Evista for ALH?

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kimberly62
kimberly62 Member Posts: 20
edited March 2018 in High Risk for Breast Cancer

Hello everyone, I was diagnosed with ALH 2 1/2 years ago. I was taking Tamoxifen for 2 years and started having uterine thickening so my oncologist switched me to Exemestane as i was then in menopause. I have been on the Exemestane for 6 months but feel like the side effects (joint pain, trigger finger, hair thinning, having osteopenia) are just not worth it for me. I've done a lot of research on Evista and it looks like it could be the answer for me if I choose to continue hormonal therapy. I'm having a hard time finding a lot of people who go this route with ALH, and I know a lot of women choose to just have regular monitoring. What has your experience been with Evista? Thank you!

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2018

    I know there is somebody here who took it for a long time for ALH/LCIS. I wish I could take it because it sounds like it is well tolerated and doesn't cause bone loss. I had a prior PE so the MO refused to give it to me, even though I had no clotting disorder and my breast surgeon felt the only reason I had a PE was because I was very ill.

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  • kimberly62
    kimberly62 Member Posts: 20
    edited March 2018

    Melissa, thanks for your reply. I probably should have never starting taking Exemestane with my Osteopenia, but the Doctor assured me we could do something for the bone loss. Nope, no more, especially with the other side effects. I like the idea that the Evista doesn't cause bone loss.

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  • momoschki
    momoschki Member Posts: 682
    edited March 2018

    I have an ADH dx, not ALH,but have been taking Evista for for a little over 3 years now. No significant or intolerable side effects- hot flashes and insomnia, but then I had those before I started this drug. I'd be relieved to continue for a total of 10 years if that were the recommendation. I've got some mild osteopenia.

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  • kimberly62
    kimberly62 Member Posts: 20
    edited March 2018

    momoschki, thanks for chiming in. Glad to hear that you have not had significant side effects from this drug, hoping my oncologist will be on board with me trying it.

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