IDC grade 3 metastasized axillary lymphnodes

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QuartzKrystal
QuartzKrystal Member Posts: 4
edited March 2018 in IDC (Invasive Ductal Carcinoma)

it figures the first time Im right about something it ends up being life changing and really scary. Especially I just turned 37 with a 17 year old daughter and a 10 year old son with ADHD and Autism. I am their "person"💔 their protector from all things scary and how ironic is it that this is what will scare them the most, the thought that they could lose their "person" before they are ready. They just lost their grandfather to lung cancer and 2 weeks later Im diagnosed with this bullshit. I don't want them to be afraid so Ive put on a good front and have not told them. This really sucks!!!

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  • xxyzed
    xxyzed Member Posts: 230
    edited March 2018

    Yes it really sucks. I had the same with my boys. They had lost their dad and grandad to cancer the year before I was diagnosed and I was all they had left. It was a rough 6 months for us during active treatment and we are now out the other side just doing extended targeted therapy now. Crossing my fingers for no recurrence anytime soon. The kids were therapied out from their dads illness and were trying to get back to a normal life when the bus hit them again. They have had a heap more therapy and seem to be doing ok now over 18 months since my diagnosis.
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  • QuartzKrystal
    QuartzKrystal Member Posts: 4
    edited March 2018

    I find out more on Monday, they havent got the receptors back yet and Ill be getting more scans. I haven't felt "right" since the end of the summer, and everything kind of hit the fan once I stop smoking marijuana in early November because I thought after years of smoking it was finally taking its toll. But in reality it seems like it was actually slowing the cancer down.

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  • xxyzed
    xxyzed Member Posts: 230
    edited March 2018

    The waiting for results to determine what treatment will be recommended is the hardest part. I didn’t tell anyone anything at that stage because I had nothing concrete to tell them except for I knew I had cancer. I also knew something was wrong for about 6 months prior to diagnosis and kept going back to the doctor with vague complaints until eventually it was found.
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  • QuartzKrystal
    QuartzKrystal Member Posts: 4
    edited March 2018

    yes me too..I noticed things starting in November2016. My back felt sore, lymphnodes in my neck(dr.said it was a virus), random sharp pains in my left breast( dr. Said it happens), neck pain(dr. Bad posture), weakness in my hands(dr. Carpal tunnel) exhaustion. The first time I saw a different dr she said she couldnt feel the grape sized lymphnode under my arm, I asked her for a mammogram and she says oh your too young and then said come back in 2 weeks to see my pcp. That was in December...now almost 4 months late. Im partially diagnosed and this shit was spreading the whole time. Im really pissed off but i know that feeling this way doesnt change anything.

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  • bluepearl
    bluepearl Member Posts: 961
    edited March 2018

    I am so sorry and I am very sorry you slipped through the cracks as well. I have a heart rhythm disorder and emergency did nothing. Two days later, had a bad rectal bleed (on blood thinner) and emergency did nothing. So I got mad. Went to GP and getting colonoscopy and referral to internist and then from her want referral to cardiologist. In short...be your own advocate. I had to do that with my second breast cancer and I was seen by breast surgeon after two days from referral and then one week later, operated on. Doctors couldn't believe how fast I was taken care of. Sometimes you just have to look nuts...and mad....whatever it takes.

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  • Manc
    Manc Member Posts: 66
    edited March 2018

    hi had to reach out to you from the UK as your post really resonated with me. I was diagnosed November 2016 Grade 3 with nodes. I've had the hardest journey emotionally but my biggest issue are my children. I'm 49 and my children are aged 15 to 27 but the youngest two are so close to me. my 18 year old son has been home schooled since 11 and I'm his world. My daughter is also now out of school due to anxiety. I'm terrified of not being here for them ever they need me so much. I think you summed it up saying your their person. Best of luck to you through this and stay strong x

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