Beyond overwhelmed with this potential

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Anonymous
Anonymous Member Posts: 1,376
edited February 2018 in Waiting for Test Results
Beyond overwhelmed with this potential

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  • Naughtyboobies5
    Naughtyboobies5 Member Posts: 6
    edited February 2018

    Hello

    I am very new to the board. I’ve never actually even been on any type of board before. I am 41 years old and had my first mammogram in January. Bad I know, I should have gone last year. My first mammogram showed concerning findings in both breasts. The report read as follows: breasts are heterogeneously dense. BIRADS C, Calcifications in the right breast mid depth on the line behind the nipple that require additional imaging. Calcifications in the left breast that require additional imaging. BIRADS 0 incomplete requires additional imaging.

    I had a more magnified mammogram several days later with the following results: One group of pleomorphic microcalcifications found on each side with additional scattered calcifications. Breast are heterogeneously dense BIRADS 4c. Bilateral

    Initially I was a little in shock and heard little of what the radiologist said when he was telling me that I needed to have a guided core needle biopsy in both breasts. The hospital only does the procedure every other Tuesday therefore I was given February. 20 as a date. Again initially took it in stride but then as days passed I began to panic and then took to the evil Google. However I have been careful to only access medical journals and Reputable sites.

    I’m going over the language in both of my reports there are several things that are concerning me: line behind the nipple, pleomorphic, micro as opposed to macro, Group, the 4C rating, and both breasts. I also have done several years of fertility treatments as a gestational carrier. I’m not sure if that matters.

    Does anyone have any real transparent feedback for me?

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited February 2018

    I don't have anything helpful to add except that I'm so sorry that you find yourself here. It's normal, of course, to be somewhat panicked at this point. And it sucks that this is after your very first mammogram!

    Another week is not that long to wait and won't make a difference even if it does turn out to be cancer. But meanwhile - it will seem like forever for you. I was given a script for Xanax after my biopsy - to help with the anxiety while waiting for the results.

    I hope that you will get good results. Nothing is known until there are pathology results. Hold on to that for now.


  • Zukee
    Zukee Member Posts: 5
    edited February 2018

    I'm going through almost the same thing as you. Called back for the magnified mammogram, abnormality described as microcalcifications and pleomorphic. It seems like the BIRAD classification is rather subjective, though. My original radiologist described it as BIRAD 3, then changed to 4B, then the hospital's radiologist changed it back to 3. Keep in mind that the BIRAD number is not a diagnosis, but a recommendation to get a biopsy. I go for my biopsy on the 21st and I'll keep my fingers crossed for you as well!

  • Naughtyboobies5
    Naughtyboobies5 Member Posts: 6
    edited February 2018

    NotVeryBrave

    Thank you for your response. This has been so difficult, I'm overwhelmed with affect and truly so exhausted. I have told minimal people which makes it much more difficult because I feel so alone. I just want to know either way. The wait feels like forever and I truly am trying to remain realistic as opposed to catastrophic. I will definitely post my results and appreciate the support. :)

    Zukee

    I am sorry that you are going through this as well. I realize that the BIRADS is definitely not a diagnosis however there are several things in both reports that have me worried such as bilateral BIRADS 4C, in a line behind the right nipple, in a group in both breasts with additional scattered calcification, and pleomorphic microcalcifications. I will keep my fingers crossed for both of us. :)

    My emotions fluctuate so quickly: one minute i feel strong and fine, the next minute I feel scared to death, the next miute I feel overwhelmed with sadness, the nesxt minute I am angry. I think of my children, I think of my job, I think of how unfair this is, and I also think of all the brave woemn that have been through this.

  • windingshores
    windingshores Member Posts: 704
    edited February 2018

    It is normal to feel all these things. Many of us got prescriptions for a small amount of Ativan or Xanax to help us get through the waiting period. Distraction helps (Netflix, walks, movies, whatever helps you).

    I stayed off Google except for this site, and bought a copy of the Mayo Clinic's book on breast cancer. Some other books I looked at were too overwhelming. I got an overview of the landscape of breast cancer from that book but didn't look deeply into details until I had the details of my diagnosis.

    I initially pictured myself in bed with an IV saying good bye to my daughter who was leaving for school, or, worse, my daughter refusing to go. This was all so far from the reality, but the initial shock makes us picture these things. I had surgery and take a pill each morning. For some it is much harder but for many, especially with the Oncotype testing and other genomic tests that help determine treatment and often help us avoid chemo, it is not quite the nightmare pictured in our minds.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited February 2018

    I agree with windsong. What you're feeling is totally normal. It truly feels like an emotional emergency, doesnt it? As she emphasized, the reality of cancer, should it actually BE cancer, is far different than what we dream up. Try to keep your hands busy while you wait: cleaning, building, sewing, painting, etc. Busy hands make it harder to perseverate on your worries. And for goodness sakes, stay off Google.

  • Naughtyboobies5
    Naughtyboobies5 Member Posts: 6
    edited February 2018

    Thank you ladies. I appreciate the support. I’m definitely trying to keep myself busy until Tuesday and then I will get the results on Thursday when I meet with the surgeon. I feel so exhausted. I’m also recently separated and have three kiddos plus I’m a Clinician so I manage everyone else’s emotions and struggles all day and all night and for the past two weeks I have just wanted to have a tantrum of my own and tell everyone to solve their own problems. Lol! Instead any second I’m alone I have a meltdown. Didany of you who have children tell them? My kids definitely know something is going on. And my twelve year old son is starting to get angry with me Beciase he feeIs like I’m hiding something. I really don’t want to stress them out anymore than they are.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited February 2018

    I didn't tell me kids (15, 13, 10) until after my diagnosis. They saw an ice pack after the biopsy and I wasn't up to quickly formulating a lie so I had to confess that I'd had a biopsy to the two oldest who were present. I played it off as "just to check some things" and tried to allay their concerns. Thankfully, only the oldest had enough knowledge to seem somewhat worried.

    I wouldn't say anything until you know something. Meanwhile - try to find something to do with the kids that will distract all of you.


  • feliciascintillation
    feliciascintillation Member Posts: 189
    edited February 2018

    Naughtyboobies~The waiting is very difficult but unfortunately part of the process. Do you have a supportive friend/family member who might be able to go to the appointment(s) with you? Some people like the added support and extra ears since it is a stressful situation. Your choice. Good luck to you and remember you have a good support system here.

  • Beatmon
    Beatmon Member Posts: 1,562
    edited February 2018

    Our wonderful breast Radiologist on here can probably help....look for djmammo. He is wonderful and a big help.

    And you can’t help but be nervous....we have all been there

  • Naughtyboobies5
    Naughtyboobies5 Member Posts: 6
    edited February 2018

    thank you! How do I look for someone? This is the first time I have ever been on a message board. I’m trying very hard to keep busy. I’m so exhausted and will just start crying out of nowhere.

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited February 2018

    Hi there and I'm so sorry about the stress. To search for DJMammo, click on "search" at the bottom of the page. You can then search for the term "interpreting your report" which is his thread. Or you can search for him in the "search for member" box on the same page. Then type up your report findings.

    And while that info may help, I do agree with others that the only thing you can do while waiting for results is to keep yourself as busy and as optimistic as possible. Your findings may well be benign, which is what we wish for you.

  • Naughtyboobies5
    Naughtyboobies5 Member Posts: 6
    edited February 2018

    Thank you Georgie1

  • Ceci-246
    Ceci-246 Member Posts: 50
    edited February 2018

    Naughtyboobies5, crying is healthy and very appropriate when managing all the stress. I too was given a prescription for Ativan to deal with the initial process of tests and waiting. I am the guardian to my sister’s children and single, so can relate to the worry of scaring the kids. I call them my kids now as I’ve had them over 3 years. I felt so bad having created a stable home and happy life for them to then tell them I was facing possible cancer and definitely surgeries that would destabilize the only solid home they ever had.

    The day I received the pathology report from my biopsies, I sat them down (girl was 16 and boy 15) and told them that just as we can now predict hurricanes and know in advance to evacuate, modern medicine can detect disease before it becomes deadly. That’s why annual checkups are so important. I told them that the biopsy showed a high risk of cancer but because of early detection, I would have some surgery (radiologist recommended excisional biopsy), and will be fine. I have a counselor come to the house for them because of the trauma that led to me taking them in, and when asked by the therapist whether he was afraid, my nephew said “no. I trust (my aunt) and I trust the process.” My niece on the other hand was petrified and wouldn’t really talk about whether she was afraid. After an MRI showing multiple suspicious areas, I chose to have a bilateral mastectomy. A friend of mine who is a neuropsychologist recommended that I keep the kids in the loop, have them visit me in hospital, be honest and open with them. Regardless of diagnosis, they may be afraid. Knowledge is power.

    We are now on the other side of this, I believe. The kids helped care for me after BMX. Friends, coworkers, and church people I didn’t know helped the kids with rides to after-school events, brought meals, took me to my follow up appointments when I couldn’t drive, took my cat for insulin testing, etc. Last week, my niece- now 17 - came along for the whole day of my surgery to exchange to implants with fat grafting, even though a friend drove me. I told the doctors and nurses that my niece is thinking of being a doctor, so they explained a whole lot of the process to her.

    This experience has taught me how to ask for help. It’s humbling. I’d rather be the hero. But telling people, reaching out, asking for help relieved a lot of my stress. I have no shame for having this diagnosis. I did take HRT for 11 years after surgical menopause at 41 and before that used the pill on and off. I am now off all hormones and the transition wasn’t bad at all. Though that Ativan may have helped.

    I wish you strength and peace. You are not alone.

    Ceci
  • Naughtyboobies5
    Naughtyboobies5 Member Posts: 6
    edited February 2018

    Thank you so much for sharing your story Ceci,

    Yesterday was my Biopsy however they were only able to do one side Because I experienced what they called vagal response and my blood pressure dropped to almost 40. It was horrrible, I was sweating, and could feel myself fading. Luckily they did the most concerning side first. I meet with the surgeon tomorrow afternoon. I’m sore and feel drained as though I’ve been hit by a truck. I had all the kids stay over night at my sisters because I didn’t know how my mental status would be. I was so physically drained from what happened immediately after the procedure that I slept the rest of the day. I will post after my appointment tomorrow. Thank you for all the support.

  • Zukee
    Zukee Member Posts: 5
    edited February 2018

    Hi Naughty.

    I've been wondering how your biopsy went. I had mine today and thought I was going to faint, too, but somehow got through it. I'm glad you get to see the doctor soon - I have to wait a week. Here's hoping you get good news tomorrow!!!


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