My ct scan showed progression

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mimistewart
mimistewart Member Posts: 31
edited March 2018 in Stage IV/Metastatic Breast Cancer ONLY

first time in over a year my scan showed progression......now what? Go to doctor next Thursday.......it's going to be a long week

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  • blainejennifer
    blainejennifer Member Posts: 1,848
    edited March 2018

    Progression depression is real. If you have need of any anti-anxiety medications, ask your doctor for them. Personally, I couldn't make it through the waiting periods without a little help from Dr. Ativan.

    When you figure out what you are going to do, you are going to feel more at peace. The first progression darn near killed me, mentally. But, they are part of this process, short of a miracle. I wish you the best of luck through this trying time.

    Jennifer

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  • mimistewart
    mimistewart Member Posts: 31
    edited March 2018

    thanks so much.....I knew something was up before scans but,I wasn't ready for the results.....maryan

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  • Husband11
    Husband11 Member Posts: 2,264
    edited March 2018

    My wife and I have talked about this situation a lot. A number of times we have been hit with bad news from an Onc and they suggest a new line of treatment and give us very little time to think about it. My wife now insists that she will not simply take anything they recommend without her researching it on her own first. Some times the Doctors have no clue as to what side effects these meds cause, yet they are well discussed among patients on the internet. So, if you can, ask about various first, second and third choice suggestions, what they see as the strengths of each, and how closely the Onc ranks one vs the other for success. Then, go home and read and ask questions. Its you that has to live with it, not them.

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  • mimistewart
    mimistewart Member Posts: 31
    edited March 2018

    thanks my onc is really very good with meds he prescribes .....and I'm a natural researcher......I appreciate your advice........

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  • pajim
    pajim Member Posts: 2,785
    edited March 2018

    Aww Mimi, I'm sorry. What blainejennifer said. This this your first progression? I felt so bad the first time. It had been three years and somehow I thought I was never going to progress. At least my heart thought so. My brain knew better but it doesn't really rule.

    Cry some, scream a little, have some wine and/or ice cream. Or even better go for a long walk.

    There are dozens and dozens of treatments. Try the next one. With luck it will work as long or longer than the first one.

    I agree with husband11. Ask your doc for a list of options and his reasoning for the one he recommends. Then take a look at each one and decide. The good news is that list of options will likely contain the treatment following the one you choose.

    My onc always has several ideas. And one of the options is no treatment. I think he means it as a bit of a joke but it's always on the list. Last progression (my second), I added a few things to his list (including a clinical trial he didn't know about) and we discussed the pros and cons of those.

    Do you have Bluebird's Guide? She has all possible ideas listed. You should also search for clinical trials in your area -- those are other options.

    Feel better soon!

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  • mimistewart
    mimistewart Member Posts: 31
    edited March 2018

    Thank you so much for you calming reassuring words......I definitely needed them ! I guess once my meds worked so well for over a year I got comfortable .I have done my homework and I'm aware of many other therapies,but until I talk to my onc,which is Thursday I will continue to research and pray for the right meds.Thank you again,and I will look into bluebirds lis

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited March 2018

    Mimi Im sending prayers and hugs.

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  • Piggy99
    Piggy99 Member Posts: 229
    edited March 2018

    Mimi, rooting for a new treatment that will give you much longer than one year without progression.

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  • mimistewart
    mimistewart Member Posts: 31
    edited March 2018

    thank you

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  • mimistewart
    mimistewart Member Posts: 31
    edited March 2018

    so my new meds will be Faslodex........my onc seems to think its the next step ,of many choices.........I have confidence in him,but I also need input from you guys....and go

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  • MJHJAN1014
    MJHJAN1014 Member Posts: 708
    edited March 2018

    Mimi, Falsodex is easily tolerated. I was put on it after Ibrance/Letrozole failed. Don't see what treatments you have had, but this is often the second line hormonal therapy used for ER/PR+ MBC. It is a selective estrogen receptor down regulator. (SERD).

    May the force be with you. MJH

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  • mimistewart
    mimistewart Member Posts: 31
    edited March 2018

    Thanks so much MJH your input is very helpful to me. I was diagnosed Dec2017. MBC de novo........so the only meds I've had are Ibrance and letrozole. I became very comfortable and thought this is good. I feel very good and want to keep it that way.New meds just was like a click of your fingers and you are back at the beginning....ugh

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  • MJHJAN1014
    MJHJAN1014 Member Posts: 708
    edited March 2018

    Mimi-go to the Falsodex girls thread for great info and support. Best, MJH

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