My oncologist moved away. I need a brain MRI

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wallan
wallan Member Posts: 1,275

Hey everyone:

I had my 3 month check up today. My MO told me last time that she would schedule me with the nurse practitioner who would pass on any issues.

So, the nurse practitioner told me that my MO took another job in another city and that she was only on a temporary position from the get go. Huh! So now I have a new MO, but have not met her yet.

The nurse practitioner was concerned about my symptoms which I thought were SE of Arimidex. That is what my MO told me the last time. Headaches. Migraine grade. And now I have vertigo. Spinning, spinning rooms like when you spinned around as a child. It comes and goes. I had a CT scan last August for bad bad headaches. It was normal and it was decided that it was hormone related headaches from the Arimidex. But now, I have vertigo. And my eyes are blurry and I rub them alot. I t hink my glasses need cleaning often because of a vague sense of blurriness. But, I thought it it was from the Arimidex. Dry eyes. Maybe not, according to this nurse practitioner. She said she would report this to my new MO and call me if I need a brain MRI. Well, I did get a call, and yes, I am getting a brain MRI.

So I figure symptoms are still from the Arimidex. But I have to admit, the nurse practitioner did freak me out a little. She mentioned if symptoms continue, I may have to stop Arimidex. Try something else I guess. This is so different from the guidance I was getting from the last MO. She was saying, "Arimidex is the best, tamoxifen is not an option, there is nothing else for you." And now I am thinking my last MO was just not invested enough in my care because she knew she was "temporary" and was leaving. And it makes me question the rest of the treatment plan now.

On the up side, I could be glad I have a nurse practitioner who is thorough. You would think my new MO would introduce herself ...... ahhhh..

Thanks for letting me vent

wallan

Comments

  • Meow13
    Meow13 Member Posts: 4,859
    edited March 2018

    I think I need a brain MRI too, my oncologist is recommending it based on my father's brain aneurysm.

  • wallan
    wallan Member Posts: 1,275
    edited March 2018

    ahhh.. Hugs Meow...

    I hope you don't have an aneursym. But if you do, you can have surgery to correct, right?

    wallan

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited March 2018

    Wallan:

    Well, here's to better care with new MO (once you meet them) and the NP. I've actually gotten better care from NPs at times than with dr because they take more time with us. You're getting a kinda second opinion now, which is good.

    Also, I'm NO expert (just a BC soldier in training) but post-M women can totally take Tamox. In fact, I'm headed into M and will likely stay on Tamox due to osteoporosis. So -- you have options. And other AIs to try, too. Don't know what the heck your past MO meant about not taking Tamox. It may not be the best/best choice...but if you can't tolerate an AI.

    Praying all goes well and these are just SEs.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2018

    Wallan - DivineMrs.M posted this earlier today. Can’t hurt. Might help.

    Sorry you’re in onc limbo. 😩

    https://m.youtube.com/watch?feature=youtu.be&v=1VWyPgfMuvM



  • wallan
    wallan Member Posts: 1,275
    edited March 2018

    Thanks farmerlucy for the video.

    I am gonna try this.

    wallan

  • wallan
    wallan Member Posts: 1,275
    edited March 2018

    Thanks Eastcoast:

    I am getting a second opinion, arent' I? How cool is that!! No effort on my part.

    The NP was very thorough. More thorough than any doctor I have seen. So I hope this keeps up too.

    This is all a good thing, isn't it? Wow. Who would have thought having my MO leave, would end up with such good care in the end.

    I am not too nervous yet about the MRI and the possible results. I really do think its SE. Good to double check though.

    wallan

  • Meow13
    Meow13 Member Posts: 4,859
    edited March 2018

    wallen, I think it is side effects too. I am pretty nervous about what they may find. But my doctor says that they can fix things.

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