Anybody out there?

I’ve posted on here a few times and have read countless threads. I have yet to find anyone with a similar story (I know they’re out there 😉)

Not sure if there’s a link (really feel there is tho), but I developed a mass in my left breast 5 days after starting Humira for Crohns Disease). It was literally all of the sudden there. Then a few days later my nipple started to become inverted and then next I was bleeding from the nipple (a lot of vascularity going on as well). Mammogram, ultrasound and biopsy, all done. Pathology came up negative for cancer.

Lump has to be removed anyways but I opted for a double mastectomy because of strong family history. I go to see the surgeon and he says “I’ve spoken quite extensively with the radiologists who did your ultrasound and biopsy, they all agree they see cancer but cannot find it. I recommend an MRI with contrast”. So I had that done this morning.

I’ve had severe weight loss and now my appetite is going. I told them I’m not sure how much more I can take, I’m getting weak. I didn’t have the weight to lose to begin with. My whole life has been turned upside down (which I know MANY on here can relate with). I’m not nervous or scared, I just want to know if there are others with my symptoms that have had to go thru all this testing and WAITING (UGGHHH). I’m pissed that i even used Humira!!! Now reading all the lovely side effects I see breast cancer and other cancers on there. I was also told it might not be found until after the surgery and pathology is complete.

Thanks for listening