1 month after BMX w/o recon, just want to get comfortable
I'm hoping for some good ideas of camisoles/bras/garments to enhance my physical comfort. I wore an Amoena camisole for drain management 24/7 for the first 9 days, and found myself with far less discomfort than I had anticipated. The drawback to that camisole though was that I found the arm opening much too small. I tried the fiberfill forms (removing at least 2/3 of the fiberfill, as I only started out as an A cup). They were so high up on my chest that they nearly hit my chin! But the positive I believe was the compression across my chest above the area of the incisions. After drain removal, I stopped wearing that cami, and went back to my plain old cotton camis with shelf bras. I found it easy enough to put the breast forms under it, but that's when I started having more discomfort, feeling like there was a piece of hard wood affixed to my chest. At times it felt like a wide elastic band, and at times, it would feel like a heavy duty rubber band, much more narrow.
Just a couple days ago, I reverted to the breast binder I had received after one of my biopsies. That provided major relief, but I now put the breast forms over my newly formed (and still tender) dimples next to the arm pits. Last night was the first night I slept with the breast binder, and woke up with much less discomfort. But when I got into the shower, I could sense that hard wood feeling coming on. I do have an appointment with the BS in 10 days, and will address this with her. Plus, she referred me to lymphedema therapy/OT for cords she found on exam the day she removed the drains.
I really would appreciate garment suggestions. I work from home, and am able to do so with very little trouble, and am so grateful for that. Therefore, achieving a better "look" is not on my radar screen as of yet. I have some nice little mastectomy pillows that I still use when resting/sleeping, a kind gift from a thoughtful friend. I did order the Valetta camisole that looked promising, but didn't like the fit below the breasts (hate that second skin sort of thing). And, I found it a little too tight at the arm pit area. I am a missy size 10 or 12 or so.
Comments
-
I'm three weeks out from my surgery. The only time I'm uncomfortable is sleeping at night on my side. I too had a double mastectomy with no recon. I find it comfortable just wearing tank tops around the house. I wear the loose fitting ones. When I go out I wear tanks that are a bit tighter under my regular shirt. I had this surgery as a preventative surgery after family history and genetic testing it made it clear that is was the right choice
-
Bumping for Itzy, for more suggestions. Can anyone help?
-
I think you could really benefit from getting into see the LE therapist. My discomfort soon after my surgery was helped by wearing sports bras from Kmart, just not real tight ones. Stepped into them instead of pulling over my head. I also wore them inside out, less scratchy. I also got the flimsyest tank tops & tshirts I could find. Those shelf bras, I found irritating, maybe try cutting it out.
-
For me, taking cool showers helps minimize any heat related swelling that happens with too -warm (ie normal temperature) showers.
I still find, even 2 years out, that I can't wear anything with (even a relatively loose) elastic the whole way around (like a normal shelf tank orbra) or it backs everything (side, back of armpit, and arm if I go too long) up. There are surprisingly few options out there for this problem. I emailed amoena about it the other day and they said they don't plan on making any new ones and to try the valetta. Unfortunately, they don't work for me either. Not sure if this is the one you tried already, but I wear an aemona Hannah tank (the one with the zipper) most days as it only has elastic in the front, not the back and for me holds a lighter weight silicone prosthesis nicely. Also the company luisa luisa makes tanks that only have elastic in the front as well. I don't love the way my one-sided prosthesis looks in them, and they don't hold up silicone forms, but I think they might look better with matching poofs
.
Some on here like the eab brand binders, and they're pretty for what they are
. I'm planning on trying one soon. Others like compression tees, like underarmour, but I don't find these have enough underarm / upper chest compression for me.
Best wishes! This is all super frustrating, but most of us do find a thing or two eventually that works for us
Also, if it's determined you do have lymphedema, check out the step up speak out website at www.stepup-speakout.org as they have a whole section on truncal compression garments.
Edited to activate link and add another idea
-
hey sweetie, i had reconstruction But my body rejected the expander, and i was rushed to hospital with high fever it was removed, since then (Praise GOD) 21 yrs ago i,ve been wearing a prothesis in my bras, and camisoles, and bras with camisoles made in them have worked all these yrs for me, from J C Penney, they have catalogue just for swimsuits etc. msphil(idc. stage 2, L mast, chemo and rads and 5 yrs on tamoxifen)
-
The most comfortable garment I've found is the Belisse compression vest. My situation is different, as I have truncal lymphedema, but the way you've tried this and that, seeking comfort, is very familiar. :-) Binders, sports bras, etc. just never felt good. The belisse vest keeps me very comfortable, day and night. The disadvantage is the $200 pricetag, which my insurance wouldn't cover. I don't have much money and pondered this purchase for quite awhile. After I got it and experienced the tremendous decrease in pain, I promptly coughed up two hundred bucks more for another one. Cutting back on pain is worth it to me. It's possible that your insurance might cover a belisse if your Dr. or PT recommends it for you. Might be worth asking. I wish you luck finding something that works for you.
-
Thank you for all your ideas and input. In the 2-1/2 weeks since I posted this, I have made significant and encouraging progress. I am now to a point where I have some off and on discomfort, more so later in the day, but it's only a little bothersome now. I have 2 of the breast binders (the EAB ones) and I always wear those for sleeping.As I am just learning my way around this site, I missed getting back to this thread, and am anxious to try a cool shower. That does make sense. And I am going today for my final visit with the lymphedema therapist.
Thanks again!
-
Hi,
I am new to this forum so I may not navigating this site correctly either.
I have found that Luisa Camisoles have helped me. They have a shelf bra and a place to put your breast forms, in addition very stylish. Sometimes I just wear the Luisa Camisoles without the breast forms, and no one can really tell. I am just over year survivor, and I am finishing up physical therapy that helped with my tightness and pain. Before this I was not able to wear any kind of bra without it hurting so much. slowly I am getting back into wearing them. I have found that leisure bras and ones that fasten in the front are more comfortable to me. The Amoena Hannah bra has been a god-send for me as well.
The issue I am struggling with is that when I lift my arm my bra rides up over my chest. If I get a heavy weight breast form it hurts my chest to much. So, my breast mastectomy boutique is trying to help me find wide band bras and help suggest another kind of breast form. I think Anita puts one out with a wide band on the bottom. I am a very slender person with a small body frame, and I can tell you that going through this is not easy, but fight back with joy in dealing with everything. Life is to short to be conveying a angry attitude... I still am trying to except the "new norm", but it is getting easier. Just remember God will be your strength!
Is anyone been dealing with De Quervain's tendinitis since being on Arimidex? I have been on all of them one time or another, but the Armidex the longest, and now since June 1,2015 and have been dealing with severe pain in my wrist and thumbs. I just switched to Aromasin and hope this helps.
-
Cheap me...I bought the biggest silicone breast enhancers at Walmart.....$24.99 for the pair...size B it ended up being and bought mastectomy bras online. It is good to do stretching exercises to stop your chest from feeling like it is squeezing in....you don't want that, but gentle stuff at first.....you know the crawling up the wall with finger tips routine. Never heard of De Quervain's tendinitis but am going to look it up! Thank you!!!
-
Dear Blue Pearl,
I am just a over a year survivor, but have many side effects from the chemotherapy and radiation that I am dealing with. I struggle a lot with chemo brain, neuropathy, and now DE Quervains tendinitis of both hands. I am not able to work and applied for disability September 4, 2015.
As far as the therapy,I tried the finger wall climbing exercises, and they did not help me with my chest wall tightness. I simply thought just getting back to doing house work would bring everything back to normal, but it did not. It seemed every time I would reach, lift, push or pull that I would just hurt so much. Finally I told my oncologist, and he gave me a referral for physical therapy and this is what has helped me. To share a little background with you. I was diagnosed with Stage 2B ductal breast cancer. I chose a bilateral mastectomy all at once. Although, my cancer was only in the right breast, and I had cancer in my lymph nodes under my right arm removed (don't know how many because they were all clustered together, and they could not get a specific count). I am ER/PR positive, and HER 2 negative. I
am not through menopause so I have my own hot flashes, plus the hot flashes/night sweats from the Aromasin estrogen blocker drug, yuck. I have tried several anti-depressants that are suppose to help, but they did not decrease them at all. I have insomnia really bad, my digestion has been messed up since chemo therapy and my stomach hurts all the time now.
This is not the path I thought I would be on after cancer, but obviously God has allowed it to be this way. Every day I fight back with God's joy and this is what helps me to maintain a good attitude. Since treatments I can only wear certain types of clothes, all others make me itch.
This hypersensitivity in my body has made me cry out to the Lord for strength to get through this madness that my body is experiencing...
I hope you have a great day. Anyone else out there going through these type of altered body sensations burning, itching...problems with wearing clothes?
Thanks, Cindy
-
Hi there. I am so sorry for your suffering. And I can surely empathise. My question is about your disability. Do you know how that is going? I have been seriously considering applying myself after working for 28 years. I am so depressed. But finding it harder and harder to function. But I am afraid also. Afraid to quit working to apply. Wait forever for an answer and then to be denied. Any advice?
-
Hi. Just wanted to do a quick reply concerning your hyper sensitivity to lymph node pain and mastecomy pain. It is REAL, No doubt. It feels like a severe sunburn under my arm where nodes were removed. I am doing tissue expanders for implant exchange and they tug, pinch, poke, stick...miserable. No bra has done anything for that...just 5 weeks out from surgery and incision is still tender.
Soooo, why I am contacting you? Through my desperation to have SOME relief I dug through my arsenal of creams and lotions begging to find SOMETHING that would stop this misery. So I found out that a product I had used before for joint pain takes that expander pain away and a bonus it keeps that lymph node burning away as well. Protocol For Life Balancer Fast Acting Celadrin Joint Liposome Lotion with natural menthol, plus MSM & Arnica. It says it relieves joint pain I know but it did a great job for me on my foob ( fake boobs) discomfort. Stopped it all. Gave systematic relief to both areas. You have to “slather” it on , don’t use it sparingly and you have to reapply often. Who cares as long as you some relief. You can get on Amazon for $9.99 I think. It was a miracle relief for me. I hope if you can use it for anything it helps you.
Good luck and hang in there.
-
Hi. Just wanted to do a quick reply concerning your hyper sensitivity to lymph node pain and mastecomy pain. It is REAL, No doubt. It feels like a severe sunburn under my arm where nodes were removed. I am doing tissue expanders for implant exchange and they tug, pinch, poke, stick...miserable. No bra has done anything for that...just 5 weeks out from surgery and incision is still tender.
Soooo, why I am contacting you? Through my desperation to have SOME relief I dug through my arsenal of creams and lotions begging to find SOMETHING that would stop this misery. So I found out that a product I had used before for joint pain takes that expander pain away and a bonus it keeps that lymph node burning away as well. Protocol For Life Balancer Fast Acting Celadrin Joint Liposome Lotion with natural menthol, plus MSM & Arnica. It says it relieves joint pain I know but it did a great job for me on my foob ( fake boobs) discomfort. Stopped it all. Gave systematic relief to both areas. You have to "slather" it on , don't use it sparingly and you have to reapply often. Who cares as long as you some relief. You can get on Amazon for $9.99 I think. It was a miracle relief for me. I hope if you can use it for anything it helps you.
Good luck and hang in there.
-
Hi. Just wanted to do a quick reply concerning your hyper sensitivity to lymph node pain and mastecomy pain. It is REAL, No doubt. It feels like a severe sunburn under my arm where nodes were removed. I am doing tissue expanders for implant exchange and they tug, pinch, poke, stick...miserable. No bra has done anything for that...just 5 weeks out from surgery and incision is still tender.
Soooo, why I am contacting you? Through my desperation to have SOME relief I dug through my arsenal of creams and lotions begging to find SOMETHING that would stop this misery. So I found out that a product I had used before for joint pain takes that expander pain away and a bonus it keeps that lymph node burning away as well. Protocol For Life Balancer Fast Acting Celadrin Joint Liposome Lotion with natural menthol, plus MSM & Arnica. It says it relieves joint pain I know but it did a great job for me on my foob ( fake boobs) discomfort. Stopped it all. Gave systematic relief to both areas. You have to "slather" it on , don't use it sparingly and you have to reapply often. Who cares as long as you some relief. You can get on Amazon for $9.99 I think. It was a miracle relief for me. I hope if you can use it for anything it helps you.
Good luck and hang in there.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team