Does this sound right?

Sorry for what you are going through. I just want to let you know that MD Anderson Cancer Center in Texas does a lot of research and treatment of IBC. If this is something that can be of interest to you, check it out. You can visit their website to see what they offer. They have a lot of helpful information about IBC that you may find useful. I hope all goes well for you. Meganin.

I am so sorry for your sister. I strongly suggest that she gets a second opinion. As Traveltext said, make sure she understands the treatment plan and the logic behind it. If her doctor doesn't think that chemo to quickly stop the spread is appropriate, make sure she understands why that is their recommendation. The scary thing about IBC is that there often isn't much time to waste.

IBC is very aggressive and can spread right before your eyes. I was Stage IV de novo with mets to liver and bones, it also spread to my other breast, broke through my skin. got into the brachial nerves and was about to break through my chest wall...all within days and while I was in the hospital. One day my bone scan was clear and two days later a PET scan showed more mets than they could count in my bones. My oncologist said my only hope was to stop it from spreading so quickly or I would be dead within weeks (I didn't even have a port put in until I was sure that I would make it past 60 days), and I started on chemo with Taxol immediately. Thankfully I had a wonderful response to Taxol that surprised everyone. Not only did it stop the spread, it has shrunk most of the tumor and apparently my bones are even showing signs of healing on my last PET scan. We've now added Herceptin and Perjeta because I'm HER2+. But that's me, everyone is different and every cancer is different.

The important thing is to understand the treatment plan and what the goals are for each step, and to be comfortable with that plan. Especially at Stage IV when quality of life becomes a primary issue. It's wonderful that you are going with her to her next appointment. Please take a notebook and write notes for her. It's also a good idea to write down all of her questions before the appointment. A Stage IV diagnosis probably has her head swimming, it's hard to keep things straight until you get your head wrapped around it.

I hope she has a good response to the Zoladex sisterofteresa. I wouldn't be quite as concerned about time sensitivity now since they did start her on a treatment that they believe is appropriate and they can explain their plan. Treatment is different for every individual. If they say there is no reason to start chemo or additional treatment immediately I would hope that means that her cancer isn't spreading as quickly as mine did, which is a good thing (well, as good as a Stage IV diagnosis can be, but we learn to grab on to those small positives).

It is a shame that she has to wait so long for a second opinion. You'd think that the words "Inflammatory Breast Cancer" would create a sense of urgency, but I found out that isn't always the case. Big hugs for both of you, I hope she responds well to her treatment.