Xeloda Group - Jan/Feb 2018 (Early Stage)

Hi everyone! Met with my MO this morning, blood test was good, neutrophils 1.54, white cell count L3.0, red cell count L 3.8. no major issues and will start 3rd round tomorrow. My MO reminds me that if diarrhoea happens 3 or 4 times a day , or skin cracks on my hands or feet then stop X immediately. He also said that in case I have to stop X due to SEs, I will start radiation therapy and then go back to X afterwards to complete the full course (8 rounds) hopefully.

3300mg per day.

Hi everyone, I'll be starting 4000 mg of Xeloda on Monday with 2 weeks on and one week off. Has Xeloda slowed down yalls hair growth? Also is there a certain kind of lotion y'all been using for your hands and feet?

I, too, was told to use 40% urea cream which I am dutifully applying every morning and every night. so far so good. and, not noticing any change in my hair growth since starting xeloda.

Hmmm, my tumor marker (27.29) went up from 5.3 to 12.9 after having been on Xeloda for 6 rounds. I am wondering if it is caused by the inflammation induced by Xeloda.

Hi Chelsea, sorry about your symptoms. Xeloda can be drying, there were some days that I felt my nostril very dry. I also read from other tread that someone felt very thirsty. You are the first one that I noticed who is on a heavy dose of X and Femara at the same time. I would make sure I drink plenty of water, go to bed early (prefer before 9pm) and ring MO if the symptoms bother you too much. How was your AC/T experience, any other side effects apart from neuropathy? Wishing you a smooth journey.

Walkingintheclouds- My Oncologist has never mentioned tumor markers.

Hi buttonsmachine, you have been through a lot at a young age. I pray for you and all of us minimum SEs and max efficacy from X!

It has been quiet here. I take it as a good sign that everyone is managing alright with X.

I am on my 4th round with reduced dose of 3000mg/day. My blood counts was good this time. During my 3rd round, my appetite was down, had cramps in my abdomen for a few days ( no dihareah, no constipation), and sensitive on my fingers and feet. I am using urea cream diligently. MO decided that I should start radiation after this round of X and then back to X for 4 more rounds when radiation is done. I will have my initial appointment with radiologist this Thursday.

Hi group! I'm going to start xeloda in the near future and my MO told me today the worst side effect will probably be the big d, will I be able to work and will imodium stop it? What about white counts? Will I have to stay away from all germs like AC chemo? I did really well through 4 DD AC and 4 taxol. How does xeloda compare? Thanks in advance for any info 😀

Hi MountainLife ~ I started Xeloda on Feb 26th and I'm on my 3rd round. I take 4,000 mg. I have not had any of the big D and no nausea. I do eat before I take them to keep the nausea away. All of my counts are staying good so far. With my oncologist his main concern is how my hands and feet are holding up. I just started having some cracking on my fingertips so definately get a good lotion. I did have a little fatigue my first 2 rounds but this round seems to be much better. Hope this helps

Hi Chelsea and kmajor , glad to hear you are managing Xeloda.

MountainLife, I only had once or twice loose bowels during each round. I returned to my work ( off since May 2017) at a reduced capacity while I am on Xeloda.

I finished by 4th round tablets about three weeks ago. I will start radiation next Tuesday. My appetite and energy level are back to near normal. I truly enjoy chemo-free days. I have peeling of hands and feet. My finger prints are still faded. I have many brown and purple spots on my fingers and soles of feet. During Xeloda, I kept biting my mouth and tongue while eating or half sleeping 😱. The wound would become mouth sores and took at least 4 weeks to heal. At the end of my last X tablets, I had three mouth sores. 9 days after my last X tablets, three mouth sores disappeared overnight. Yay!

IntegraGirl,

So happy for you! It is encouraging to hear from someone doing well farther down this road.

I have been super tired...resting 18 hours a day. I wonder if anyone else feels this wiped out?

Hey there! I just finished radiation last week and met with med onc Friday. I'm waiting for my docs to schedule a total hysterectomy then I'll be doing the xeloda. Do people take xeloda and femara at the same time? I didn't ask the Dr as I was on info overload that day, lol.