Side effects of rad treatment

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Hello all! I'm about to start my radiation treatment next week and i was wondering what some of your experiences are and/or were. I am super neevous. I just had surgery several weeks ago.(lumpectomy)

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  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited March 2018

    Hi Rozzie!

    I found the radiation treatment to be pretty easy, but tedious. I had treatments 5 days a week for 7 weeks. Luckily the hospital was 10 minute drive from my office, so I was able to do it during my lunch hour. The first treatment takes a bit longer because they're trying to get you lined up in the machine just right. After that, the treatments themselves are very quick, you're only in the machine for 10-15 minutes. Most of the time is spent getting you positioned, and getting the machine to change positions. The first three weeks were pretty uneventful. I saw my RO once a week where she checked in on how I was feeling and carefully checked my skin. After 3 weeks, my skin started getting dry even though I was careful to moisturize. I had to use a bandage over a spot that started to crack. I did not find rads difficult. Once rads were over, my skin healed quickly. Good luck during your treatment

  • Katiejane777
    Katiejane777 Member Posts: 109
    edited March 2018

    It’s natural to be nervous. I cried all through my planning appointment. Honestly once you get started it isn’t so bad. During treatment focus on staying very still. Let the technicians move you. Don’t try and help them. I shut my eyes and went to my happy place in my head. It helped me. I had to do breath holds but they are fine once you get the hang of it. My daughter assured me the machine has a bunch of safety features that make it cut out if you cough or whatever.

    I was a bit red, dimply and swollen before Rads so of course Rads made it much worse. I went pink all over after the first few treatments. My daughter is a Radiation Therapist and she said rads wouldn’t have caused a reaction so early. Lol.

    I moisturised before I started and heaps during! Like straight after Rads I’d be slathering cream on. I saw a physio to help with the swelling, I continued to go to her for most of Rads. My skin held up great and it just looked like I was sunburnt. My nipple had some minor burns but it wasn’t painful at all. I wore some soft crop top bras with wide bits under the arms. I wore them day and night.

    When my breast felt hot I put a cool microfibre cloth under my bra. I also had a cool pack that you put in the fridge and I put that on it too. I tried not to sleep on that side at night. I worked throughout Rads and it was fine. I found I got very tired towards the end and afterwards. We got a new puppy a week after Rads and then I started Tamoxifen so it could have been that contributing too.

    Honestly you will be fine.

  • gb2115
    gb2115 Member Posts: 1,894
    edited March 2018

    Katiejane,

    I was pink all over too after the first few treatments. I also had mild swelling. This all went away after the first week or so, then started coming back as the regular burn around week 3 (which is when they said it would start). Just wanted to throw that out there, in case anyone sees this thread and is wondering. They told me it was "impossible" to be from the radiation because it was too soon. I dunno, I don't normally have pink swelling skin anywhere else, but you know... :-)

  • Rozzie_1
    Rozzie_1 Member Posts: 4
    edited March 2018

    Hello ladies and thanks so much for the information. As you know the Radiation Oncologist advises you of these things but there is nothing like hearing "testimonials". I appreciate the encouragement and I'm sure I will be ok.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited March 2018

    I am starting tomorrow if everything lines up correctly.  The machine is new I was told, I did like the therapist, the doc not so much but he is fine so I am confident this will go smoothly.  Guess I'll know as they line me up if I will be doing breath holds, they said it will depend on the pictures and what the physicist plan shows, if there isn't much difference they will just mark me without.  I was referred to a cardiologist at my physical last year but since I didn't make it past the mammo  I haven't gotten there yet. I'm sorry to read some of the horror stories here, it almost made me not want to join this community.  Best wishes to you all.

  • GolferTO
    GolferTO Member Posts: 7
    edited March 2018

    Hi Rozzie. I hope you have checked the first few topics in the radiation forum where excellent advice is given, including the great description on “ burns” from the radiation onc. For greater understanding of what you will soon be undergoing, I suggest that you read through some of the prior monthly rad group reports. I started rads mid Jan. and found it very helpful to follow both the December and January groups. Please don’t be scared by some of the very negative reports you might read: hundreds of thousands of us go through rads with only minor SEs; sadly, a significant percentage are not so lucky. Hoping you will not have ba SEs.

  • macb04
    macb04 Member Posts: 1,433
    edited April 2018

    I hope you are ok, but I was not lucky at all, and suffered severe open, peeling burns, and had considerable Radiation Fibrosis, numbess and insane tightness for years after that only improved with around 100 Hyperbaric Oxygen Therapy Treatments, Pentoxifylline and Vitamin E daily. I wasn't warned about any of that and was not on these boards till the damage was done. I also have heart damage that causes Heart Arrhythmia which I worry may be what kills me off, ( That heart damage was despite doing the " Breath Hold "Technique) Ask how many of their patients get each of these awful, permanent damages from radiation. The rad oncologist I had was really evasive when I asked for percentages of her patients effected by these issues. In retrospect I should never have trusted her, but I was pushed along by everyone that seattle cancer care alliance (scca) was trustworthy. They were not. So ask now and you will have less regret.

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