Just diagnosed what doctor and what tests

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SunnyChilly
SunnyChilly Member Posts: 13

Just diagnosed, IDC grade II and DCIS grade 2-3. Together around 1cm. Totally overwhelmed by this, don't know what to do...

So glad to find this forum, been reading it and lots of good information. Thanks ladies!!

the nurse navigator gave me a list of surgeons to select from. Do I need to meet any other doctors? Sounds like a lot more need to be involved like Oncologist, radiation oncologist etc. Is there an order of priority?

Also, I really would like to do as many test as possible to make sure this thing hasn't found its way into other nearby organs. What kind of tests are needed for that? What is the standard tests to order at this moment? I heard MRI, CAT scan, PET scan, Bone scan etc. How do I get those ordered? through which doctor?

I would like to get on to all the preparation before deciding on what surgery procedure to take. Any help would be greatly appreciated!!

Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited April 2018

    Hi there and I'm so sorry about your diagnosis. It will be a crazy few months but if you take it one step at a time you will be fine, truly. My two cents:

    Get an appointment with a good, experienced breast cancer surgeon first. Not a general surgeon.

    Things move unbearably slowly, so if there is a second hospital in your area book an appt for a second opinion now. Ideally this would be with the head of an accredited breast cancer center.

    You will eventually need a medical oncologist and, if you choose a lumpectomy, a radiation oncologist. That can wait but you may want to ask around for recommendations now.

    Your surgeon may order an MRI pre surgery. I wouldn't worry about other tests now.

    Best of luck.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited April 2018

    Agree with all above. First stop is a breast surgeon. It might be that he/she takes the lead on the other medical personnel when the time comes. I'm working within the same local hospital--my BS's office actually scheduled my initial appts with the RO and MO. I also wouldn't sweat the tests. Many have an MRI on both breasts before surgery to take a closer look before making a decision. I doubt you'll need the others, or at least not before surgery. One step at a time. . .

  • MarlaM
    MarlaM Member Posts: 29
    edited April 2018

    My doctor referred me to a breast surgeon and oncologist. I met the onco first and he went over my results with me, then I met with the surgeon, who did an exam and let me know more details of what my results meant and what the initial plan would be. Your surgeon and onco will work together, but my surgeon is the one who ordered additional tests - first an MRI, then after seeing those results, another ultrasound and biopsies to check both breasts and my lymph nodes. She was able to determine the best course of action after seeing those results, but she also ordered CT and Bone Scans, just to make sure the cancer had not spread.

  • Mucki1991
    Mucki1991 Member Posts: 294
    edited April 2018

    Make an appt with an oncologist before deciding or doing a surgery, more doctors are using chemo prior to surgery which can possibly shrink tumor for a better surgical and cosmetic outcome. Please get second opinions from each dr . Also while deciding be aware sides effects from treatment can last a lifetime so be informed. Your lymph mode status will be determined at time of surgery this will let you know if cancer traveled outside of the breast.

    Best wishes

  • edwards750
    edwards750 Member Posts: 3,761
    edited April 2018

    I totally agree about getting a Breast surgeon - not just a surgeon. I had to choose between 2 both who came highly recommended although only one was a BS. I went with the BS. I didn’t see my MO until after my surgery. She decided the treatment plan.

    My BS thought I would need chemo because of a micromet in the SN but my MO instead ordered the Oncotype test to determine the best treatment plan. It’s not the BS’ job to do that - it’s the Oncologist’s. Because of that test I dodged chemo. I had a low score. I had radiation instead.

    The most important thing is a good relationship with your doctors and confidence in them. I don’t see the need for second opinions unless you don’t have that. It’s your body and your life so you have to be sure.

    The process should move quickly after surgery. At least mine did.

    Just so you know I am 7 years out this August. I was Stage 1b, Grade 1 IDC. I had a lumpectomy and 33 radiation treatments and 5 years on Tamoxifen.

    Good luck!

    Diane
  • SunnyChilly
    SunnyChilly Member Posts: 13
    edited April 2018

    Thank you so much, ladies. This is really helpful! I am so touched that I got so many detailed recommendations in such a short time! Thanks again!

    I just made an appointment with a breast surgeon and trying to get second opinion from a cancer center. Will also talk to my nurse navigator about getting a MO.

    Hopefully the initial consultation with the surgeon will decide the next steps and options.

    Thanks!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2018

    Remember that a breast surgeon will focus on what they have in their toolbox--scalpels and such, e.g. Since that is what they are trained to do, a breast surgeon may push for surgery sooner rather than later. I'd make sure you talk to an oncologist, and one specializing in breast cancer if you can find one, before you decide on ANY treatment, whether surgery comes first or last.

    I think if I had allowed panic to drive me, I would have had a BMX in a week after my surgeon shared my pathology report with me, because he told me he could schedule one and have me in surgery in a week's time if I wanted it. I'm glad I waited. I was able to do so much more evaluation to see whether a BMX was really what I wanted, choose a plastic surgeon/b.c. surgeon that I trusted as well as a good oncologist, and I wasn't recovering from surgery while trying to move into getting chemo, too.

    There are different ways to treat b.c. Get the best medical team you can to help you get through this first.

    Hugs

    Claire in AZ

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited April 2018

    I agree with claireinaz. See an oncologist before finalizing any plan. Hopefully your nurse navigator can arrange for an appointment within a short time.

    I had a positive needle biopsy and moved forward with a lumpectomy before ANYONE was aware the pink, swollen circle on my breast was filled with tumor emboli in the skin. When I saw the oncologist after the lumpectomy and axillary node dissection, she immediately knew the circle of skin was malignant and arranged for biopsy and neoadjuvant chemo. It all turned out OK, though. I've been NED a long time.

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