So, so, so afraid. Advice would be appreciated
Hello everyone,
I am new to this forum so I apologize in advance if I’m posting in the wrong section. I am a 35 year old female (just turned 35 in February).
For the past 3 years I have experienced an itchy right nipple (only on the right side). I told my doctor and she said not to worry because I didn’t show any signs of BC or Pagets. The itching settled down but as soon as I started grad school (started drinking a lot of caffeine), the itching came back. I’ve also noted that both of my breasts are VERY sensitive and become more sensitive around my period. I tried switching to a new, better fitting bra and that really helped reduce the itchiness. There is no redness, swelling, discharge or dry skin on my breast.
During my physical last week I insisted on a mammogram because of the itchiness and my doctor said I didn’t need it. She felt my breast and said that she was ordering the ultrasound just because my right breast felt more fibrotic than the left and mostly to “ease my concern” as she was sure they wouldn’t find anything.
Today I had the ultrasound performed and they looked at the entire right breast. The radiologist came in to perform the ultrasound himself on an area within my nipple region that looked like a nodule. He showed me the screen and said “see how there is black but a little bit of grey? Simple cysts are black and this one has a little bit of gray so it can be a complex cyst, fibroadenoma or intraductal papilloma.” He knew I got the ultrasound done because only that nipple was itchy. He also said that it is round without irregular borders and that is a “good sign.” He said “I don’t want you to worry” and talked about how the majority of masses in my age group are fibroadenomas.
He said I need to get a US guided biopsy performed just to be sure. He said it is VERY small and thinks it can be a complex cyst, fibroadenoma or intraductal papilloma. I told him to please notify my PCP because she has a tendency to not look at results right away. My PCP emailed me just now saying “my breast ultrasound showed a nodule and I am referring you for a ultrasound guided biopsy.” and that I should recieve a call in a couple of days.
I’m literally numb with fear right now. I literally am shaking and feel like vomiting. I suffer from Panic Disorder and Anxiety and just started taking my medication 3 days ago. I feel awful. I know I don’t even know anything yet but I’m crippled with fear. I’m even contemplating going to an urgent care to get some stronger anxiety meds. I am so frightened. I cannot believe this is happening. Please someone help. I feel broken.
Thank you
Comments
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An ultrasound guided biopsy is useful when what they want to biopsy is small and hard to find. It also helps the doctor to biopsy the right spot vs missing because he/she can't see.
I know nothing about your symptoms but did want to attempt to allay any concern you had about "ultrasound guided."
If you can, please call a friend to come and be with you.
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Jess - I have had lifelong anxiety & panic disorder and have been right where you are now. You didn't mention what type of meds you are on already, but I STRONGLY recommend Ativan to help get you through the next few days. Please call your doctor's office and see if they can prescribe some for you - it has saved me on so many occasions.
I speak from experience when I say it's amazing what we can handle if we have to - phobias and all!
My best to you - keep us in your loop...Julie
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Good for you for advocating for yourself and taking charge of your health. Get that biopsy scheduled ASAP. Once your doctor’s office makes the appointment, if it is too many days away, call yourself and get it moved. Mine was the day after my mammogram and ultrasound. Do as many things as you can to distract yourself this weekend because waiting is hard. And if you need Ativan, by all means, go to Urgent care to get some!!!
You CAN do this
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Thank you so much ladies for responding so quickly. I’m currently taking Paxil. Started taking it at 21 years old and have been off and on it for years. Just started taking it again (after 1.5 years not taking it) 3 days ago because my anxiety level is so high. As you can imagine after hearing this news I’m literally trembling. I’m currently waiting at the urgent care to see if they can give me something to help me sleep/relax.
I’m just so terrified. The radiologist said that I’m going to have to go to a hospital to have it performed. I’m just terrified that it isn’t something benign especially because I’m technically symptomatic. I’m literally in the middle of clinical rotations for graduate school and have 3 exams next week and don’t know how to find the strength to study about—nonetheless—illness and disease.
What do you all think the chances are that this is something like a fibroadenoma or something benign? I’m so worried.
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80% of biopsies are benign.
Focus on your studies as best you can to distract yourself. I know that is easier said than done, because waiting is excruciating. I have had many biopsies, and they never get easier. I understand. You have to train your mind to focus on other things. Worrying does not change the outcome. Try to get in the mindset that you will deal with whatever comes your way. Because you will. You csn
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Jess, focus on what the radiologist said - most likely benign nodule, nice and round smooth, mine was irregular and spiculated. Radiologist see these things every day, so I trust them when they tell you something. Mine told me that they were pretty sure it was cancer..and they were right
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I just got out of the urgent care and was prescribed a few pills of Ativan. I’m waiting to pick up my medication right now. I just feel like I’m out of my body right now. I’ve been experiencing leg pain and back pain for the past year. This year while driving I noticed that my knees really hurt. Spoke to 2 doctors about it and they said it is most likely because of my weight (BMI 25.6). My physical performed this January came back fine. CBC, CMP and everything was normal. If I had metastatic cancer would it show in my CBC result? I just keep thinking about the worst
Thank you again all for your responses. You have no idea how much it means to me
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Hi Jess. I'm sorry this is so stressful, and hope good test results come your way soon. I agree with others that it is most likely something benign and harmless. Sleep tight.
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Hi Jess, based on the description you provided, there isn't much to worry. I am surprised they want to do the biopsy instead of a 6 months follow up. Perhaps your doctor is more cautious than most. Sorry for all the trauma you have to go through, for what is most likely to turn out to be benign.
I had an itch on the nipple of my good breast for 10-15 years. My GP said is most likely a fungus or bacteria that took residence in the skin crevices there and is hard to clean up.
Finally, being in grad school doesn't let you with much free time to be outside, and perhaps your vitamin D level has plummeted. When this happens me I get both bone and muscle pain. If the pain doesn't go away, perhaps you could ask you GP to test vitamin D levels.
Good luck with your exams!
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Oh I forgot to mention that in 2015 my vitamin C was slightly low (very slightly, almost borderline) and this year my vitamin D is low. Doctor said that can be the reason why my muscles/joints hurt. I don’t get much sun at all as I study indoors so much
I just don’t know. I cannot stop stressing about all of this. It’s been one of the worst days of my life thus far and I pray that it doesn’t get worse than this. I don’t think I’m strong enough to handle any more bad news to be honest
You ladies are so amazing. Thank you so much for the prompt replies. Means so much to me. I’m going to try and eat something (haven’t been able to eat all day) and take my pill and hope that I can somewhat relax.
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DATNY-I just saw your post right after I posted this last post. Thank you so much for your insight. I am vitamin D deficient (value of 13 when normal range is 30-100), just got diagnosed last month (never checked before though) really hope that it is nothing because I’m terrified.
When the radiologist was speaking to me he seemed not worried per say, just couldn’t figure out what it was for sure (he said it was very small). He seemed slightly stumped as to what it could be but said he thought it could be those 3 things (complex cyst, fibroadenoma or intraductal papilloma—he made is seem like the papilloma was the “worst” thing it could be).
I just literally feel like I’m jumping out of my skin right now. I’m going to take the Ativan and hope that it helps because I’m literally a nervous wreck right now
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Hello again girls,
My doctor wrote back to me when I said that I’d like to see a copy of the report and this is what she wrote to me:
“The report has been verified, if you can not access it, then call medical records to get a copy. It is likely a fobroadenoma, or a complex cyst, and the biopsy is just to verify and confirm the benign nature of it.
The radiologist does not think it has any malignant features, this is just an extra step to be precautious. Hope this help to ease your mind a bit.”
What do you girls think??? I don’t want to get my hopes up but I’d really like to think that this is good news? I’m going to pick up the report on Tuesday (they are closed on Monday and can’t access it online unfortunately)
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Hi
It sounds like it's not cancer as stated there are no malignant features-benign. You should be glad about this. It's still worth getting your own copy of the biopsy report. I usually ask for a copy if not provided at my appointments. I figure that the least the doctor can do is print me out a copy but if not, you'll have to access it through medical records.
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Unfortunately she is referring to the ultrasound report not the biopsy report as I have not yet had the biopsy performed. I just don’t want to get my hopes up and then have this be my worst fear. Thank you so much ladies.
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Nothing the radiologist said sounds like cancer. Not a thing
The biopsy is going to identify whether it's a complex cyst or a fibro.
If anything, his idea to have it biopsied to "put your mind at ease" did just the opposite, since you do suffer from panic attacks/anxiety disorder. It's unfortunate that was such a powerful trigger for you.
"It is likely a fobroadenoma, or a complex cyst, and the biopsy is just to verify and confirm the benign nature of it."
Remember that sentence your doctor wrote. The biopsy is to confirm that it's benign. They do not suspect cancer. At all.
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Jess, the main problem here is your low vit D. That needs to be brought up to 50 asap. Being deficient long term can bring you many problems. Since I do not spend much time outside, I take 5000 ui everyday, and have it checked a few times per year.
I also recalled that for my nipple itch my doc prescribed the same thing that is used for athlete foot. But when your vit D will be in the normal range the itch may resolve too.
Finally, as others said above, I too believe your doc wants to put the final diagnosis, cyst or fibroadenoma; or the doc felt pressurised to recommend biopsy because of your distress. There is not much to suggest cancer!
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DATNY, wirh all due respect, NO, her vitamin D level doesn't change the main problem for Jess that she has severe anxiety and panic disorder which prevents her from accepting the reality that the doctors believe she has a benign condition and are just being prudent in confirming that by biopsy.
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Wow - I don't see this as "prevents her from accepting the reality" - seems like a mean thing to say. Certainly anxiety can get in the way of thinking clearly, but unless you've never been fearful of the unknown at all - seems like you might understand.
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I did not think about anxiety when I wrote that, I was thinking about the plethora of diseases that low vit D can bring in later on.
But, since you mentioned it, I realized that normal levels of vit D may indirectly improve anxiety symptoms too. At least in my case it did that, by helping my thyroid function. There is a strong link between vit D and thyroid. Thyroid disease symptoms, which can be present even when blood work is normal, include high anxiety. That can be very severe. I think worrying about a lump is legit; in my case I suddenly had difficulties driving across a bridge among many others unfounded worries.I never took anxiety pills for that, just worked on my vitamins and lifestyle and eventually it completely went away.
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There was nothing mean intended or meant in acknowledging her professed anxiety & panic disorder. It is a fact that it skews the true magnitude of a perceived threat or danger. Of course I have had anxiety, as have most of us, and it is miserable
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Jess,
I have GAD with panic disorder for which I take Klonopin because I can’t handle other psychotropics. I’m a former university professor and know well the stress of exams — I certainly experienced it myself and saw it in my students. Were I you, I’d postpone my exams: I doubt any reasonable person would fail to understand the stress of waiting on a biopsy and facing exams. If need be, go to your advisor and explain.
Secondly, try to focus on the positive: your docs are being thorough and cautious which is good. When I saw my PCP on an emergency basis, I was scheduled for a mammogram the next day. It was the day before Thanksgiving. The radiologist read my mammogram and immediately did an ultrasound. Although I had been told that they were not doing any biopsies that day, I was told to go home and come back in a hour for a biopsy. Before the biopsy was even submitted to be read, I was told I had IBC. And this all happened in a tiny town with minimal healthcare options. I’m telling you this because your radiologist seems to be on the ball. He’s told what he’s seen and it sounds like he’s pretty responsive. My sense is that if he’d seen anything he didn’t like you would’ve already had the biopsy. From everything you written, you likely have a benign spot. In other words, your docs are doing the right things and I dare say that if they thought it wasn’t benign they would be responding much more aggressively.
As to the vitamin D stuff. Around our mid to late 20s, we start to lose bone density. D3 plays a big role in how your body processes calcium. The CDC suggests taking calcium citrate (specifically) with D3 and to take it in the afternoon. Since your vit C was also low, you might consider also taking a multivitamin. D3 is absorbed from sunlight which as a grad student I’ll bet you rarely see.
And as you know, grad school is a very draining experience. Medical studies have shown that grad students do not get enough excerise, sleep, or essential vitamins. In effect, grad school is like having a low-grade infection. My grad school, Hopkins, has a tradition wherein every significant paper one writes is submitted to the entire department which then meets, en masse, to grill you about it for 2-3 hours. By the time I finished grad school, I was overly aggressive and seeing both a shrink and a psychologist. In desperation, I started working out, doing yoga, running, and used a special light for Seasonal Affective Disorder. I also revamped my diet. All of that actually helped to ameliorate my GAD.
The moral of this overly long post is that you are stronger than you know, that you do not need to try to wait out the biopsy and take your exams, that taking care of yourself is critical, and that, if I’ve survived 40 years of panic attacks, such attacks will not kill you. Ease up on yourself, trust that you can survive this time of abnormal stress.
wishing you the best
bride
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Thank you so much ladies for all of your responses! Sorry for barely getting back to you all but I’ve been taking the Ativan (1/2 of the 0.5 mg dose) and it pretty much has been making me sleep which is what I think I truly needed.
My anxiety today about this all comes and goes in waves. Last night when I read what my Dr wrote to me, I felt a huge relief, but then I remembered how I don’t trust her very well (I’ve been meaning to change her as my PCP for some time now but since I usually just see her for really simple things I’ve bern putting it off) and then I think “Well I don’t trust her really but the radiologist seems to know what he’s talking about and he didn’t seem to think it was cancerous—both when he spoke to her/or in the report—and when he was with me” BUT then I went online to look up complex cyst and saw a BC board from Hopkins and in every response, the Dr asked “Is this a breast radiologist?” to the patients that were advised to wait 6 months. Then I thought to myself, “Oh my god he’s just a regular radiologist from a small hospital (kind of like a mini Kaiser). Maybe he isn’t the best at reading breast ultrasounds!” And then the panic returned very strongly. Same goes with you lovely ladie’s responses. I read them over and over again and I feel so much better but then I go online and read something else and I panic. I’m just a mess
BRIDE-I cannot thank you enough for taking the time to write to me and explain your own struggles with GAD and panic disorder. That is my diagnosis as well. I was thinking about talking to my professor about moving my exams but I’m currently in PA school (Physician Assistant school) and it is so fast paced and don’t know how I’ll be able to make them up. I’m going to definitely reach out to her though because I don’t see how I’ll be ready. Problem is, I don’t even know yet when I’m going to have the biopsy done or where or by who and they are closed on Mon. 2 of my exams are on Friday and the other that following Monday. I will definitely have to figure out what I’m going to do because as of right now I can barely function with day to day activities and no way in hell can I concentrate on studying. Plus the medication makes me so drowsy but it’s the only thing that is helping.
Please ladies, please continue giving me your opinions, advice and insight. Every single one of your messages have been EXTREMELY helpful in getting through last night and today. All of your responses mean so much to me and I read them over and over again when I feel panic
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Jess, - "smooth and round" does NOT sound malignant. I know it's difficult, but TRY to keep your imagination from running away! In my experience (unfortunately I have had many biopsies), the drs were pretty sure when I had a malignancy after seeing my sono/mammo, even before the biopsies (and told me so).
Think GOOD thoughts and go study for your exams! This is a inconvenient hurdle. You will feel SO much better after the biopsy!!
Hugs from NYC
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Thank you so much AnotherNYCGirl
I really do hope and pray that my radiologist is correct and it’s nothing more than a non-cancerous complex cyst or a fibroadenoma. Apparently both my sister and my mother have a history of having fibroadenomas (mom had to get biopsies done and sister just had an US and then they did a mammo and said it was a fibroadenoma). My sister actually had the SAME exact symptoms as me (very tender painful breasts and one nipple that itched) she told her Dr and they did the US, were not satisfied, and did the mammo. She did not require a biopsy though.
What worries me is that the Radiologist was like “you need to have a US biopsy” like there was no other option. He just said I needed to do it and that was that. I asked him if I need to get it done ASAP and he said “Oh no. Something like 2 weeks is fine.” I don’t know if that’s a good thing or a bad thing
Regardless I am completely allowing my mind to go to a very dark place and I’m definitely thinking the worst. It’s like every positive thing I hear or read, I quickly turn it around and think “but what if...” It’s been so rough and I don’t want to think about how I’ll be feeling right after the biopsy :’( I think I’m just going to have to sleep the entire time until I get the results.
I’m going to be heading out to go bowling with my family and friends to help celebrate my brother in law’s birthday. I hope it helps to distract me a bit because I just feel awful.
Thanks again ladies
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Ladies,
My report is up. I’m terrified that I read it because it seems like there were a multitude of things discovered on my ultrasound! This is what the report states:
“INDICATION: Right upper-outer quadrant lump and female.
BREAST ULTRASOUND, RIGHT: High resolution linear transducer ultrasound is performed with attention to
FINDINGS: Comparison: 12/10/2015 right breast upper-outer quadrant.
Ultrasound of the entire right breast is performed. In the upper-outer quadrant there are 2 small cysts identified measuring 5 and 6 mm.
In the upper inner quadrant 2 o'clock position 1-2 cm from the nipple there is a 1.0 x 0.7 x 0.9 cm ovoid hypoechoic nodule versus complex cyst. Ultrasound-guided biopsy is recommended.
In the 2 o'clock position 4 cm from the nipple there is a 0.5 x 0 and to a 0.5 cm hypoechoic lesion with internal echoes probably a complicated cyst versus a tiny fibroadenoma. This is wider than tall with benign sonographic features. The remaining right breast is unremarkable.
IMPRESSION: BI-RADS: -4A. Suspicious (but low suspicion for malignancy).
RECOMMENDATION: Ultrasound-guided biopsy of the 2:00 retroareolar lesion. “
Ladies I’m freaking out again! This is terrifying! Please help!!
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Jess,
I was feeling exactly the same you are feeling now 3 months ago. I went for a routine ultrasound and doctor found a very small lump it was classified as a birads 3. I was freaking out. Although 3 different doctors have reassured me that was nothing to worry i was panicking.
Then i read a post from MTWOMAN who said: focus on What you Know its true and not on You fear that might be true. It was changing mind for me.
Your ultrasound sounds pretty normal and the odds your results are benign are very high. Try to Stay calm and positive. I recommend you read the Anxiety thread in This forum.
Hugs
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Thank you so much Hanna. I am definitely trying to relax as best as I can while waiting to have the biopsy performed. I appreciate you taking the time to write to me
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There really is nothing scary in that report. They are just recommending a biopsy to confirm it being a fibro or complex cyst.
"Ovoid"= smooth distinct borders is a very good thing with HIGH probability of benign
BIRAD4A is a low chance of cancer. Very low
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Thank you so much Marie for your response. I appreciate it
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Hi Jess,
I am in pretty much the same situation. Doctor said complex cyst and suggested biopsy but said I could do a 6 month follow up. Also said it isn't suspicious at all. Of course even if the doctors say it is probably nothing we assume the worst! I am waiting 6 months as of right now but I know I should probably get the biopsy just to be sure and stop the worrying. Let me know how yours goes! I will be wishing for B9 results for you!
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