and a PET scan. I have a follow-up with the surgeon tomorrow. I should find out about HER2 and BRCA results at that appointment. I work in the medical field and my personal/professional experiences with breast cancer don't jive with the statistics they keep spouting at me. This has been quite a lot to take in and although I have a wonderful support system, they all seem to think I'm some superhuman who can handle anything. I can't! I hope joining this forum will give me a place to express my feelings and fears. They keep telling me it's small and slow growing but how did it come on so quickly? That makes me nervous! Thanks for listening.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2018

    Welcome, OkieChick! We're so sorry you find yourself here, but we're glad you've joined our community. We know what a blow the words "breast cancer" can be, but you're not alone, and we're all here to support you! We also understand how hard it can be to manage people's expectations of your strength. The bottom line is, breast cancer would stop even a superhero in their tracks, so don't think for a second that you aren't entitled to go through all the emotions that come along with a diagnosis. This is a safe space, and that's what this community is for.

    The Mods

  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2018

    Sorry Okie Chick. It’s the DX none of us wanted to hear.

    I’m curious why you say your professional experience doesn’t jive with statistics you have been given. What does that mean?

    I do have a family connection. My mother had BC and now both my sister and I have it. Thing is BC isn’t discriminating and by the way the majority of breast cancer patients don’t have a family history. My MO told me the fact is they don’t know why some women get breast cancer.

    Small and slow growing is a good sign but it is baffling why they didn’t find it on a mammogram unless it’s because you have dense breasts.

    You are human, superwoman or not and this kind of DX will and does knock you for a loop.

    Keep the faith and keep us posted.

    Diane

  • OkieChick
    OkieChick Member Posts: 2
    edited May 2018

    Thank you for your support. Follow-up today with surgeon. HER2 - and BRCA -. I feel much better about things now. Edwards750, what I meant by my experience is a high percentage of the women I know, have known or know of, who have had breast cancer have gone on to develop other cancers after initial treatment was completed. That is not the norm and there could be environmental factors that play a roll in it. I wasn’t trying to be an alarmist, just voicing one of my concerns/fears.

  • LayDeeBug
    LayDeeBug Member Posts: 4
    edited May 2018

    Yesterday i received the biopsy results: IDC, grade 2 with 2.4 cm tumor in my right breast and cancer in biopsied lymph node. No family history of BC so this is indeed a surprise to me. My MO appointment is next Thursday. While i read through the forum threads, I’m interested in learning what i should expect during that first appointment. Anyone with similar diagnosis, I’d love to hear about your experience and what i might expect going forward. Thanks!

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