Found a lump, I'm young- worried I won't be taken seriously!

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doomsayer
doomsayer Member Posts: 2
edited March 2018 in Not Diagnosed But Worried

I have found a small lump, approximately three inches above the edge of my right nipple.

It is tiny, I'd reckon a touch smaller than a pea. It feels firm, round, and smooth. I am not sure how mobile it is--the skin around it certainly moves, but the little lump seems quite stable (what does a more mobile lump feel like? I just can't tell what I have). I can only feel it by pressing in or by stretching back my shoulder blades and making the skin taught. It is a bit sore when I press into it, and my right armpit/breast region is a bit sore compared to the left. There is no lump on the other side. The breast looks normal, otherwise. No puckering of the skin, no discharge.

I am 26 years old. There is no breast cancer history in my family, to my knowledge, but sadly our family history is quite poor (thank you, Nazi Germany). There is, however, a known history of gynecological cancer. My mother has a rare uterine sarcoma (LMS) and ovarian cancer, and her mother died of a different, more common form of ovarian cancer. My mother does not have BRCA mutations. The only risk factors I think I have is that I did take BC for a few years when I was younger, for pain management, and that I do not have children.

I made an appointment at a local clinic to see a NP on Monday. I'm really worried they'll all tell me to stop worrying, that it's just a cyst. I'm worried they will refuse to do anything further and send me home to wait and see if it goes away.

I think a lot about how fortunate my mother was--they told her it was "just a fibroid," even though it was massive by the end of it (11.5 cm) and she looked five weeks pregnant. They told her removing it would just be an aesthetic decision, so she waited. It was good fortune that she finally decided to remove it because it began to feel uncomfortable, that the surgeon took out the entire "fibroid" in one piece, and that they convinced her to do a hysterectomy + salpingo-oophorectomy as a preventative measure. They only realized that they had removed a rare, chemo-resistant sarcoma (that threatens a 50% survival rate when contained to the uterus) and an ovarian tumoronly after the fact. I consider it to be a miracle that she is still with us.

I know I am young. I know this would be rare. But we've had a lot of inexplicable and/or misdiagnosed health problems in my family, which gave me a good dose of "don't trust a doctor who won't do a proper exam" paranoia, no matter how rare the concern might be. I want a full exam, whatever that looks like for a 26-year-old.

What should I ask for? Would an ultrasound be the way to go? If they say, "You're too young, and this is a cyst," what can I ask for as a reasonable next step? I really just want peace of mind, and after my mother's diagnosis, nothing short of a proper evaluation will give that to me.

Comments

  • wrenn
    wrenn Member Posts: 2,707
    edited March 2018

    I would first see a doctor or NP and have it assessed and see what they have to say. If you aren't satisfied then you could ask for an ultrasound. Try not to worry in advance of how they might react or treat you. They might listen.

    It is very likely a cyst but you should still have it checked.

    Sorry about your mom. :-( . I can see why you would be worried about it being missed. Wishing you good results.

  • gb2115
    gb2115 Member Posts: 1,894
    edited March 2018

    I understand the lack of trust. Let the NP do an exam, if it's not thorough or you don't trust her you can always seek a second opinion. I think even if they say it feels ok, if you tell them you're worried and would like imaging to be sure. That might get you further work-up.

    I also don't know what kind of NP you are seeing, but an OB/GYN is pretty good at that sort of stuff. They do breast exams all day long! Mine found my lump... :/

  • doomsayer
    doomsayer Member Posts: 2
    edited March 2018

    I'm seeing a NP at a women's health clinic, so she's specialized and does breast exams all day, I'm sure... I couldn't find any OB/GYNs who would see me soon--and at this clinic they said they would make sure to get me in to see her fast if the NP decided it was necessary. I'm trying to just have some faith that seeing the NP and becoming a known patient at the clinic will get me to the OB/GYN sooner, if it's needed. I would like to think a more specialized NP will know what she's doing too.

    Thanks for the thoughts. I've been at home all alone trying to work, and failing miserably to concentrate because all I can think about is this/I can't stop reading mis-diagnosis stories. It's nice to hear from others so quickly. I guess ultrasound/imaging of some sort is the next step, then, after this, just to be sure.

    I will update this when I know more. *fingers crossed*

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2018

    There are a lot of OB/Gyns that aren't particularly great on breast issues and it really isn't their specialty. About all they can do is refer you, just like a GP or whoever would.

  • star2017
    star2017 Member Posts: 827
    edited March 2018

    in my experience, doctors took the cancer more seriously because I am yiung

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2018

    It is really rare that I see people that are worried about this that are not sent for appropriate imaging and taken seriously

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