Surgery scheduled

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CoComedy
CoComedy Member Posts: 38
edited February 2018 in Just Diagnosed

Hello all. DR called. Surgery is scheduled for April 4th- double mastectomy & start of reconstruction. I was really hoping the surgery would be sooner! I’m ready to get this cancer OUT of my body and know exactly what I’m dealing with. I’ve had an MRI which found nothing else but I would like to know if any lymph nodes are involved. I HATE the waiting part of this disease. I know everything will work out in the end but the WAIT is TORTURE! Just needed to vent.

THanks

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  • bella2013
    bella2013 Member Posts: 489
    edited February 2018

    Cocomedy, you are right...the wait is a killer. I have BMX with DIEP Flap surgery this Thursday. I have been scheduled for a month. I have used this time to focus on my health...eating healthier, limiting/no alcohol, staying away from crowds and crowded situations to shield myself from the flu and other bugs going around and getting exercise even if it is just walking. I have also filled the time getting projects completed around the house. I have enjoyed meeting friends (one in one) for coffee. I am really ready to get this behind me and start healing.

    I am amazed at how fast the time has passed. I pray this wait time will pass quickly for you.

    Blessings

  • CoComedy
    CoComedy Member Posts: 38
    edited February 2018

    Thanks Bella2013! I will take your advice and make the next month a productive and healthy one. Luckily I have a trip planned and several other events that will help pass the time.

    Best of luck with your upcoming surgery! I hope all goes smoothly and you recover quickly!

    Best wishes!

  • EncoreKennel
    EncoreKennel Member Posts: 13
    edited February 2018

    Hi Ladies

    I too was just diagnosed with IDC of the left breast. I am 58 and always have had normal annual mammograms, my last in May 2017. Then in January I noticed some discomfort and my Dr ordered diagnostic mammogram and ultrasound. That led to biopsy and diagnosis. I met with the surgeon and oncologist and they both feel I am an excellent candidate for lumpectomy and radiation.... so surgery is scheduled March 2nd. I just had diagnostic mammogram of the right breast and ultrasound of left axillary nodes... waiting on results of those. It really is nerve wracking .... all the unknowns. I already have several health issues so it makes it even more so worrying to me. I am thankful for this forum so we can learn from each other and encourage one another. Hugs

    Dina

  • moth
    moth Member Posts: 4,800
    edited February 2018

    Soooo, this is just me but I would not wait from last week of Jan to first week of April for surgery.

    You first posted on Jan 29 but I think you implied you got initial dx a few days before that.

    From Jan 29-April 4 is 65 days and that already is outside the target of 60 that is reported in this blog post by a breast surgeon on breast cancer & surgical delays and what the studies indicate are optimal times

    https://respectfulinsolence.com/2016/01/12/breast-...

    Maybe you can get on a cancellation list & try to get it moved up?

  • CoComedy
    CoComedy Member Posts: 38
    edited February 2018

    Hi Dina, sorry about your diagnosis :( It sounds like you caught your cancer early and that’s great to have a treatment plan in place. Let us know the results of your node and mammogram. Crossings fingers they come back clean!

    Hi Moth, Yes, I agree waiting 65 days is not ideal. I’m on a list for surgery sooner but realistically I don’t see that happening. There are several pre-op appts that need to be done and coordinating surgery with two docs isn’t great. My cancer surgeon is going to call me Tuesday. I’m hoping she has more results on my main tumor. From what I understand, she might know the grade (the aggressiveness) of my cancer by now? I’m also waiting on my genetic testing results. I should know more in the next few days.

    Thanks ladies!


  • moth
    moth Member Posts: 4,800
    edited February 2018

    Yes, CoComedy, your tumor biopsy should give the hormone receptor status and the Nottingham Grade. It usually only takes a few days after biopsy fore these results to come & honestly most times it seems it comes right on the same document when they identify it as the type of cancer. I think my GP had them on Day 3 after my biopsy but I guess it depends on the backlog of the pathology labs.

    Make sure you're asking for physical copies of your reports and scans and start making up your own binder with extra copies. You can also request discs of your scans etc. When you have those in hand, it can speed things up if you get to a doc who says 'oh I don't have that report/I haven't seen that scan yet' & you can whip it out of your bag and give a copy to them. I think this might be an especially good idea if you're seeing the coordination between the docs isn't ideal but even in integrated systems, I think it helps to do this. I'm in an integrated system but even here I found myself driving my CD of my mammogram and ultrasound from the imaging labs out to my surgeon to cut down on delays. It helped: I got my surgery day 8 after receiving diagnosis. Then, during the surgery check-in, the admission desk hadn't received my pre-op bloodwork (only my bs had) so I again whipped it out of my binder and said 'ta da!'.

    Hi Dina - sorry you've found yourself here. Do read through the surgery prep threads and the monthly surgery threads; I got lots of handy tips. Also if you fill out your diagnosis and make it public in your signature, you can get more specific tips from people with similar dx as yours.


    hugs!

  • Jbird705
    Jbird705 Member Posts: 2
    edited February 2018

    Hi CoComedy - I was diagnosed just a few days after you. The process took forever after a suspicious screening mammo in late November. Post diagnosis appointments and second opinions added two weeks. Hoping to be scheduled within the next 3 weeks for BMX. I really don't like this wait, but even pushing hasn't helped make the process go any faster. The schedules for OR, BS and PS all have to come together. My onco suggested taking the extra time (few weeks) to make decisions. My second opinion found another malignant tumor, so I had better data to inform my decisions. Since I can't make it go faster, I'm also working on eating well and becoming as fit as possible to help with recovery. (Don't know if it really helps, but can't hurt!)

    Bella2013 - Good luck on Thursday, sounds like you are in a terrific frame of mind to tackle the surgery and make a speedy recovery!

    Agree with Moth - keep your files with you for easy reference. It's really helped me.

  • igiggle2
    igiggle2 Member Posts: 1
    edited February 2018

    Hi -- newby here... I, too, was diagnosed just 2/5/18 (IDC, 9mm, ER/PR+, HER2-) and am scheduled for lumpectomy, sentinel node biopsy, and IORT on Monday 2/26. It's been great to find this resource and know that I'm nowhere near alone in what I'm going through. Mine, too, was found during an annual mammogram. No real symptoms, until they were doing the ultrasound and I realized that the spot of concern was the same area that I felt a tugging sensation when I raised my arm. I've also been working on making additional diet changes (had already made plenty before the bomb of a dx) and working out like a fanatic! It should help!! Anyone else newly diagnosed find themselves with a very heightened awareness of every little bump, twinge, pang anywhere in your body? It's really crazy!!

    Here's to getting to the other side of what I'm calling my little M&M's coming out party.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2018

    Dear igiggle2,

    Welcome to the BCO community. We are sorry for what brought you here but so glad that you reached out to our members. We hope that you will continue to benefit from the support and information of shared experience that are shared here. Let us know if there is anything we can do to help you to navigate your way around. The Mods

  • msphil
    msphil Member Posts: 1,536
    edited February 2018

    yes sweetie indeed the waiting is Awful once plan in place things ease up.Stay Positive and Hopeful that got me thru. I am now Thank God going into my 24th yr Survivor. msphi idc stage2 0/3 nodes Lmast chemo rads n 5yrs on Tamoxifen as I was planning Our 2nd Wedding.

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