After four years they found something (LCIS)?

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mrsam1025
mrsam1025 Member Posts: 4
edited March 2018 in Just Diagnosed

My mother in law (in her 80s) was diagnosed with breast cancer approx. four years ago around six months before her daughter (my wife) was also diagnosed with breast cancer (she's in her 50s). Both had similar cancers and both were brca negative. The doctor said my mother in law's cancer was aggressive but they caught it early and gave her a good prognosis after surgery. Fast forward to this week and her latest visit to the doctor. He seems a little confused about the most recent biopsy results. The report's final diagnosis is Atrophic and fatty breast tissue with focal in situ lobular carcinoma (LCIS) and atypical lobular hyperplasia. Initially the doctor didn't seem concerned and said they would do a follow up in a few months. This was what he said during a call on Monday. He actually called us back today and said he thought about it and now he's more concerned. He wants her to go see the surgeon again. I did a lot of research a few years back because both had it at the same time. I learned more than I thought I would ever know about this terrible disease. However I never read anything about LCIS. During my research tonight I have not been able to find anything about a person being diagnosed with LCIS AFTER already being diagnosed with breast cancer. Is this an uncommon situation? Any suggestions on how I can learn more about this apparent rare occurrence? Thanks

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  • beach2beach
    beach2beach Member Posts: 996
    edited March 2018

    Hi,

    What did your mil have done in her case? Lumpectomy? Mastectomy?(both sides?) I would assume she had a lumpectomy and LCIS would be in situ so you would need to still have lobules. LCIS is not cancer, seen more as a type of hyperplasia if I remember correctly. There is a forum/thread on here about LCIS. in my own pathology in the same specimen I had ILC, LCIS and DCIS. So invasive and in situ. Perhaps he is just being cautious since she did have an aggressive cancer prior and he wants to have a second set of eyes review and give an opinion.

    I would also suggest the Johns Hopkins ask an expert site. There is a breast issue site with different forums. You can ask a question and get a response from an expert within a day or two. Even search within the site. Very helpful and informative just like this one.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2018

    My guess is the LCIS was there all along. It is a "marker" for being at higher risk of developing cancer, which has already happened. It isn't really seen on imaging and is usuallyan incidental finding on biopsy. It tends to be multifocal & bilateral. It isn't at all unusual to have an "alphabet soup" of stuff going on in our breasts.

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