Moisturizing/treating radiation burns - what do you use?

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kaywrite
kaywrite Member Posts: 219

http://www.breastcancer.org/treatment/radiation/sk... has some excellent suggestions for breast care during and after radiation.

My chief concern is what product works best for burned skin around the breasts and chest. BC mentions ointments such as A&D, Eucerin, Aquaphor, Biafene, or Radiacare.

I have also read Miaderm, Biafine (prescription) Calendula, aloe, etc. A friend of mine used a prescription that came in a blue bottle but cannot rmember the name of it!!! She said it was like a little miracle for reducing burn pain. I'm on the hunt

I have also seen prescription for anti-itch creams/hydrocortisone.

What has worked for you?

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Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited March 2018

    Hi there Kaywrite. Apologies if I've given this advice to you already on another thread, but my RO recommended calendula cream starting a week in advance, continuing three times daily through treatments, then daily after treatment ends (if a rash is present) until it clears up. That worked great for me. It's good to have non-prescription hydrocortisone cream around in case your skin gets itchy, and if your skin "breaks" then Aquaphor seems to be helpful for many women. Miaderm has calendula in it, plus aloe, just as an fyi.

    Wishing you all the best - I know you have been worried about less-than-ideal surgical margins, but radiation does a great job of cleaning up any microscopic odds and ends. And if you have the shorter course of radiation, side effects may be minimal.

    Posting Johns Hopkins instructions below since you seem like a planner. :)

    image

  • kaywrite
    kaywrite Member Posts: 219
    edited March 2018

    Thank you, Georgia1 - I don't think I asked previously, but I see so many people asking, so thanks for posting that here for all to see. Emory gave me something similar, but I didn't recognize any of the suggested products except Aquaphor. Interested in hearing everyone's experiences.

    And thank you for the reassurances re the margins, they fall on grateful ears

  • Meg101
    Meg101 Member Posts: 175
    edited March 2018

    Hi Kaywrite. Thank you for starting this thread. I spent hours reading through posts on the "radiation" threads to find what lotions, ointments, and creams worked best for those who recently finished or are currently going through radiation treatment. Hopefully this thread will have all the info in one place.

    I started radiation 2 days ago so it's too early for me to be experiencing any skin issues but I'm that will likely change soon. I am on the shorter rads schedule of 20 sessions total (15 regular sessions, 5 boosts). My RO told me not use anything on my skin until redness starts. At that point, his office will provide what is needed. However, he did say it's OK to use "pure" Aloe Vera gel with no alcohols, and/or Aquaphor if needed. The radiation tech confirmed many patients have had success with calendula cream. The tech also said there are patients who have not used anything and had no problems. That was good to hear.

    In one of the previous threads I've followed, a few women had cracking skin on their nipple area. The only thing that worked for them even after trying a prescription from the RO was a fresh cabbage leaf placed directly over the nipple. Apparently cabbage leafs are also used by nursing mothers. I don't recall if the cabbage leaf was cooked or frozen so this needs further investigation.

    Thanks again for starting this thread.

    Meg

  • Denise-G
    Denise-G Member Posts: 1,777
    edited March 2018

    Calendula worked the best for me in the early stages almost until the end. I also used Miaderm. None of the other stuff really worked. I did need some cortisone for anti-itch. After rads were over, then my skin was badly burned, peeling and Silvadene (a script) worked miracles for me. GOOD LUCK!

  • Veeder14
    Veeder14 Member Posts: 880
    edited March 2018

    I'm wondering how Aquaphor is any different than plain vaseline? I've just been using coconut oil so far.

  • LeesaD
    LeesaD Member Posts: 383
    edited March 2018
    I had 25 rads treatments and immediately after each treatment in dressing room I used Lubriderm advanced formula and at night I put on the Aquaphor. The Aquaphor is messy so I bought cheap tshirts to sleep in as it greasy. My skin held up great and I'm fair and my doctor said my overall skin irritation from the rads was very mild. It was just a little pink by last day of treatment. Best of Luck!
  • Ingerp
    Ingerp Member Posts: 2,624
    edited March 2018

    Just popping in to say I’m not sure there’s a magic bullet. I used a variety of things—toward the end I’d just grab whatever was nearest and slather it on a couple of times a day. Yes I got a burn but everything healed fine and it was soon out of my brain space. Listen to all of the suggestions but I think it’s more important to moisturize regularly than what you do that with. You’ll get through it and come out the other side just fine

  • Veeder14
    Veeder14 Member Posts: 880
    edited March 2018

    Is calendula cream a baby moisturizer? That's the only kind I see online.

  • Lewhy
    Lewhy Member Posts: 54
    edited March 2018

    Hi, I used Lubriderm every morning and again right after treatment. I used Aquaphor every night. I also used a humidifier and kept the house from being dry. I really think that helped and I did really well. Good luck

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited March 2018

    Have completed 5 of 24 planned treatments. My center suggests aquaphor, emu oil, or aloe Vera gel, starting day one at least 3x a day. Saw a different RO this week who emphasized to wash off whatever is being used before a treatment to avoid it being like using baby oil while laying out in the sun--leading to a sunburn instead of a tan. She also recommended no bra at home and only cotton bras when a bra is a must. I'm using aquaphor most of the time since I have fair skin and already have one sensitive spot--thank goodness for the weekend break!

  • Nancy116
    Nancy116 Member Posts: 53
    edited March 2018

    Hi! I will be starting rads very soon so this thread is helpful. I'm myself am going to try using my aloe plant and coconut oil. I've heard good things about these two things. I will let everyone know if they work or not. Best wishes to everyone.

  • kaywrite
    kaywrite Member Posts: 219
    edited March 2018

    yeah! Thank you everyone for contributing. It will be MUCH easier to find these recommendations now.

    Veeder, I was told CVS or Whole Foods for calendula cream. I found it here, but see several other options: https://www.cvs.com/shop/boiron-calendula-cream-2-...

    I'll look for it at my CVS.

  • mjschaef129
    mjschaef129 Member Posts: 2
    edited March 2018

    Hello,

    I used a variety of things, ALL okayed by my physician. At the end he told me to use 3 at a time or what ever worked for me.

    I started out with Calendula Cream but, began getting burned the first week.

    Added Aquaphor on top of it. Had a good deal of pain with the blisters. Lidocaine cream went on for the pain first.

    Silvadene for the burns then the others.

    Added Palmer's Cocoa Butter Formula.

    Bought a Hemp Oil combination

    then was able to "acquire" some unrefined Marijuana oil. Not for ingestion.

    I mixed and matched,it all helped to some extent.

  • Veeder14
    Veeder14 Member Posts: 880
    edited March 2018

    Which stores do would I find Calendula cream? I just checked Target and Raley's and neither store has it. I can't do an online order because I'm staying at a hotel out of town and won't be home to get it.

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited March 2018

    Hi Veeder. See if there's a natural store or compounding pharmacy near you, or a Whole Foods. My hospital pharmacy sold it too so maybe that's an option. Hope you are hanging in there! I do remember you had to travel for treatments.

  • Tewks
    Tewks Member Posts: 105
    edited March 2018

    Hi everyone, I was looking for a thread on radiation burns and found you all...what a lucky day for me! I've completed 24 of 27 Proton therapy treatments and have been using just about all the creams you've mentioned. I have Aquaphor, pure aloe gel(from Shoprite), Silvadene for burns and one other prescription that I can't remember the name of. At 5:30 this morning the burn and sting was so unreal, I couldn't go back to sleep, so resorted to 3 200mg of Motrin, and that relieved the pain enough to doze off again. I'll echo...thank goodness for the weekend break.

    I have aquestion: does the burn turn to a tan? And does it always go away after treatment? Exactly half my chest is my usual skin color and the other half looks--and feels--fried to a crisp.

    I've found over the last week or so that keeping the area soft with Aquaphor keeps it from pulling. Less pulling keeps the stinging down, and it's worse when my skin is drier.

    Hang in there everyone...it may be a long and winding road but there is definitely light at the end of this tunnel!

  • Veeder14
    Veeder14 Member Posts: 880
    edited March 2018

    Thanks Georgia1,

    I checked with Whole Foods in my town and they have some, I'm heading over there. The compounding pharmacy near the hospital where I get my other medication is ordering me miaderm. I'm doing ok but this back and forth travel, hotel stay, etc., is tiring. Thanks for thinking about me.

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2018

    Beaverntx and mjschaef129, welcome, and thanks for sharing. Great tips here, from All!

  • Sekerim
    Sekerim Member Posts: 19
    edited March 2018

    Chiming in with my experience since it's so recent for me. I just had my radiation simulation on Friday and will start April 4th (after a vacation). They gave me Miaderm and a non-aluminum deodorant at my appointment. They said to start the Miaderm now and use it daily. Once radiation starts I should only use it after treatment unless I get up super early (4-5 hours before treatment). They recommended I wear soft cotton clothes and no underwire bras until I'm healed from any reaction I may have from radiation. I can use regular deodorant on my right side, but use what they gave me on the left. No other lotion, deodorant or shaving. They also recommended I do no baths, pools, etc that would cause my breast to be soaking in water and no scrubbing - pat don't rub after showering.

    I really appreciate that they gave me the products they recommended rather than have me find them on my own. I was told they'd give me as much as I needed. They'll also watch me closely and if I start to really burn or have a bad reaction they'd give me Silvadene as well. Now I just need to figure how I'm going to give my 46 year old 36D's the support they need without an underwire. I have some soft stretchy sports bra type things I picked up for after my lumpectomy, but they are not particularly supportive.



  • kaywrite
    kaywrite Member Posts: 219
    edited March 2018

    This is great stuff, thank you everyone for chiming in. So helpful

  • Egads007
    Egads007 Member Posts: 1,603
    edited March 2018
  • Georgia1
    Georgia1 Member Posts: 1,321
    edited March 2018

    Tewks - yep, for many of us there's a burn then a temporary tan then back to normal. My "tan" went away quickly but others took six months or more to regain normal skin tone.

    AndEgads007, I second the vodka!


  • klvans
    klvans Member Posts: 258
    edited March 2018

    Just curious does anyone not burn?

  • Egads007
    Egads007 Member Posts: 1,603
    edited March 2018

    Klvans...after 5 weeks of rads I only had dry skin....that is until the last two rads when my skin looked like a really bad sunburn. Sore, swollen and cracked. Until that point I had named my breast ‘the Teflon don’. No, not everyone burns...some are lucky enough to get off with a tan and dry skin

  • Nancy116
    Nancy116 Member Posts: 53
    edited March 2018

    HI everyone, I found a product called Solar Recover and it's a spray with all natural ingredients. I used it when I had a serve sun burn in Florida and it was amazing. I also read a review about it from another rad patient saying that even the doctor couldn't believe how well her skin was doing durning and after her treatments. I just had my first treatment today and sprayed it on when I got home. I'll let you know how it's working. Have a wonderful day!

    AndEgads007 I also like the vodka advice but I prefer wine myself

  • JosieF
    JosieF Member Posts: 8
    edited March 2018

    Hi everyone! I finished radiation the end of December. It was a great Christmas present to be done! I am fair skinned and have fairly sensitive skin as well. I also have very dry skin so I was already in the habit of moisturizing my entire body daily. My radiation oncology clinic gives their patients Medline REMEDY Phytoplex Nourishing Skin Cream to use. I had already used this product when I had a previous hospital stay. I liked it so well that I already had a big bottle at home that I ordered from Amazon. I was told to use it 3 times a day but not to apply anything to the treatment area within 3 hours prior to radiation. I used this and Aveeno fragrance free lotion (which my rad/onc approved of) frequently during my weeks of treatment. I had a shorter course of radiation, 20 sessions, but received the same amount of overall radiation as I would have with 30 sessions. I was told that if I was going to have any side effects or burns, that they would likely show up toward the end of my treatments or even in the couple of weeks after I had finished radiation. My rad/onc was 100% correct. After about 2 1/2 weeks of radiation, I started having some intense itching....mostly in my cleavage. My Dr. prescribed Mometasone Furoate cream which was fabulous and really helped to control the itch. I did end up with very pink skin that progressed to red. I then started using Calendula Cream that I really liked...it was very soothing. Mine was by California Baby and was found in the baby department of Walmart (Target carries is too). I also used Miaderm radiation relief which I ordered online....as mentioned before, it had both calendula and aloe in it. I had used some aloe during my treatment as well.....I was told to make sure it was 100% pure aloe and contained zero alcohol. I didn't find the aloe gel to give me much relief personally.....the lotions and creams seemed to give me more long term moisture and relief. I too slathered on the Aquaphor....but maybe not as frequently as I should have. At the end of my treatments I did end up with open raw areas. My doctor prescribed the Silvadene cream as well. It helped a lot! In the two weeks following my last radiation treatment, I did end up with a couple of other open areas and quite a bit of peeling skin. I was told not to wear a bra for at least two weeks if possible......since it was winter that was no problem....I just wore layers and sweaters. Though uncomfortable for a little bit, my skin did heal rather quickly. I had read lots of good things about Emu oil so once radiation was over, I purchased some of off Amazon and have really liked it. It absorbs quickly and isn't as greasy or as sticky as Vit E oil. I read that you need to make sure it is 100% pure and is AEA Cerified/ fully refined. I did not buy a crazy expensive bottle, I just bought one that met those requirements and had really good ratings. Now that it has been a few months, my skin is fine...though my treated breast has a bit of a suntan, especially on the side by my ribs and underneath. Pretty funny since it usually takes me a long time to tan and when I do it fades quickly.

    I apologize for the length of my response.....hopefully my experience can help some of you who are currently dealing with radiation and burns or who will be going through this in the near future.

    Best of luck to all of you warriors! You will get through this and be able to share your stories/advice as well. Stay strong!

  • Tewks
    Tewks Member Posts: 105
    edited March 2018

    Josie, wow! I wish I'd read your response yesterday. I'm so happy for you that you got through this more easily than I am. I have only 3 Proton treatments left and was doing okay until two days ago. In fact, I thought it was such a breeze. Since my Saturday post above, however, I've gone straight downhill. My skin is blistered, is peeling, and in General stings and burns like hell. I went to my appt last evening and was in such pain I didn't stay for the treatment. Plus, I cancelled tonight. I know the RO that I saw was quite annoyed that I cancelled out, but so be it. With only 3 treatments left I cannot see the harm in bailing out. I mean if the last three make the difference between surviving or not then things are a whole lot worse here than I've been led to believe.
    Pain was so unbearable during the night last night and this am that I called back and asked for pain meds. Unfortunately the prescription couldn't be phoned in so my dear sweet unbelievably caring and loving husband drove to pick it up, took it to the pharmacy and waited for it to be filled, all so I could get some relief today. Oxycodone. Ugh.
    My MO said she's fine if I bail out and my RO is pissed that I might quit...it's not too confusing!
    Thank goodness we're having another snowstorm so I'm getting another day to rest and think this over.
    Oxy, silvadene, Aquaphor and aloe gel...no vodka for me 😢
    On the plus side, I've discovered men's v-neck undershirts are really comfortable, the Hanes variety. 😊 And they're cheap too !!

  • JosieF
    JosieF Member Posts: 8
    edited March 2018

    Oh no! I am so sorry to hear that you are in so much pain. That really stinks! The blistering and raw areas that I had were no fun but the Silvadene cream helped a lot....I think I took Aleve for the pain and irritation. I was surprised that my blistered areas healed quicker than I expected them too. Good luck to you! I hope your pain subsides soon

  • Tewks
    Tewks Member Posts: 105
    edited March 2018

    Thanks Josie, I just talked to the RO's office and will go in for an evaluation this evening, even if I don't do the treatment. We're all concerned about infection so I might have that to deal with now. Ugh again. And the oxycodone didn't do much at all, what a shame after all that effort.

    On the plus side, no one should be concerned about me becoming addicted to oxycodone...it might go straight into the garbage.

    Next thing we'll look for is the calendula, even though the ROs office said they've not had great success with that or the lido can cream another friend offered up.

    Always something...

  • Nancy116
    Nancy116 Member Posts: 53
    edited March 2018

    Hi everyone. I don't know if anyone has seen it yet but I found Aquaphor in a spray. No rubbing which means less pain.

    Tewks, I'm so sorry to hear that you are going through so much pain. I hope they find something for you that helps. I wonder about Neosporin with the pain relief. I used it on a chemical burn I had and it worked wonders for the pain. Ask the doc about it. Hope you feel better soon.

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