2017 Diagnosed-- A Place To Share "What's Next"

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited February 2018

    Welcome to our group, mkn86!

    Moth: you know the saying, the only constant IS change. So we have to adapt to that, right?

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  • smwusaf
    smwusaf Member Posts: 129
    edited February 2018

    Going to my first survivors support group tonight. I wierdly nervous. I'm an introvert normally but I think meeting with other women that have a similar situation may be very beneficial. I'll let you know. :)

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  • TaRenee
    TaRenee Member Posts: 464
    edited February 2018

    Today I told my students “ Sharing is caring, right?” Oh yes! Was the reply. “I care a whole lot. Allow me to breathe on you and share this crud that one of you so kindly shared with me.” Oh no! Was their answer. But sharing is caring... right? lol

    Cold 1

    TaRenee 0

    I am fighting cancer. Isn’t that enough? Daggum cold.

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited February 2018

    smwusaf

    Interested to hear how it went -- and where you went. You can PM me if you'd like. I'm in Charlotte, too.

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  • mkn86
    mkn86 Member Posts: 250
    edited February 2018

    thank you for the warm welcome :) i appreciate it!

    going in for an appointment with BS and PS tomorrow. let's see what they say about my case.

    smwusaf, i am introverted too. This forum is probably the biggest support group i’ve joined. but lately i have been reaching out to other survivors individually. because some things we just need to hear from survivors themselves. :) let us know how it goes (if you’re comfortable to talk about it

    have a good week everyone!

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  • smwusaf
    smwusaf Member Posts: 129
    edited February 2018

    I really enjoyed the evening. They had a guest speaker, a cardiologist, who spoke on the topic of heart health and chemo and radiation, etc. It was very interesting. It was nice to be in a group of ladies do diverse yet with a common theme. There were long term survivors and some still in treatment so it was good to hear stories and get information. They have several outreach type programs for survivors like yoga, art, meditation, etc. It's a bit of a drive for me but I think I will try and go back on occasion. happy valentines day!

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  • mkn86
    mkn86 Member Posts: 250
    edited February 2018

    appointments with surgeons went okay. a bit overwhelmed and scared of surgery. they explained everything. but also the breast surgeon is out of the country until march 7th. i must have surgery by March 5th at the latest so i’m back to the drawinf board this coming week with looking for a surgeon.

    had (still having actually) my first cup of coffee since september. :) i felt i needed a little something to make me happy.

    It's malaysian coffee where they roast the coffee beans in butter or something. and it's hazelnut flavored. it's instant but all good i assume.

    When the weather is hot, i make iced coffee out of it and put it in my favorite mug.

    image

    I hope you ladies are having a great weekend :)

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    home today after surgery.. let the healing begin!

    Unless something else pops up, I have now completed all treatments. Well, I will still be on aromatase inhibitor pill for many years.

    Hoping you guys are all having a great weekend.

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  • ItsStillMe
    ItsStillMe Member Posts: 61
    edited February 2018

    Dodgersgirl - glad to hear your well and on the back end of treatments!

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited February 2018

    DodgersGirl I'm sorry to have been out of touch. Was this a cosmetic surgery or something else? Either way, I'm glad you are done and feeling good. Like you, I'm on hormone therapy only now (Tamoxifen) and feeling better every day. Wishing you the very best, speediest recovery!

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Georgia1– had to have full hysterectomy after a PET scan showed uptake in the uterus couldn’t have a hysterectomy at the time because I was in active chemo treatment so I had a D&C between AC chemo. The pathology showed no cancer, instead it was dx’d as complex atypical hyperplasia. The next step after that is cancer. I next PET in Sept did not show any activity or uptake. Once done with mastectomy, chemo, and rads, was time to schedule hysterectomy. Surgeon everything looked good and that she would have my pathology report by the time of my follow up appointment.....hoping they dont find camc

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited February 2018

    Oh goodness that is a lot to deal with! I'm glad your last PET scan was clear and I will be thinking of you. You certainly deserve to be done and healing.

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Georgia1– thanks

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited February 2018

    Heal up Dodgersgirl! Nice that it's all behind you and you can just focus on getting back to "normal" instead of psyching yourself up for the next "hard" treatment.

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Legomaster225–. Thanks

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  • gigibee
    gigibee Member Posts: 192
    edited February 2018

    Dodgersgirl, hoping for clean pathology and putting treatment behind you

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Gigibee—- thanks for the well wishes.

    Going to try to sleep in my on bed tonight. Fingers crossed!

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  • Annbee
    Annbee Member Posts: 208
    edited February 2018

    dodger girl I am glad to hear went well. I hope you heal quickly.

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  • Castigame
    Castigame Member Posts: 752
    edited February 2018

    Dodgersgirl,

    Wish you speedy healing.

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  • OCDAmy
    OCDAmy Member Posts: 873
    edited February 2018

    Speedy recovery DodgersGirl. So glad this is the end of treatment.

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Annbee, Castigame, OCDAMY,

    Thanks from the well wishes!

    I stopped my pain meds yesterday and hurting a bit more today so back on Tylenol for the day

    Slept very well in my own bed last night!!

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  • Tpralph
    Tpralph Member Posts: 487
    edited February 2018

    well wishes for you dodgersgirl!  heres to healing and praying for good path results!

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Tpralph—. Thanks for the well wishes! Should have my path back by March 1s

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  • Castigame
    Castigame Member Posts: 752
    edited February 2018

    sisters I would like to say no more health troubles for all of you.. 

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited February 2018

    Castigame— was today your consult at Mayo for polyposis w Cowdens syndrome?

    Keeping you in my prayers.

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited February 2018

    DodgersGirl:

    Back from out of town and checking in on messages. So glad you're doing well!

    Boy, this is a journey, ain't it?

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  • Annbee
    Annbee Member Posts: 208
    edited February 2018

    I posted this somewhere else but need to post here too, feel more comfortable posting here. I had a follow up with my B.S. today. I asked about this rib pain I have. He said that is wasn't mets based on how it presented itself...tender. Perfect.. but then asks when my next appointment is with my MO, March 14th. He said I need to call and get it moved up. I will call tomorrow but I just want to put all this behind me. He made me feel better that it is nothing considering it is my radiated side.

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited February 2018

    Ugh, Annbee. I hate that you are getting an extra dose of stress. I'll be thinking good thoughts for you and hope your MO has equally reassuring words.

    FWIW, I found this on a couple of websites: If you start experiencing pain in your ribs and/or around your breastbone, don't panic; it's probably not cancer. Radiation can cause arthritis-like inflammation, particularly around the area where your ribs connect to your sternum. Do ask your doctor about the pain, but chances are good that you'll be advised to take aspirin, which will likely take care of it.


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  • Annbee
    Annbee Member Posts: 208
    edited February 2018

    Thank you! I feel like this will all be nothing but I know I have to follow through which is stress . Ugh

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  • 53nancy
    53nancy Member Posts: 497
    edited February 2018

    Dodgersgirl, congrats on finishing treatment; I sure hope your healing journey goes well and without complications. Annbee, sorry about the stress you are experiencing; it is amazing how it pulls us down more than we think; keeping everything crossed that the days and weeks ahead will appear brighter.


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