IDC Treatment different in Uk

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RosieL
RosieL Member Posts: 2
edited April 2018 in IDC (Invasive Ductal Carcinoma)

Hi,

I'm in London, UK.

I was diagnosed with IDC a month ago. Grade 1, Stage 1B, ER +, PR +, HER2-

Had my surgery to remove tumour and 1 lymph node. Now on letrozole and due radiotherapy. Prognosis is v good.

I'm shocked to read on this forum how many women with similar diagnosis are having mastectomys and chemotherapy.

I feel very blessed to have my treatment with the excellent national health service here in the UK.

Wishing everyone here the best health going forward



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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2018

    Dear RosieL,

    Welcome to the BCO community. We hope that you will stay active here and share your stories. Keep us posted on how things go for you. There is a very active thread here for those who are Triple Negative and Living in the UK. While you are not triple negative you may find members there from the UK whom you can connect with via PM. Let us know if you need any help with navigation. The Mods

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  • dtad
    dtad Member Posts: 2,323
    edited March 2018

    Hi there. I would say most women with your diagnosis have the same treatment here too. The only difference is we have something called an Oncotype test which gives an idea of how much chemotherapy would help. There is a range and if its high you would consider chemo. However most make their own informed decisions. Good luck and keep us posted...

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  • bluepearl
    bluepearl Member Posts: 961
    edited March 2018

    Yes, the oncotypeDX makes a difference. That said, BEFORE oncotypeDX, women with stage 1, grade 1 negative nodes and very small tumours did well.

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  • RosieL
    RosieL Member Posts: 2
    edited March 2018

    thanks for your reply

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  • letsgogolf
    letsgogolf Member Posts: 263
    edited March 2018

    I am in the US and an identical situation. Stage 1B, Grade 1, ER+, PR+, HER2 Negative. I had a lumpectomy, radiation and am on Arimidex. Nobody ever suggested any alternative surgery or treatment. Having said that, I also have read numerous postings about women having a mastectomy or 2 and chemo. More isn't necessarily better and can actually be more harmful. I think fear tends to make some want to throw everything possible at this disease.

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  • CeliaC
    CeliaC Member Posts: 1,320
    edited April 2018

    Hi there, RosieL. I am married to a Brit - before we moved here in 1993, he was a lifelong London boy. At consult with breast surgeon suggested lumpectomy, radiation & some form of anti-hormonal. Even if I wanted a mastectomy, believe he would have been deadset against it. No chemo was recommended due to Oncotype results. There are so many variables to the BC surgery decision, though. And, of course, it depends on your medical team. Glad to hear your positive experience with NHS.

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