Now I am really scared!

Silbar
Silbar Member Posts: 163
edited February 2018 in Waiting for Test Results

I am scheduled for an excisional bx next Thursday. I'm OK with this mentally. Last Wed I had my pre-op CXR and I just saw the results on my patient portal;

"
HISTORY: PRE-OP LEFT BREAST BIOPSY
FINDINGS:
PA and lateral views of the chest were obtained. Heart and vascularity
appear normal. Mediastinal and hilar regions are normal. There is a 3 x
6 mm nodular opacity overlapping the superior margin of the posterior
medial right fourth rib. No acute infiltrate. Degenerative changes and
slight scoliosis are present in the spine. Costophrenic angles are
sharply defined.
IMPRESSION:
1. No evidence of acute infiltrate.
2. Possible right apical 3 x 6 mm lung nodule.
Lordotic AP chest x-ray or CT scan of the chest may evaluate further.
Physician will also be notified via clinically reporting system"

This is especially scary for me because 10 yrs ago my mom was diagnosed with DCIS. When she had her pre-op CXR it showed a nodule on her lung  that eventually was found to be lung cancer. The DCIS and lung CA where not related to each other . She had lung surgery but her  lung CA eventually spread to her brain and she died about a year after her lung surgery.

As I  was having my CXR done I said to myself "Gosh, this is how my mom found out she had lung cancer". I know that a "lung nodule" can be many things but now I am really scared and additional waiting is in my future. Thanks for letting me vent.

Comments

  • momto3sons
    momto3sons Member Posts: 311
    edited February 2018

    I can see why reading that would be scary based on the history. I'm praying that it was nothing.

  • teachermomfl
    teachermomfl Member Posts: 104
    edited February 2018

    Aww...Silbar, no advice, but I can understand how that would be scary for you. Keeping you in my thoughts, girl.

  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    Thanks ladies. I am over the shock today and doing better. I can only take one thing at a time right now, so once I get through the breast surgery and second biopsy I will deal with this. I know it did not show up on a CXR 4 yrs ago. I also know it can be anything but I will push for a CT scan rather than "let's wait a year and see if it's gotten bigger". 

  • busytoday
    busytoday Member Posts: 12
    edited February 2018

    I’m so sorry, make sure you let us know what they say with the cat scan. Hugs

  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    Thank you, Busytoday. I have my surgery tomorrow and he probably will not discuss it until my post op visit on the 12th. I will be sure to mention it to him then to be sure he sends the CXR results to my PCP. I have a copy of the CXR results and I will also take them over to my PCP's office as soon as I am feeling OK. 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited February 2018

    Hi

    Of course you are scared... it is all just too much. For what it is worth, a few years ago as I was being tested for what utlimately was a thyroid issue, there was an "incidental finding" of a nodule on my lung. I literally almost lost my mind-- I was so upset. I finally got with a great pulmonologist who told me that over 95% of lung nodules are benign and often are the result of an infection, cold, bronchitis, etc. The protocol was to do CT scans every 3 months for 3 years, then if there was not change, they would know it was benign. I negotiated for CT scans every 6 months (have had my fill of radiation) and in the second visit- the nodule had disappeared. What a relief. So know that it can happen---- one thing at a time....good luck with your surgery


  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    Mom~~Thank you so much for that bit of reassurance!  I know this nodule was not present on my last CXR 3 yrs ago. I will be OK  if the doctors do request a CT scan with at least one repeat during the year. I just don't want them to say let's wait a year and then do another CXR. Like you said, one thing at a time.

  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    My BS ordered a CT scan of my lungs and I had it done last Wednesday. I called his office today to get the results but he was in surgery and they left a message for him to call me. Well, the results just posted to my medical facility's portal and now I am more worried than ever. It shows a nodules in left lung, several nodules in right lung, a lesion on my thyroid and a lesion on my liver.  I hope I will be able to talk to him soon to find out what all of this means going forward. Here is my result:

    CT CHEST WITH CONTRAST HISTORY: Abnormal chest film. TECHNIQUE: Routine axial images of the chest were performed following the uneventful intravenous administration of contrast. Up-to-date CT equipment and radiation dose reduction techniques were employed. CTDIvol: 16.1 mGy. DLP: 594 mGy-cm. FINDINGS: Correlation is made with chest film of 1/31/2018. There is a 6 x 4 mm hypodense lesion in the posterior aspect of the right thyroid lobe. If clinically warranted, further evaluation with ultrasound may be of assistance. There is no significant axillary lymphadenopathy. Coarse calcification in the superior aspect of the right breast. There is a hypodense fluid collection within the lower inner aspect of the left breast, with some adjacent trace stranding, which may reflect recent postsurgical changes. This may reflect a postoperative seroma and measures 4.5 x 2.0 x 3.0 cm (AP X TV X CC). No significant mediastinal or hilar lymphadenopathy. The thoracic aorta is normal in caliber and appears intact. Heart size is normal. No significant pericardial effusion. Images of the lungs demonstrate no distinct nodules in the right lung apex to correspond to abnormality on recent chest film. A 2 mm pleural-based nodule in the anterior aspect of the right upper lobe is noted on image 89, and a 3 mm pleural-based nodule in the anterior right upper lobe on image 97. Nodules along the right minor lung fissure, measuring 3 mm anteriorly and 2 mm posteriorly on image 111. A 2 mm nodule in the lateral segment of the right middle lobe on image 138. A 4 mm pleural-based nodule in the anterior right middle lobe on image 153. A 7 x 4 mm nodular opacity in the right costophrenic angle on image 231. Pleural-based areas of nodularity in the posterior right lower lobe, indeterminate for true pulmonary nodules versus areas of atelectasis. These measure up to 5 mm in size on image 178. A 6 x 5 mm noncalcified nodule in the left lower lobe on image 215. Linear atelectasis versus scarring in the anterior right lower lobe and in the inferior lingula. Limited imaging of the upper abdomen demonstrates a 10 x 8 mm hypodense lesion at the junction of the medial segment of the left liver and anterior right liver, incompletely characterized. Mildly lobular contour of the anterior superior spleen, nonspecific. Mild thickening of the left adrenal gland. Bone windows demonstrate no acute abnormality. Trace retrolisthesis of L1 on L2 and of L2 on L3. Mild to moderate degenerative changes of the thoracic spine. IMPRESSION: 1. No focal pulmonary nodule in the right lung apex to correspond to abnormality on recent chest film. However, several other scattered areas of noncalcified nodularity are identified, measuring up to 7 x 4 mm in the right lung base. Findings are nonspecific. Short-term interval follow-up evaluation in 6-12 months, then possible follow-up CT at 18-24 months if the patient is in a high risk category for malignancy, is recommended. 2. Hypodense fluid collection within the lower inner left breast, which may reflect sequela of recent postsurgical change and a postoperative seroma. 3. A 1 cm hypodense liver lesion, incompletely characterized on this study. 4. Less than 1 cm hypodense right thyroid lobe lesion

  • momto3sons
    momto3sons Member Posts: 311
    edited February 2018

    Oh goodness - I hope he can call you soon! Although hopefully with the notes about a 6 month follow-up it means it’s not cancer

  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    Thanks Mom! BTW, how are you doing today?

  • momto3sons
    momto3sons Member Posts: 311
    edited February 2018

    Much better today - thanks for asking! I was pretty sore when I woke up this morning, but the nausea is totally gone. Luckily I can take Advil now, and that’s helping a lot with pain. I’m also making myself move around more today...keeps my right side from getting stiff

  • Hadiya
    Hadiya Member Posts: 37
    edited February 2018

    Silbar, I'm thinking of you and sending love!! Arms around you! If you need to talk or rant, I'm always here! Sweet sweet dreams tonight! May you rest in the arms of the moon.

    Momto3sons, I'm glad you are better today! What are your next steps?? Thinking of you and sending love!

  • momto3sons
    momto3sons Member Posts: 311
    edited February 2018

    Hadiya - my follow up with the BS is on 3/1. I’m not sure if they’ll call with pathology results beforehand, but my notes did say I can call after three days to get them

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2018

    Hoping the face that they are confident in reassessing in 6 months is good, but hoping you do not have to wait that long to see what they are!

    Keep us posted.

  • Hadiya
    Hadiya Member Posts: 37
    edited February 2018

    Carolyn, let me know the results and if you need anything, let me know! Prayers of light and love ~

  • Kath1228
    Kath1228 Member Posts: 76
    edited February 2018

    Hi Silbar,

    I am certainly not a doctor but the words “findings are non-specific” usually don’t mean something bad. As others have mentioned, it is also a hopefulsign that 6-12 month follow-up is suggested.

    Also, I’m not sure about the policy at your healthcare facility - but my doctors don’t release information to the portal if there is something concerning and they haven’t had a chance to speak to me first. They don’t want patients logging into the portal and reading concerning results on their own. I hope your doctor has the same policy.

    Sending good thoughts and prayers!

  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2018

    Silbar - let me tell you my experience with lung modules -

    I went to a clinic last July because my back was hurting. I have twin grandsons who at the time were 1 so I thought toting them around was the cause. They ruled out pneumonia and did a chest X-ray. The tech was so inefficient she asked me if I had a bra on with underwire because of shadows or something on the film. I didn’t. She was really flustered which didn’t make me feel better.

    Anyway the PA whom I didn’t like from the getgo because she was condescending and arrogant freaked out because I had lung modules all over the place according to her. She said it could be scar tissue but she was also adamant that I go the next day to the West Cancer Clinic where I had all my breast exams and treatment done. I told her I would wait for the Radiologist report. She didn’t like that one bit and told me he would agree with her. I told her he was a real doctor and I would wait for his findings. Okay that wasn’t nice but neither was she.

    The report came back the next day that my chest X-ray was normal. Of course it was much more detailed than that but that was the most important conclusion.
    Where I live there is a virus of sorts spread by birds that causes lung modules. Very common here. Weird but true.

    Btw my sister had a lung module too. Her doctor removed it and said it probably had been there 20 years. She had BC and a MX so he had to remove it.

    I agree with Kath non specified is not a bad thing.

    Your report has a lot of medical jargon that I am clueless about.

    Kath- re; online charts - that’s not the case for us here either. DH and I found out test results before the doctor contacted us and they were serious tests.

    Finally Silbar - Of course you are scared but whatever it is doesn’t mean it’s not treatable.

    Diane
  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    Ladies, thank you all for your encouraging and supportive replies!

    Kath~ When I called my BS office for the results I was told that the Dr policy is to talk to the patient before posting it to his patient portal site but the medical facility always posts it on their portal site a few days after the results are released to the dr and that is where I saw the results. The BS has not called me yet and it is not on his portal..

    Diane~ Thanks for sharing your encouraging experience.

    My concerns include the fact that nodules are showing up in the  thyroid and in the liver. That includes the scope of the scan from the top boundary to the bottom. If it was just confined to the lungs I could feel more confident that it is probably some scaring from an old bronchitis or something I was exposed to. It makes me wonder what would have showed up if the scan went down  lower into my abdomen. Could they possible be mets from a primary site from the pancreas or bowels? Who knows but that is what gets my mind going.

    I think I will request a CD of the scan and then make an appointment with a pulmonologist. Also with my PCP and Rheumatologist to see what they have to say about the thyroid and liver.

    Another added piece of info is that I have Psoriatic Arthritis (immune disorder) and have been taking Methotrexate for years. I also took Humira for over a decade but stopped about 3 yrs ago. They both carry risks and I must have labs drawn every 3 months to check for infection and liver function.

    I will keep you all posted.

  • Love27
    Love27 Member Posts: 12
    edited February 2018

    hi Silbar!

    I am keeping you in my prayers. Please keep us posted. Maybe call the Dr and have him call you back first thing.

    One thing at a time and be sure to push for answers until your satisfied.

  • momand2kids
    momand2kids Member Posts: 1,508
    edited February 2018

    Hi

    so sorry you have all this worry--- just a little something about thyroid-- lots of thyroids have lesions/nodules and apparently 95% of them are benign--- so your odds here are great on that... and I think the same may be the case for the lung nodule..... best of luck-as others have said-if it was really serious-- they would not have 6-12 follow up....


  • Silbar
    Silbar Member Posts: 163
    edited February 2018

    Thank you. My BS called me this morning (Sunday)  and discussed the CT results. He does not seem real concerned about the results  but he does want to follow up on some things because I have psoriatic arthritis and have been on some immune suppressants for years . After talking with him we settled on:

    1) get a thyroid ultrasound soon

    2) Make an appointment with a Pulmonologist and touch base with my PCP and Rheumatologist to keep them in the loop

    3) repeat the chest CT in 6 months along with a CT of the abdomen and pelvis at the same time.

    He said that he would order them and have his office call me to set up the appointments. I'm surprised that he didn't tell me to have my PCP order them.

    I feel pretty relieved and confident about this plan for now.

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2018

    Sounds like a good plan

  • momto3sons
    momto3sons Member Posts: 311
    edited February 2018

    I'm glad to hear you've got a plan in place!

  • Hadiya
    Hadiya Member Posts: 37
    edited February 2018

    I'm glad for your news silbar - and for your plan! All best to you!

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