Tissue Expander removed due to bad infection.

Amelii
Amelii Member Posts: 5
edited April 2018 in Breast Reconstruction

Hi everyone,

Was wondering if anyone is/ever had my experience. PS put expanders over muscle during my surgery on Dec 7th, 2016. Approximately 2 weeks ago I had to have my right (tumor/node removal) expander removed due to a bad psuedomonas infection. PS left a 1 inch opening in incision for drainage but I had little to none. Went back to PS 4 days later he, he said I healed too fast! Numbed area and reopened incision, pressed on breast, area, out poured serous fluid, said i have a pocket in there. He left area open again but still I had no barely no drainage. Now the same area they were concerned with is looking fuller again, it's not soft, more firm. Worried this is going to be an ongoing procedure now of needle & drainage. If so I'm am never going to heal up to restart this process... it is so sore! Still having such discomfort with left expander. Im unable to wear even the most comfortable bras. So uneven, so self concious.... just want to put some pads in a bra to look even! I was only a B, intend to keep them that size. Wondering if body will absorb or is this another big risk of infection. Only have 2 more days of Cipro left. Back to PS on Jan 30th, but not sure I should wait. I hate this all so much. Dream of my old life sometimes, try to pull it back quickly, but its so difficult... didn't know there were so many nasty risks to this reconstuction until I started reading.Blessings to all!

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2017

    Amelii, welcome to Breastcancer.org. Sorry you're here and having a rough time with reconstruction, but glad you've found us and decided to post. The boards are sometimes slow during the weekend, but we're sure somebody will chime in soon with similar experiences and support.

    Best wishes. Please come back to let us know how you're doing.

    The Mods

  • Misty1
    Misty1 Member Posts: 272
    edited January 2017

    I don't have experience going through exactly what you are going through, but I hope I can give you some hope. I had proph mast on right side in May with TE over the muscle. I got infection in July. I tried fighting it in hosp with strong antib and then made eye at home. I could never fully clear the infection, so m PS took it out. Turns out I had serration bacteria, so Inf dis doc put me on Cipro. I finally cleared the infection and the PS put the TE back in over the muscle on 11/11. I am almost done my fills and things are going so much better this time. My Ind dis doc said that this past infection would probably not strike again. Knock on wood, so far so good. I'm hoping for exchange in early spring. In august, I felt defeated and hated the way I looked on that side, but both docs gave me hope to try again.

    I hope I am giving you a bright light at the end of the tunnel! My friend gave me a small turtle with a saying... never ever ever give up. I look at it and say it nightly!

    Hang in there!

  • sixtysweeper63
    sixtysweeper63 Member Posts: 22
    edited January 2017

    haven't posted in long time, but for some reason went to check article that was recommended to me and checked posts about TE removal due to infection...and unfortunately I see you had just posted something; well I am on my 3rd time with TE placement on my lft side due to pseudomonas infections. after waiting one yr since my last 9/2015 I had TE put back in 10/16... when about 3 wks later developed another pseudomonas infection. PS tried an uncanny approach in that he washed out left side with betadine solution as I still had drains in.. unlike u I was the drain queen and had drains for about 4 wks each time! using my drain tube I went for 2 or 3 days to have betadine inserted thru tube...well after scheduled and prepped for surgery to have them out , PS said I was doing so much better that he decided to wait to remove TE again... this was 11/17 and am still doing ok after my last fill...with hopes that things will still be ok for a march or april date of final implant...so I am wishing good luck and health to you and just wanted to share my uncanny approach to this lastest infection...god bless and good luck!

  • tangandchris
    tangandchris Member Posts: 1,855
    edited January 2017

    I dealt with the same infection and the only thing that corrected this problem was removal of TE and IV antibiotics. The big thing I think is making sure you are taking the correct type of antibiotic. I was seeing an infectious disease doctor during that time to treat the infection as well. I have yet to go back and finish my recon and I'm not sure that I will, but that is just me. The process was a nightmare and I never knew that could happen. Make sure you are taking the correct meds though, because it will not go away. It was so many for me, it took forever. I was hospitalized for it a couple of times as well.

    ((good luck))

  • Amelii
    Amelii Member Posts: 5
    edited January 2017

    Thank you so much for your story of hope! So glad to hear you're on the right path now.

  • Amelii
    Amelii Member Posts: 5
    edited January 2017

    Thank you to all who responded and shared your personal experience. It really helps to know others are out there who understand this very soul wounding journey and take time to offer their hope, advice, and words of wisdom!

    Blessings and healing to you all!

  • myToyStory2
    myToyStory2 Member Posts: 162
    edited February 2017

    Another pseudomonas drain queen here. Nearly 11 weeks with drains post BMX, 2 follow-up surgeries, lost my right TE, 13 days hospitalized last June. And even more insulting, it was on my non-cancer side. Horribly rotten experience to go through, but I'm standing here on the other side now with implants that have not given me any issues (so far). It IS possible to get through it! Best wishes!

  • swj4115
    swj4115 Member Posts: 2
    edited July 2017

    ugh... another pseudomonas drain queen here too.. after 5 weeks post bmx I developed pseudomonas in my non cancer side. Boob got giant and deep red. Got TE out mid march, 50 days of IV antibiotics and then the TE put back in June 15. Prophylactic iv antibiotics for a week and 4 days after stopping, I spiked a 102.5 fever and was back in the hospital. White count went from 20 to 12 to 7 in just two days, so they let me go home with another 8 weeks of IV antibiotics. I finally got the last drain out last monday, and by wednesday, part of my breast was turning red. Now they say I have cellulitis and fluid around my expander, which is most likely still the infection.

    On the suggestion of someone here, I am now doing high dose vitamin c infusions, and my PS has agreed to do a betadine flush if I get another drain, which I most likely will if the interventional radiologist drains the fluid.

    My ID and PS have covertly mentioned that I may never be able to have an implant on that side, so I am VERY happy to see that there are some people who have had this nasty bug and got to the other side of it. I hope I can add to the ranks.


    Stef

  • Houston2016
    Houston2016 Member Posts: 317
    edited August 2017

    Hello Everyone, I don't have infection with TE. I had it placed since UMX (11/16) and had it filled 3-4 times. I initially planned to have Diep Flap but later changed my mind and just stay flat. My question is how long is the surgery to remove the TE, do I still need the drain tube? Thanks.

  • Che-Angelina65
    Che-Angelina65 Member Posts: 2
    edited August 2017

    Hi

    I had a double mastectomy in January of this year, in March my left TIssue expander got an infection and had to be removed. Was getting ready to go back to plastic surgeon to discuss date to put another one back in and the right one got an infection out of no where had to have emergency surgery to remove it 2weeks ago. So now I have neitherand it's got me so lost, depressed I just want to sleep all the time get anxiety at the thought of leaving my home. I miss my old self , I know I did the right thing I had the Chek C my mom, younger sister, moms sister and cousins had BC so I always felt I was doomed to get it. I am very depressed to the point I couldn't work anymore. Now have to wait till sometime next year to start over, I have had three surgeries in 7 months. My body is depleted. Lost in how to dress don't want to go anywhere or see anyone. I know I am very blessed to not have cancer but I feel as though I'm losing myself during this process. Anyone feel this way ? And if so what steps did you take

  • UKlass
    UKlass Member Posts: 1
    edited August 2017

    Hugs. I hear your pain. This is such a distressing thing to have to go through. I had skin saving bilateral mastectomy at the beginning of August with TE placement. Everything was going well but two weeks after initial surgery my PS noticed I had some skin necrosis on my right breast and decided to open me up, remove dead skin and stitch me back up again (with drain back in again of course). He also reduced some of the pressure in the TE. After this second round of surgery my immune system was so low I picked up a dreadful cough and cold and was coughing pretty hard. One week passed and I started bleeding in the middle of the night from my right breast. I was scared, didn't sleep a wink , thought my breast would burst right open. I saw PS the next day thinking he could just put a few more stitches in for me but he broke the news he wanted me to go in for surgery straight away to remove my TE and close me up. Effectively, the entire 4 weeks have been a waste of time since I will have to start all over again on my right side. I lost it at the PS Office. broke down in tears. Like you, I'm physically and emotionally drained, have.been housebound for 4 weeks pretty much, my husband is doing his best to keep the kids and me happy and cared for but this past two weeks have been like some surreal nightmare. Like you, I do t want to go out or be seen and I'm usually such a social person. I've been trying to put to the front of my mind that this is an insignificant development. Heck I'm cancer free and that's what matters. But you know, that thing about feeling whole is SO important to those of us who chose to go with immediate reconstruction. I have also lost some of my faith in my PS which is a dreadful thing to say but he never mentioned this might happen (although it may have been in the paperwork I signed somewhere). I have found some strength in online shopping 🤑 And watching endless movies on Netflix. I try and read positive reviews from people who have been through this and come out the other side. Also, a real help is humor and while I totally lack any of my own right now, I've been watching Saturday night live reruns which make me giggle


  • Moderators
    Moderators Member Posts: 25,912
    edited August 2017

    UKlass-

    We want to welcome you to BCO! We're so sorry to hear of the setbacks you've had. We hope you're able to move forward without any more complications!

    The Mods

  • Che-Angelina65
    Che-Angelina65 Member Posts: 2
    edited October 2017

    Hi


    I have been desperate to find some good reviews but only a few. Like I said I chose to do this toprevent getting breast cancer because it runs all through my immediate family. My home flooded in August, lost my job selling life insurance because everyone mostly flooded as well plus my anxiety & panic attacks. So I resigned. Had surgery in January drains stayed in for at least 4 weeks or so 4 of them. It was so painful. End of March first of April my left TE got blood red swollen fever so had to have emergency surgery and take it out. Right one was doing fine until one week in July we were going to talk about putting the left back in. Out of no where same thing happened to the right side. No bacteria grew just infection. Another emergency surgery. When I lost that one I got severely depressed, went to councilling developed insomnia, PTSD, Agoraphobia I didn’t leave my house not even to go outside for over a month. A few weeks ago something triggered my PTSD and I OD.d on extra meds I had laying around. I wrote a suicide not I didn’t want to live. No I go to St. Ann’s outpatient therapy 5 days a week from 9-12.


    My Dr is Freel and I’m beginning to wonder if I should get another opinion on this reconstruction. I’m angry,hurt,no self esteem or self confidence. I couldn’t even look for another job I’m a mess. I wasn’t or don’t remember being told this could happen either. I have lost all interest in any activity I just want to be alone . This may go on for a whole mother year. Sorry I have nothing positive to offer. The worst part also is the financial burden right after the flood. Our bills weren’t build on one income. Sorry, I’m probably not the best to communicate with . I wish you all the best but I’m just at a loss. Prayers to you🙏🏻




  • Jandrcamerer
    Jandrcamerer Member Posts: 2
    edited November 2017

    I am now in the same boat as several trying to save the TE on my non cancer breast. I had dead tissue along the incision that opened and had to be debrided and closed. Now back on antibiotics again hoping this heals. I still have so much pain in my sternum and right breast area just wondering if that is normal? Was planning on returning to work until this happened and ps afraid to release me. Wanting normal life again

  • ItsStillMe
    ItsStillMe Member Posts: 61
    edited March 2018

    Hello everyone, I am in tears reading this. I have already been hospitalized for an infection and have been sent home with antibiotics that don’t seem to be working. I can’t believe it has come to to this. I am so scared and sad. How are you all doing now? Praying you all have good news to share

  • Gemini_girl
    Gemini_girl Member Posts: 32
    edited March 2018

    quick question please - how do you know when the TEs are infected? My ps keeps saying mine are fine, but they are very warm to the touch. I had a fever last week of 100.9 and was put on one abx that I had a very bad reaction to and am now on doxycycline. My ps took the last two drains out at three weeks, even though the one on the right was still producing 40-50 mLs every 6 hours. My right side just does not feel right and no one will listen

  • ItsStillMe
    ItsStillMe Member Posts: 61
    edited March 2018

    Gemini girl- My breast became very painful and swollen. I knew something was wrong. That night I woke up feeling nauseous and passed out. The next morning my breast became red and I developed a low grade fever, 99.9 degrees which fluctuated back and forth to normal. I called my PS who sent me to the emergency room for ultrasound and antibiotics. My WBC was so high they thought it was sepsis. I was in the hospital for a week on Vancomycin which did not work, then maxipime which did not work. After an ultrasound guided aspiration the culture came back as Enterococci bacteria and I was sent home with amoxicillin. Praying this works but it has been 4 days with only slight improvement.

  • Jadalulu
    Jadalulu Member Posts: 57
    edited March 2018

    My BMX with immediate TE placement was on 1/4/18. I have had zero problems up to now. About 3 weeks ago my left breast started to feel hard on the outer portion of the expander. I mentioned this to my PS and he said it was typical but should not cause a problem. I had my last fill 2 weeks ago, now just waiting until my exchange on 4/19. I have had a low grade fever since last Tuesday, around 99.5-99.8, at first with no other symptoms. I called my PS and he prescribed me clindamycin and I began that on Thursday. Friday night my left breast began to hurt, but no redness, I took tylenol and the pain went away. Yesterday my right breast began to feel sore, and again I took tylenol which relieved the pain. Then I noticed some red blotchiness of my skin on my neck yesterday, which has been itchy. I am still very tired, and just don't feel well. I feel that I should be feeling better by now, just worried that there is an underlying infection just waiting to progress. What are your thoughts? It seems weird that there is no redness on my breasts.

  • ItsStillMe
    ItsStillMe Member Posts: 61
    edited March 2018

    Jadalulu my breast wasn’t red at first either. But by the time I got to the ER the redness had spread past my breast to my torso.

  • Jadalulu
    Jadalulu Member Posts: 57
    edited March 2018

    itsstillme yikes!! My temp is low grade, feeling overall yucky but I don't think I need a trip to the ER yet. My breasts are just uncomfortable at this point. Did you start on an antibiotic at home first before going to the ER?

  • ItsStillMe
    ItsStillMe Member Posts: 61
    edited March 2018

    jadalulu the infection is now contained to just my breast but it hasn’t resolved. I did not start antibiotics at homefirst. It all happened so fast. I went from not feeling right one night to being in the ER the next.

  • Jadalulu
    Jadalulu Member Posts: 57
    edited March 2018

    itsstillme thanks for the info, I hope you get to feeling better soon!

  • Jt3
    Jt3 Member Posts: 122
    edited March 2018

    I am glad I found this section of the boards. I found some redness around my incisions and some splotches on 3/9 and had a 99-100 temperature, called the doc, and took antiobiotics until 3/16. It looks better each day and each day I pray and look at them and I don't have much fluid left that is uncomfortable but still some. The less I move the better. The right side is pretty annoying and still dealing with fluid and my body disposing of it. The right side is also my dominant side. The left side feels great. i have a six year old and am a single mom so I don't get to rest much or post and read as often as I would like to. I am still showering backwards and not showering unless I need too. It feels good, but I am still afraid of infection.

  • SLN22
    SLN22 Member Posts: 6
    edited April 2018

    I had my mastectomy with TE insertion on 2/6, three weeks later my breast began swelling and turning red, along with low grade fever. I ended up with a staph infection under/around both expanders. According to my surgeons, this infection came from exposure during the surgery. This infection resulted in another surgery to remove both expanders, a 6 day hospital stay, and 10 days of IV antibiotics that had to be administered at home. At 33 years old with 2 children this is something I NEVER want to go through again. I am now facing the decision of if I want to have the expanders put back in (of course I will have to wait at least three months) but I have so much hesitation due to the results of my initial surgery. How do you decide if it's worth it? My plastic surgeon assures me that this time would be less of a risk for infection due to the surgery time being shorter (original surgery was 8 hours due to them doing the mastectomy first) Has anyone gone through this and had a successful return the second time around? I am very nervous and would love some feedback.

  • Houston2016
    Houston2016 Member Posts: 317
    edited April 2018

    hello everyone:

    I had a UMX on the left breast back in 11/2016 and that's when I had the TE put in, thinking I will do the DIEP flap, but so far have not nudged. I may have to remove the TE if they cause infection later. So far it's OK. How long does it take for the TE to cause any infection. Thanks.


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