Aromatase Inhibitors unlisted side effects

Julia, that was a really good post. I have been thinking about it since you posted it. I found it when looking, yet again, for suggestions for vaginal atrophy and urogenital SE's. I have issues with UTIs, vaginal dryness and just things not right down there. I've been thinking about putting together a list of links to threads on this site that go into these issues. The info is all over the place, as you mentioned.

Just to answer your question, doctors will NEVER tell you about this or give you any suggestions to alleviate it. Yes, they will wait until it is too late. BUT, and this is a big but, I stopped taking Tamoxifen after four months (I was stage IIb) and I am stage IV now. That may have happened anyway. I had spots on my lungs at my original dx. They became mets (my opinion). I also only did two of the four chemo cycles I was supposed to do. My treatment now includes Letrozole. Issues not solved and keep getting worse. I keep looking for answers but I'm starting to think there aren't any. Real solutions involve estrogen and I am afraid of that. But when do I just say let's give it a try and see what happens. Can't they check the estrogen in your blood to see if topical estrogen is a problem? Sorry. I just have questions. No answers. Again, it seems to me, we are faced with making decisions without the information to make them. Maybe you have a good gyn or other doctors to help you. I don't.

Add lichens sclerosus which causes intense genital itching and scarring if left untreated. Gyn said cause was estrogen depletion thanks to AI's. Can be treated with topical agents but not cured. Just another bonus from AI's.