April Exchange Surgery Group

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  • EZsofar
    EZsofar Member Posts: 9
    edited April 2018

    Hi ladies, I am 6 days post exchange. I came back to work on Monday. I am still very bruised from fat grafting, the soreness is all but gone. I have a few twinges from the incisions but all seems to be going well. I have a follow-up appt tomorrow. Just wanted to give you all encouragement that this surgery is a breeze.

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited April 2018

    EZsofar THAT IS GREAT! So nice that you wrote in to ease the anxiety at least I have about this. I'm so excited but nervous at the same time, so it's wonderful to hear that you're feeling okay enough to be back at work already and that your soreness is all but gone!

  • FaithsMama
    FaithsMama Member Posts: 126
    edited April 2018

    Hi Ladies!

    I go in for my mastectomy in about a week. Was diagnosed about 2 weeks ago. I had my plastic surgeon consult Tuesday. I just want to share how overwhelming all the information is. I am exhausted!

    Reconstruction at first, I thought, was just like breast augmentation. Turns out, as you all know, it’s very very different. I am torn between keeping my good breast, or opting for a dbl mastectomy purely for asthetic purposes. I don’t want to look like two different women from breast to breast.

    What have you all done in terms of choices regarding your reconstruction? The drs want to start mine at the same time as my mastectomy. So I need to decide ASAP

  • RoJo
    RoJo Member Posts: 14
    edited April 2018

    Hi. I'm having my exchange on April 23rd. I couldn't be more excited! Such a long 15 months with these Barbie boobs, or my wrecking balls, as my kids like to call them. I have TEs In now filled to 500 ml. I've had two rounds of fat grafting over the last 6 months to try to get some of the radiated tissue to heal and get ready for the implants. My PS wanted to do a latissimus flap, but I said no. No more muscles for foobs. Having the expanders under my pec muscles has been bad enough. I think I've decided on 450 cc implants. I am going with silicone rounds smooth. These TEs have been so hard and uncomfortable, I'm going with the softest boobs I can. I am so excited

  • FaithsMama
    FaithsMama Member Posts: 126
    edited April 2018

    Rojo! I love your attitude! I am excited for you

  • Nursepatient35
    Nursepatient35 Member Posts: 166
    edited April 2018

    Hello, I'm so happy to find this group! I have my exchange surgery scheduled for April 25th. I'm currently filled to 315cc's and will get the gummy bear tear drop implants. He never said the size but will try to make them as big as I am now with the TE's. I'm so excited to get this all over with but not excited to go back to a recovery state. Even though these TE's are hard as rocks, I'm finally to the point where I can do anything again, move however I want, pick up my 3 year old, etc. I'm a little nervous because my PS told me I'd only need to take 1 week off of work so that's what I requested. After reading some things though, that doesn't sound like it will be enough. I work as a surgery nurse so I do a fair amount of lifting and carrying. He also mentioned the dreaded drains again but said probably only for a week. I guess, I'll just see how it goes. Good luck to everyone on here. Sending prayers for quick recoveries and no infections.

  • DebAL
    DebAL Member Posts: 877
    edited April 2018

    Hello! We have a lot in common (dx same time, I am a pre-op nurse, and my expanders are hard as rocks too lol) i agree its so nice to be able to move around freely again! A week off in our profession seems a bit short. I will be right behind you for surgery once I get thru 3 more chemo treatments. Best of luck with your surgery!

  • Nursepatient35
    Nursepatient35 Member Posts: 166
    edited April 2018

    DebAL,

    I'm worried a week won't be enough. I work in a small hospital so do some pre-op/circulating/scrub and outpatient stuff. The good thing is my co-workers have been great to me so if I need help or more time off they'll be there. Good luck with the last of your chemo treatments. Have you been able to work while going through those? It's tough to be on the other side of healthcare, but I do think it makes you a better nurse. I'm so ready to be done with all this. The beginning of 2018 was so scary and depressing but things seem almost back to normal again.

  • DebAL
    DebAL Member Posts: 877
    edited April 2018

    yes, it is tough to be on the other side of health care. I went back last week full time "transitional" status meaning some desk work but I still pre-op patients. Never would i guess that i would be in the situation of many of my patients. I work with my own surgeons twice a week, so ironic. Having supportive coworkers is wonderful. I work on a super busy unit, larger hospital. I honestly don't stop but that's a good thing for me. We were diagnosed around the same time and even though I'm going through chemo it is somewhat getting back to normal on the off weeks anyway. Take the time you need to heal. You have been through a lot. Best of luck to you and keep me posted on how you do!

  • TaRenee
    TaRenee Member Posts: 464
    edited April 2018

    I am about 2 weeks post exchange. With the exception of a terrible stomach bug, I had an easy recovery. I was out a week and a half (mostly due to being so sick). I feel good. My boobs feel great. (They feel like my old boobs, which is pretty amazing to me)

    Hang in there. Take it easy for a bit. It does get better! I go back in 5 weeks to talk about nip tattoos.

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited April 2018

    SuiteLisa It's such a hard choice for so many of us. It didn't seem like such a hard choice to me at the time, my doctors pushed me not to have a BMX saying it was extreme given my healthy other boob, but now being a uniboober (I have an expander in my right side, normal boob on left), I have to say I almost regret not getting a BMX for aesthetic purposes. But that's just my situation! I worry about symmetry but I have to trust I'm in the hands of an experienced profesional for my exhange and symmetry surgery on the 24th.

    TaRenee Your recovery sounds like it's going well, it's so good to hear! I'm excited that you get to go back so soon for tattoos. I think I have to wait 3 months!

  • RoJo
    RoJo Member Posts: 14
    edited April 2018

    SuiteLisa. I also had cancer on just one side. My genetic markers were negative, but with a mother and maternal grandmother with post menopausal breast cancer, and getting multifocal tumors on my left side, I just couldn't imagine trusting my right breast to behave. Do I wish I had one normal breast? yes. I have no sensation across my entire chest. My nipples are gone, so theres one sexy part of me missing (oh, and chemo and menopause are also not very sexy). I think the plastic surgeons could do a pretty good job evening things up in the end with lifts, small implants to the normal side. I'm sure there are many women on BC.org who could/have commented on having a single side reconstruction done. I wouldn't do what I did with BMX for symmetry purposes. I miss my boobs, and if it was safe, I would have kept one, but I'm only 42 now, and I hope to live a long time yet and don't want to go through this again. Good luck. Don't feel rushed making your choice. If you can't decide, just keep the normal breast and decide later. You can't put it back.

  • JammieGirl
    JammieGirl Member Posts: 2
    edited April 2018

    Well said, RoJo! I had a MX on the R side last Oct and had a TE, which is filled to 450cc. I am done chemo and am scheduled for replacement surgery on the R and symmetry on the “good" L side on...drum roll....Apr 24 - same date as at least two of you!

    My question is a new one, which I've seen nothing written about on-line, anywhere (I know!). My PS plans to put in a smooth round silicone implant on the R, and a smooth round saline implant on the L under the good breast muscle. This is because the saline implant can be filled to a precise degree, during the surgery, for a near perfect size match. She says I will not be able to feel the difference. She is an experienced, reputable surgeon and I trust her. But this strategy has me feeling a bit uncomfortable. It's either brilliant (in which case why haven't I read about other similar cases) or odd.

    Has anyone had this or heard of it? I have onlyone week, so please reply if you have any information you can share. Thank you!

  • Ibis
    Ibis Member Posts: 71
    edited April 2018

    JammieGirl, At the time of my left exchange, I had a lift on the right. My PS decided not to put in a right implant at the time of the right lift because he was concerned about the health of my tissue (age related, I think). He did want to put in a saline implant 6 months later for the exact reason you described—exact matching. I was also very surprised. He did say he’d put in silicone if I wanted. I was in the process of deciding when DCIS turned up in the right so I had another MX. Now waiting for the right exchange. Good luck with your decision and surgery.

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    SuiteLisa, my TE to implant exchange was coming up and I decided to do the prophylactic mastectomy too. I am scheduled for this Wednesday. I was very torn and confused and overwhelmed about this. I am BRCA2+, so that certainly affected my decision. I thought I could handle just being monitored closely, but the idea of going through not just surgery but also chemo and radiation again, when I'm older (in my late thirties currently) was daunting. The doctors and my husband as well as several relatives who are medical professionals were all encouraging of the prophylactic mastectomy. I decided to go for it. I think it's a good decision, though there is definitely more than one right decision.

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    t the hospital. Prophylactic mastectomy and exchange today.

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited April 2018

    May everything go beautifully for you, Star!

    Please post when you're out and feel well enough to let us know how you are.

    Hugs!

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited April 2018

    Tomorrow Shadie, Jadalulu and Nifer have their surgeries. Woohoo!

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    thanks, Sweet-pea

  • Shadie
    Shadie Member Posts: 57
    edited April 2018

    Thanks, Sweet-pea!

    Will provide a report :) as soon as I am able!

    Good luck to my surgery sisters!

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    They did the right exchange and left prophylactic mastectomy but had to place a tissue expander on the left rather than the implant unfortunately. Hopefully we can expand and do the left exchange after radiation ends in July.

    I don't feel any pain on the right exchange side but the left mastectomy side definitely hurts more than expected, so I've been asking for meds.

    I experienced a little nausea and lightheadedness, but I feel generally better now.

  • TaRenee
    TaRenee Member Posts: 464
    edited April 2018

    I’m two weeks out from my exchange now. I’m TRYING to behave and not overdo it, but I feel good! I guess that’s a good problem to have.

    I went to Nordstrom’s over the weekend to inquire about bra sizing (they have post mastectomy and reconstruction specialists there. If you have one near you, check it out). They said to wait 6 to 8 weeks minimum for setting the appointment so that swelling is down and healing is mostly done. I’m looking forward to it as now I need to start looking for a bathing suit for the summer and it will help me to be able to figure out what style will work best with my new boobs.

    PS. I’m also excited to say that the healing is going well and we are already working on scar management!

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited April 2018

    TaRenee That's GREAT news! It IS a good problema to have, and I'm happy you're working hard not to overdo it. Sounds like everything is going quite well. :-)

    star2017 I can so understand how you're disappointed with the tissue expander instead of the implant. Does this mean you have a TE in both sides now? Hang in there with the pain on the MX side, and I'm glad you're getting meds for that. No reason to suffer when there's help available.

    I have just 5 days left until my surgery and my anxiety is a wee bit overboard this time, especially since this operation is supposed to be much less of a deal than the MX. I actually am taking an anti-anxiety pill every day (well, since yesterday) because I was feeling so bad I went to the doctor about it. At least that's giving me some normalcy in my day at work. I find that if I don't have any work to do, I get really antsy. If I have work, it's usually urgent, and i feel distracted and much better. But the other day I just couldn't concéntrate on the work I did have, so it was good I had the doct appt. and he gave me some meds.

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    Sweetpea, no I asked the ps to place the implant on the right regardless so he’s done before radiation. The reason we did the exchange surgery nowis so that he would not need to operate on radiated skin. So there’s an implant now on the right (cancer) side and TE on the prophylactic side. He said he’d ask the radiation ONC about when to start fills but he said many prefer the other side to be flat to be able to aim the rays so that the lungs are less likely to be affected. Maybe it’s a blessing in disguise.

  • star2017
    star2017 Member Posts: 827
    edited April 2018

    btw sweet pea, you’re doing the right things about treating your anxiety. Wishing you the best

  • Shadie
    Shadie Member Posts: 57
    edited April 2018

    Surgery was today, and so far, so good!

    It was outpatient, as anticipated, with no drains. Besides feeling a bit queasy from the anaesthesia (and which dissipated significantly within about 6 hours), I have felt no pain, just a little discomfort at the incision areas. I took a dose of Percocet at the hospital, and took extra strength Tylenol this evening, with no discernable difference.

    Walked half a mile this evening, bought a couple of light groceries while on my walk, and had a normal dinner.

    I took a peek, and was happy to see that I look pretty good, like 90-95% of my old self. There is a little minor rippling in one breast--I know things might settle--but truthfully, if it stayed like this, I think I would be fine. And yes, the silicone is soft!

    Am waiting to see if I wind up turning black and blue and swell--so far, normal color and almost identical size to my TE inflated (and pre-surgery) self.

    Hope others have a similarly positive experience!

  • Nursepatient35
    Nursepatient35 Member Posts: 166
    edited April 2018

    Shadie, reading your experience is putting me much more at ease with my upcoming surgery. Hope you continue to feel as good and heal fast.

  • Shadie
    Shadie Member Posts: 57
    edited April 2018

    @nursepatient35--thanks. Hope your procedure goes smoothly, too. I work a desk job, and plan to be back on Tues. I am pre-pec, which means things have likely been easier for me than for others.

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited April 2018

    @Shadie, that sounds amazing. I'm so glad your experience is going so well. It's interesting that pre-pec is easier -- wait, does that mean the implants are above your pecs instead of below (like mine)? I think it does but I just want to make sure.

    I agree with Nurse, it's wonderful to hear people's experiences because it puts the rest of us more at ease. Thanks!

  • Shadie
    Shadie Member Posts: 57
    edited April 2018

    Thanks.

    Yes, pre-pec means above the muscle.


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