Effect of radiation on tissue expanded breast

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Paddlinlou
Paddlinlou Member Posts: 5
edited February 2018 in Breast Reconstruction

I’ve just finished 5 months of chemo and will be having bilateral mastectomy with insertion of tissue expanders in 4 weeks. I will need radiation to L breast. Can anyone share their experience of how radiation has affected reconstruction surgery?

Thanks

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  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    I had 28 rounds of IMRT radiation and my TEs held up great. I had heard a lot of horror stories with all sorts of TE expander problems and I am so happy mine did fine. I am going to see my PS next week to see how long she wants to wait until exchange surgery.

  • HopefulAC
    HopefulAC Member Posts: 63
    edited February 2018

    I had this exact question. I had BMX on Feb 8th with TE placement and found out today that I should get radiation bc an intra-mammary node had cancer cells to reduce chance of recurrence in my left breast. RO said I would have 28 days of IMRT radiation. My plan has always been to exchange for implants. She explained that first I’ll get TEs filled to the right size , then the right breast gets deflated halfway , then radiation , then right gets re-filled, and exchang sx is usually 6 mos after radiation.

    OCDAmy - did your opposite side have to get deflated ?

  • Paddlinlou
    Paddlinlou Member Posts: 5
    edited February 2018

    That’s interesting. RO didn’t mention deflating the TE. I will ask him about this. My surgery is next Thursday. Thanks for the info

  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    I had IMRT and they did not have to deflate the opposite breast.

  • LeesaD
    LeesaD Member Posts: 383
    edited February 2018

    I had TE's placed and filled pretty much to size I wanted during BMX. This was 3/27/17. I started radiation to right side Aug 2017. My PS actually gave the right side an extra fill as he said sometimes radiation causes the expander to deflate a little so he overcompensated. Finished rads Sept 8 and I just had my exchange Jan 30 so 4 1/2 months later. So far so good. And actually they sent expanders to pathology post exchange which is normal and the right radiated expander was all good and the left one showed a defect in it. Go figure. My PS said he likes to wait six months post radiation to do exchange but he agreed on the 4 1/2 for me. My skin tolerated radiation very well and my insurance was re setting Feb 1 so wanted it in before then which he understood. Three weeks out and all good so far.

  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    Leesa did you have implants put in if so what kind and are you happy with how your breasts look?


  • LeesaD
    LeesaD Member Posts: 383
    edited February 2018
    OCDAmy- yes I had implants put in. I had to find the little card my plastic surgeon gave me with the kind. Card says Natrelle Inspira Cohesive Breast Implant Style SCM 520 cc. Only thing I knew is that they're silicone. So far I'm very happy with how they look. It's been a little over three weeks and all bruising and swelling has gone away and they look good. My PS did fat grafting so I got some liposuction on my thighs. The fat grafting added fullness on top of my chest and I was surprised what a difference it made in appearance. Added a more natural gradual slope from top of chest down to implants. I was so over my tissue expanders (and boobs in general) and my plastic surgeon knew it. I had told him if I had known how long I was going to have them I would never have had the expanders put in and would've gone flat. Prior I didn't even care what the implants were going to look like as I just wanted the expanders out. My only request was I wanted to go smaller than what I had originally before BC. Now that they're done I am pleasantly surprised with how nice they look. I really like my
    plastic surgeon and I was able to trust his judgement and expertise. I'm very pleased.
  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    Leesa, thanks! Trying to figure out how to move forward with exchange. I'll have had my TEs for almost s year by the time I finally get them out

  • SummerRain
    SummerRain Member Posts: 54
    edited February 2018

    I had right side umx with immediate reconstruction (TE), on October 20, 2016. The post surgery biopsy of nodes determined that I would need 26 radiation treatments after chemo. Exchange surgery was done on January 17, 2018 which was 6 months after radiation was completed. No problems due to radiation.

    I did gave fat grafting with the exchange.

    Haven't quite settled into my final shape, but not bad so far. I have a wonderful PS, Dr Scott Andochick (in Frederick MD). He is a bit of a perfectionist, so the After might just end up better than the Before.😉


  • Falconer
    Falconer Member Posts: 1,192
    edited February 2018

    I just saw my PS to plan for stage two recon. I was given the full dose of rads and then some but the DIEP looks great. Well, it needs a nipple but it's soft and moves like a real boob. The skin is still a little darker underneath like a weird square suntan but I can live with that.

    I just added that I had TE s in for almost a year before the DIEP

  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    Falconer, how was the DIEP? I'm scared of a big surgey and don't want to be out of work for that long. How does your tummy look

  • meg2016
    meg2016 Member Posts: 287
    edited February 2018

    I had TE's placed before radiation. My PS filled me quickly to try to achieve full size before beginning radiation. Then she over-filled right side (radiated side) and deflated left side to about 1/3 for radiation. I used a knitted knocker (they are free--iwonderful!) on the reduced side to keep symmetry during radiation, it was very comfortable. My skin and TE held up great through radiation. I used a product called Mepitel between radation treatments and over weekends covering my radiated skin after reading studies on it. My RO wouldn't prescribe it (so I had to pay out of pocket) but did say they use it on patients who have severe skin damage--- seems smart then to use as a preventative? No idea if that made a large difference or not but seemed worth a try. I also did PT throughout radiation to try to keep range of motion and keep muscles from tightening a lot during radiation. I highly recommend that.

    I waited 12 months to have my exchange, my surgeon said longer than 6 months is preferred by her and I didn't want to spend my summer in recovery, instead wanted family time with kids. So I waited until fall and that worked out well. I was also considering DIEP, but I have a very busy job and already felt like I had taken a lot of down-time for mastectomy and treatment and also recovery time when I couldn't be doing as much with kids, travel, etc. So I ended up opting for implants and I'm very happy with the result and the recovery was very easy. I was back at work (remotely from home) two days after surgery. I am back to normal activity. Some challenges with push-ups, planks and similar pectoral exercises due to the implants under the pecs, but I can live with that because I hate push ups anyway. :) That may get better after time, I am less than six months from exchange. Appearance keeps getting better as implants settle into the pockets. I am just back to wearing normal bras and they look great.

    I still have to do nipples, that will be summer or later and I plan to just do tattoos.

    Study on mepitel in case you are interested: http://www.molnlycke.ca/en-CA/news-media/wound-care/study-showing-that-mepitel-film-prevents-radiotherapy-skin-reaction-becomes-news/

  • Paddlinlou
    Paddlinlou Member Posts: 5
    edited February 2018

    Thanks Meg. I’m having BMX next Thursday with the insertion of TE’s. After reading your post I feel much better. It’s been a difficult decision for me re implants vs going flat. Thanks for the info on the Mepitel

  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    Meg, I just keep seeing conflicting information about implants on a radiated breast. I am glad to hear yours look good and you are having no problems. My skin and expanders seem to have held up well but the expander is pretty hard and seems to have pushed up a little higher. I don't need my breasts to be perfect but after all I have been through it would be nice to have them match.

  • meg2016
    meg2016 Member Posts: 287
    edited February 2018

    OCDAmy- my expanders were a mess. Non-radiated side was MUCH lower, radiated side was bigger (intentionally), higher, further to the side. They both looked pretty square. Normal bras didn't fit at all. There is NO similarity between those and my implants. You truly have to look at the expanders as holding the pocket in the skin to create space, the shape and even placement will likely be much different. I have heard that my implant on the radiated side could harden over time, I chose to get round implants partially for that reasons I could massage them and I wanted to be able to do what I can to move them around and keep the skin loose on the radiated side. My PS encourages that. My PS also put a larger implant in my radiated side because it can tighten over time, it can appear smaller, so hopefully that will keep them looking symmetrical. I had over 12 months of treatment and was tired and felt like my body was tired, my family was tired, I had used a lot of help from friends and family members to help out with kids, etc. I thought implants were my best chance at getting "back to normal" sooner, which worked out. Ask me again in five years, but right now I think I made the best decision for where I am in my life. I can always decide to get DIEP later if I am in a different place. I do think the surgeon has a lot to do with this. I would ask to see pictures of patients who got both (and request that they be with radiation) and also ask for the success rate for your surgeon with radiated skin. My PS that did my surgery doesn't do DIEP, she does a lot of this and if I had done DIEP I would have gone to a different surgeon in that office. Finding someone who does a lot of cases with radiated skin I believe does make a difference.

  • Falconer
    Falconer Member Posts: 1,192
    edited February 2018
    OCDAmy,
    The DIEPwas better for me than the MX, but I think that was bc I was better prepared for surgery and its side effects. I didn't get constipated on pain meds, in other words.
    I'm very happy with it overall, and just met with my PS on Wed to talk about stage two. I asked about the scars; on my breast I have a few raised lines, and my abdomen scar is just above my bikini line. He did give me the option of moving the scar below the bikini so that I could still wear a two piece at the beach. The vain part of me left feeling weirdly elated. Like, I'm getting free plastic surgery la la la. Then I actually thought about it and realized I don't want any more major surgeries and since he mentioned needing a drain if he moves the scar, it sounds major. As a mom of three I never imagined I'd have a flat stomach again. But I really do have abs again.

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