Reconstruction- can’t get rid of the Infection!

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mdoc524
mdoc524 Member Posts: 336
edited February 2018 in Breast Reconstruction

Hello All - had Bilateral Mastectomy in May 2015 with immediate TE placed .. had implant exchange a year later after chemo & rads in June 2016.

Fast forward to this past November- left (cancer side) implant formed Capsule Contracture so Surgeon went in cleaned it out. December 9th rushed to ER with Sepsis infection (confirmed staphylococcal aureus) from the surgery - in ICU for a week. 20 Days on antibiotics got me thru the Holidays but could not get rid of infection.. Jan 17 surgeon removed left implant leaving me flat & concaved to ribs. This week whole left side became pink/red & warm to touch. Primary care Dr afraid infection could go into my ribs. Now waiting for a call & appointment from Infectious Disease.

Anyone else dealing with anything similar after reconstruction ??

Surgeon said I would have to wait months before trying Reconstruction again...

Comments

  • Tracyne
    Tracyne Member Posts: 65
    edited February 2018

    Hi mdoc524,

    Hospitals are breeding grounds for all this stuff. I'm so sorry.

    I think waiting awhile is an excellent idea. You want your body to be able to fight infection if it happens again.

    I myself am on Day #8 of limited movement due to sutures opening. My surgery was Jan 2. I have no idea if this helps but I am doing it-trying to eat 100g of protein a day. I thinks it's helping.

    Good luck and hang in there,

    Tracy

  • Lula73
    Lula73 Member Posts: 1,824
    edited February 2018

    so sorry you’re dealing with this. There is quite a bit of data on bacterial persister cells & dormancy, endospore bacteria & bacterial resister cells. Any of these may be at play here. Most docs aren’t aware of the data on them as they’re not in infectious disease specialty. It might be worth looking them up and discussing the possibility with your doc or asking for an infectious disease doc to consult. Good luck to you!

  • Mominator
    Mominator Member Posts: 1,575
    edited February 2018

    Mary, I'm so sorry for those horrible infections. 

    Yes, an appointment from Infectious Disease is the next step.

    My PS starts every exchange patient on antibiotics even before the first incision. But an infection developed in my right implant around 10 days after exchange surgery. PS switched me to a stronger antibiotic. 

    Hoping your infection clears up soon. 

  • melmcbee
    melmcbee Member Posts: 1,119
    edited February 2018

    Hey Mary. Im sorry you are going thru this. I was hospitalized twice for infected implant and my surgeon finally removed it. I was 43 and mentally over it. I have an implant on one side and concave on other. That was 5 years ago and I am quite happy living that way. I dont wear bras. Im not in pain. Everyone in my life is use to it. I dont think I will ever feel the need to change it. I hope that you succeed in getting whatever makes you comfortable and happy. Healing hug

  • MomOfMatt2K
    MomOfMatt2K Member Posts: 1
    edited February 2018

    Hi mdoc524, I too had bilateral mastectomies due to finding a lump in my right breast that turned out to be Her2+ cancer. After much research, I chose to have chemo first & then surgery. To make a long story a tad shorter, my expander's were put in September 2017. At my November visit with my PS, I asked him about the pain, hardening, & discoloration of my left expander. He assured me it wasn't anything to be concerned about.😨 Needless to say I decided to do my own research, which is how I found out about Capsular Contraction. My next visit I told him about my findings. He said that's what he was afraid it was going to turn out to be, but he could straighten everything out when the regular implants were put in. During my research I found out if a woman develops CC with the expander implants, there's a 70%-80% chance the final implant will do the same. So I decided to have the expanders taken out & no further reconstruction done at this time (I may never have any further reconstruction). Yesterday (2-16-18) was expander removal surgery, Oh happy day.😀 I have often wondered (since this problem with the expander's started) why the FDA still allows these implants that were previously banned in 1991/1992. According to the records, they weren't really officially approved for use in the USA, they were available under a grandfathered provision allowing the use of medical devices!! Anyway....the PS informed my husband that a large portion of the scar tissue (CC) was dead & had turned black due to lack of blood flow. There was also infection in & around the CC. This explains the reasons that for the last 3.5 months I have felt physically sick, achy EVERY day, very lethargic, in constant pain & my brain in a total fog, I couldn't remember anything longer than 3 minutes. I truly believe I was sensitive/allergic to the expander implant outer shell (silicone). I woke up today (2-17-18) feeling so much better! My son & husband told me I even looked like I felt better. Other than the pain from the surgery, I don't have any pain! I am so very, very thankful to be on the road to recovery, to have those infection causing implants out of my body. Do you think it could possibly be your implants that were causing your lingering infections? I hope & pray you are doing much better now.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2018

    Hi mdoc524, they've provided great advice- probably safest to wait, and a great plan to talked with and infectious disease person.

    MomOfMatt2K, wel. come to the BCO community, and we greatly appreciate your kind post


  • mdoc524
    mdoc524 Member Posts: 336
    edited February 2018

    Thanks All for the support and advice .. 

    I do have a referral in to Infectious Disease and waiting for them to call with appointment details. I really was just trying to see if there were others faced with similar experiences especially 2 plus years after originally mastectomy. 

    Right now I am flat on left (cancer side) with no implant & possible continued infection and right non-cancer side implant is and has been fine. I did have radiation and I know that can contribute to Reconstruction issues. Trying to decide if I would even try Reconstruction again once the infection is finally cleared. 

    Hugs to All .. 

    Mary 

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