Do you ever feel normal

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Mamasha
Mamasha Member Posts: 104

dx idc 12/16. Had lumpectomy on 1/4

Likely 8mm no nodes, clear margins!!!!

Start radiation first of February. Tamoxifen too

I'm lucky caught early but scared and sad nonetheless.

When/if it does it get back to normal?

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Comments

  • Autumn121
    Autumn121 Member Posts: 29
    edited January 2017

    Mamasha,

    So sorry you find yourself on these message boards, but I wanted to let you know that things do get better!

    I had a lumpectomy in September of 2015, then had 16 rounds of chemo, and 33 rounds of radiation. Last physical treatment was last June 23, 2016!!!! I now take Tamoxifen daily, and see my oncologist regularly for check ups.

    I am doing GREAT!!!!! Finally feel great, and have been traveling, working, going out at every chance. I am making up for lost time.

    It was rough while doing it, but when you're done, it feels so good!!!

    Keep the faith, and keep fighting!!!!!!!

  • Autumn121
    Autumn121 Member Posts: 29
    edited January 2017

    One more thing---These message boards are a wealth of information! I learned so much about surgery, chemo, and radiation from these boards. If you do have chemo, I encourage you to join the chemo board for the month you begin, and also for the month before you begin. You will get lots of information and support.

    I wish you the best of luck!!!!

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited January 2017

    Mamasha, you will get to a point where you have a new normal. I doubt that anyone would say the they go back to the way they were before treatment. In many ways, I'm better than I was before. I now practice yoga (no more stiff muscles), I joined a rowing club for Breast cancer survivors, and I don't sweat the small stuff as much as I did before. But I do worry about recurrence, more than I should. Good luck with your treatments!

  • Kimm992
    Kimm992 Member Posts: 135
    edited January 2017

    Like others have said - you will find your "new normal" with time.

    I am 15 months out from my diagnosis and there are sometimes days I don't even think about cancer now.

    The fear of recurrence is always in the back of your mind (especially when you hear of someone who has progressed or passed away), but I find as the days pass that I think about it less. It is out of our control anyway...so may as well live and enjoy and don't waste time worrying about something you can't control.

  • IrishKatie55
    IrishKatie55 Member Posts: 33
    edited January 2017

    Mamasha, Hello. We are almost on the same schedule. Early on I am realizing there is still more to come on this menu, but am thinking there will be a 'new normal' for me no matter. These forums are supportive and full of answers. I have already absorbed so much advice and strength here. Thanks for your positive post Kimm992 and all.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2017

    Mamasha, you're still in early days. You still need time to heal. You're about to start radiation. Right now, everything probably feels very intense. I felt the same way last year. I've had a lot of complications this year which made recovery difficult. It has taken me a while to get back to near-normal and I don't think my previous-normal will ever come back. But, you know, I just have to keep putting one foot in front of the other and keep moving.

    It's very easy for me to get mired in all the "awful." I really have to make myself focus on other things. This fall, I began volunteering with an organization that helps single mothers get on their feet; many of these families have suffered domestic violence and left their homes with literally the clothes on their backs. We also help provide birthdays for their children. One of my jobs is making brightly colored fleece blankets for the kids. This work has absolutely changed my attitude and my life. I may have had cancer (HAD cancer!) but cancer doesn't have ME!

  • radgal
    radgal Member Posts: 100
    edited January 2017

    As others mentioned, I found a new normal.

    Cancer.

    Today I am a member of the Big C (cancer) club.

    Today I am a member of the Pink Ribbon (breast cancer) club.

    It really has changed my life in positive ways.

    That bucket list is on the front burner.

    I want to live.

    I am living.

    Being a proud, grateful member of the Big C Pink Ribbon club was the catalyst.

    It woke me up.

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2017

    I want my old normal back. Doing everything i can to get there.

  • Mamasha
    Mamasha Member Posts: 104
    edited January 2017

    I was at dinner with husband and 8 year old daughter. All of a sudden I got so sad out of no where. Guess I was remembering all our dinners out and before bc. I am going to ro consult Tuesday and maybe that got me sad.

  • Kimm992
    Kimm992 Member Posts: 135
    edited January 2017

    I have had those feelings many times Mamasha...especially in the beginning when I would see a picture from before my diagnosis. It made me miss the "simple" days when I didn't live with fear of recurrence and the thought of dying was SO far in the future I never even thought about it.

    I still feel that way sometimes...when I'm having a special moment with my kids and/or husband and I get a thought like, "I don't want to lose these moments".

    It happens less as the time goes on. You are going to be okay! Believe it.


  • Mamasha
    Mamasha Member Posts: 104
    edited January 2017

    Thanks everyone for the support! Kimm992 thank you so much for your last sentence! It means so much. WE are going to be ok:)

  • Sharonita
    Sharonita Member Posts: 1
    edited February 2017

    I have just gotten a diagnosis IDC stage 1 <1cm. We are setting up surgery for next week. Hoping for just radiation. The thing that is flooring me is how relaxed my family is taking this because it is stage 1. I feel almost guilty when I get upset. It's so hard to explain to my family that life has changed for me. They are like " you will be ok, the prognosis is so good." My husband is pushing the dr to see if we can fit a vacation in between surgery and radiation. Have any of you seen people react like this? Is it fear? How do I get them to understand that this is cancer, not the flu?

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2017

    Hi Sharonita-

    We want to welcome you to BCO, although we're sorry for the circumstances that have brought you here. People have many different reactions, even those who we love and care about and hope will be the most supportive. Just try to focus on processing this all for yourself, and when you feel ready, maybe try to talk to your family about this has changed your life. In the meantime, you have the support of this entire community behind you.

    The Mods

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited February 2017

    There is probably an element of fear in their behavior. They are doing what they feel they need to do to process it. Of course, it isn't so helpful to YOU. My adult kids were like this, too. They took the news in stride, maybe just a little TOO well. But really, I didn't expect them to be upset all the time or treat me like I was fragile. My tumor was early stage like yours. As my MO said to me, this year is gonna suck but you're not gonna die.

    Your DH is probably trying to establish a sense of normalcy for you both. Actually, I think a little vacation before you get started on rads is a very good idea. Once you start rads you wont be going much of anywhere except work and radiation for about 7 weeks. DH and I took a week in Savannah right before I started chemo because we needed to get away for a bit and I knew we wouldn't be traveling during that.

    Best of luck to you all as you and your family figure this out.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2017

    Physically, except for struggling with my weight and being careful about lymphedema, my “new normal” is pretty much like the “old normal.” I even took three trips to Europe in the year after diagnosis. But emotionally, I’m reminded about the fragility of life; and “YOLO” (you only live once) has become a mantra—positively manifesting itself to being open to new experiences and noticing & appreciating everything in greater detail, but negatively in eating for pleasure (nobody on their deathbed ever said “wish I’d only stuck to plain foods”). At least I’m not doing anything risky like ziplining, luging, bobsledding, heli-skiing, driving fast, eating blowfish, playing Russian roulette, crossing boulevards on foot in mid-block...

  • gently
    gently Member Posts: 28
    edited February 2017

    Mamasha, thanks so much for raising this question, and thank you everyone for your answers. I feel like every one of you. Even like Sharonita's family. My dx was caught so soon, and my doctors all seem so great, it's like I'm straddling the divide between "cancer, lifetime, take it seriously, zero guarantees, nothing ever the same" and "tiny tumor, modern medicine, blip on the screen, others have 'real' challenges." And I know it's all true.

    We will reach at least one, probably several, New Normals. We will not eat blowfish. We will appreciate what is beautiful in our lives. And we will be okay.

    And we have this place to come when nothing is okay, and when something is.

    Thank you again to everybody.

  • warriorinpink94
    warriorinpink94 Member Posts: 2
    edited March 2017

    I am new to the boards but feel like my life has changed forever. I had my next to last Herceptin infusion yesterday, so close to the end.

    I have those same kind of days. We are still in the healing stages. You are going to have good days and bad days (hopefully more good days). My advice would be to talk to your husband about it too. These boards are full of great advice and support, don't be afraid to chat on here as often as you need. Also find someone in your area who is a survivor to talk too. Survivors understand what you are going through and understand those moments when the "C" word creeps into life.

    Hopefully, like many others this will be a catalyst for your life to make everyday with your family count and to not sweat the small stuff.

    Believe it or not embracing your NEW normal can be a good thing.

    Good Luck in your future treatment!

  • Lindacim31
    Lindacim31 Member Posts: 15
    edited April 2017

    I too have so many days where one minute I'm ok and the next I feel like I'm falling apart. Had surgery in January . Seeing oncologist this week. Friends and family have been great support to me and reading posts here are helpful as well. Still the fear of the unknown has me petrified

  • jenco60
    jenco60 Member Posts: 29
    edited April 2017

    I was Her2 +, chemo and radiation done. I decided not to continue Herceptin or any after drugs. I am eating healthy, working out at the YMCA 3 days a week in the Live Strong Program and eating health. I take a lot of vitamins but NO chemicals.

    It has been 6 months since my last treatment, I have no hair and I still get sharp pains in my breast.

    I decided to live life and not let cancer live it for me. I want to be chemical free and healthy!!

    I had no lymph node or bone signs and all markers are clear after lumpectomy.


    Live life like tomorrow is your last day, tell those you love how grateful you are of them all the time. There are no guaranties, don't let cancer rule your world, take control!~

  • pupmom
    pupmom Member Posts: 5,068
    edited April 2017

    As others have said here, it just takes time. I lived in fear for almost 3 years after my diagnosis. Do the treatments your doctors recommend, and give yourself the gift of time. You will do just fine!

  • Vivianlu8
    Vivianlu8 Member Posts: 116
    edited April 2017

    Hi everybody i just had my lumpectomy yesterday i feel fine my diagnosis was IDC in the right breast 1.7 cm. Yesterday they removed 3 nodes. My receptors were ER + PR + and HER2 -. I have my appointment 18 of April to receive my results. I hope everything will be not too bad. Thanks for these groups of women that are taking the time to support us in this difficult journey. I really sent blessings to all of you and hope we can recover our back life to normal.

    God blees you!

  • gb2115
    gb2115 Member Posts: 1,894
    edited April 2017

    It's a new normal. I am 6 months out from dx and 5 months out from surgery, 2 months out from radiation. I have friends who keep asking if everything is back to normal, and am I "done" with treatment. Well, if you count tamoxifen "done" doesn't happen for awhile, but eyes tend to glaze over when you try to explain that. Life will never be the same as it was before. I expect the cancer shadow will always be there. But I feel there are ways I'm changed for the better, in that some of the material things I cared about before are not important anymore. And other ways not so better. Physically a lot has changed and that is hard.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited April 2017

    gb2115.. you took the words right out of my head! I feel the same way.

  • Mamasha
    Mamasha Member Posts: 104
    edited January 2018

    I created this thread a year ago. I want to thank all of you who took the time to respond in the early days when I was so scared. It helped me so much. Your reassurance that time will help made me feel better. I also want to say to anyone just diagnosed and wondering will you feel normal-YES you will. It’s a new normal andjust hang in thereI

  • hdcoker
    hdcoker Member Posts: 2
    edited February 2018

    I am new to the site and i have several friends that i can talk to but i want to hear from someone who doesnt say what they think i want to hear.

    I was diagnosed with IDC 3+ HER2+ on Sept 13, 2017. 9 days later had mastectomy on left side without meeting with oncologist... i wanted it out of my body. Started AC at end of October and finished at the end of December, with no issues or complications. I am now doing taxol along with herceptin & perjeta added every 3rd treatment. 5 treatments done & 7 more weeks to go but having issue after issue. Had a PET scan done mid January and tumors are gone.

    I feel like a mutilated freak... this is something new so i dont know if it is the chemo, the meds, or a combination. I do NOT like the "new" me... i have no hair... i am missing body parts... they are killing off my hormone system since my cancer is hormone driven. I started back to work at the end of January... 1) because i had used up my 12 weeks of FMLA and felt pressured to go back & 2) everyone said it would help me get back to "normal" but all i feel is tired and irritable. I know that a good cry would probably make a world of difference but I cant cry.

    PLEASE, someone tell me that this is normal and that it will go away as quickly as it came or give me some advise as to how to deal with these feelings.

    Thanks in advance!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited February 2018

    coker, I think it is very common for us to experience feelings of anger and depression after BC treatment. I felt like you--utterly mutilated and changed beyond believe. I gave my hair, my breasts, my uterus, and my ovaries to this scourge.Everything that makes me female, including my hormones. Hell, yeah, I'm angry! I didn't feel like crying, I felt like setting things on fire!

    It is also common for people to develop PTSD following treatment for a potentially life-threatening disease. My DH had it after open-heart surgery and I had it after my BMX went sideways. For me, it manifested in poor concentration, hyper-alertness, anger, and sleeplessness. I was wound tight as a two dollar watch and I couldn't figure out how to fix myself. My doctor recognized my symptoms immediately. She put me on a temporary course of Lexapro, which got my life righted pretty quickly.

    If you haven't talked to your doctor about this, you may want to start there. I find that my regular doctor is more responsive than my MO for this kind of thing.

  • hdcoker
    hdcoker Member Posts: 2
    edited February 2018

    Mustlovepoodles thank you! I am glad to know that what i am feeling is normal.

    My oncologist has me on effexor for the hot flashes & night sweats... which, for me, has been a nightmare. My oncologist wrote the prescription for 37.5 mg, the pharmacy filled for 150 mg & i took it for 2 weeks before i realized the mistake... i was have MAJOR hallucinations, tremors, not sleeping... they have since weaned me down to 37.5 mg but still having hallucinations & not sleeping. My primary care dr has given me xanax .25 mg for my anxiety (prescribed before my first treatment) and i take it when i need it.

    I think i have relaxed since getting the news that my tumors are gone... not in survival mode anymore and all the emotions that i had been surpressing because of being in survival mode came crashing in on me.

    I need to give my body, my mind, & my spirit time to grieve and heal... i am my own worst enemy.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited February 2018

    Yikes! 150mg! I had similar reactions to Effexor. My dreams were sooooo intense, so anxiety-provoking. I have chronic insomnia anyway, and that stuff just made everything so much worse. It got so I was afraid to go to sleep at night.

    Definitely let your doctor know the severity of your symptoms. There may be a different drug that will help with the hot flashes and night sweats, but not cause all the hallucinations and stuff.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited February 2018

    Simple answer for me : NO. And I so want to

  • msphil
    msphil Member Posts: 1,536
    edited March 2018

    yes sweetie u do slowly start feeling normal again I was diagnosed while making wedding plans for Our 2nd marriage when I found lump in shower I had my cry then decided to fight for my life and to be Positive that with my Faith n family support I would be thru. I am now a 23 going on 24yr Survivor Praise God. I do feel normal took little while. ms Phil. idc stage2 0\3nodes 3mo chemo Lmast then 3mo after then We got married Honeymoon later then rads 7wks 5 days then Tamoxifen 5yrs. God Bless Us All.


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