LCIS to cancer

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MaryinPa
MaryinPa Member Posts: 8
edited April 2018 in LCIS (Lobular Carcinoma In Situ)

I understand that not all those diagnosed with LCIS will go on to develop cancer, but I am curious how long between an LCIS diagnosis and a later finding of cancer? Can it be months, a year, 5 years? I have seen several posts of woman opting for a mastectomy,which I completely understand and am considering. I just wonder how long on average does one how to consider it as a choice before it may become a need.

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  • Wicked
    Wicked Member Posts: 141
    edited December 2016

    My LCIS was found on stereotactic biopsy. ILC was found on lumpectomy a few months later.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2016

    MOST, the MAJORITY do not go on to develop cancer.

    From the LCIS section here:

    How greatly does having LCIS increase breast cancer risk? One estimate is that the lifetime risk of developing an invasive breast cancer is 30-40% for women with LCIS, versus a lifetime risk of 12.5% for the average woman. Another estimate suggests that an LCIS diagnosis increases breast cancer risk to 21% over the next 15 years.

    If a woman with LCIS develops an invasive breast cancer, it doesn't typically happen within a few years. Rather, it is more likely to happen over the long-term — in 10, 15, or 20 years or even beyond that. A woman with LCIS is considered to be at elevated risk for developing breast cancer for the rest of her life.

    If you've been diagnosed with LCIS, learn what you can do to lower your risk of being diagnosed with an invasive breast cancer in the Lower Your Risk section.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Mary, I've read the same things Melissa posted. Most with LCIS do not go on to get invasive bc, but if they do, it's many years later. (15-20, even longer). If it's combined with other significant risk factors, (family history, BRCA positive, etc.) the situation may be different. Having said that, I have family history of invasive bc (mom had ILC) which elevates my overall risk, and I'm over 13 years out since diagnosis of LCIS , and I'm doing fine with clear MRIs and mammos. I chose not to do PBMs, but it's an extremely personal choice to make.


    Anne

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  • MaryinPa
    MaryinPa Member Posts: 8
    edited December 2016

    Thank you ladies for your input. I feel so helpless not doing something and living life from one mammo to the next. As I said, I understand it does not mean everyone with LCIS will develop cancer, but cancer is what I think about whenever I go for a test.

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  • Wicked
    Wicked Member Posts: 141
    edited December 2016

    Mary, you are doing something. You're getting your scans like you're supposed to. That's something! While I did develop ILC from LCIS, I am an outlier. That will not only not happen to everyone, it will not happen for MOST women. MOST women with LCIS will not develop invasive cancer. Odds are in your favor. I wish you continued good health!

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  • Lea7777
    Lea7777 Member Posts: 274
    edited April 2018

    "While I did develop ILC from LCIS, I am an outlier." Quoting Wicked.

    My question is who else has gone from LCIS to cancer? What kind? How did you treat it?

    Thanks

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