Diagnosed but not really worried
Hi Ladies,
So I think I have my final diagnosis. Two areas of DCIS and one IDC (2.4cm). Er/Pr+ HER2- Still waiting on genetic testing but I don’t think they will find anything.
Weird thing is— I’m really not worried. Met with a cancer surgeon and two plastic surgeons. Sounds like treatment will be a double mastectomy, reconstruction and hormone therapy. I understand that during surgery the DR will look around and test some lymph nodes which could change things BUT I really feel good about the treatment and feel like I got off pretty easy. Am I crazy?
Friends and family keep telling me how sorry they are and sending prayers my way. I appreciate it but I also don’t feel sick and that everything will work out just fine. Am I missing something? I feel very fortunate that my cancer was caught fairly early and my treatment seems very simple. Am I missing something??
Comments
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Everybody reacts differently to the news of cancer. It's a good thing you are not worried. That will certainly help you sleep better at night and you'll need rest for your recovery after surgery and treatment.
I had your same "grateful it was caught early" attitude and felt very confident about my prognosis. I also thought I'd go the double mastectomy route for my DCIS but then I thought a little more and realized that while my breasts were not the most important thing in my life, I was concerned about the long-term consequences of not having them and the implications of reconstruction kind of scared me. I know for some women, the choice is made for them due to the extent of their diagnosis but I was fortunate enough to have the choice. As my surgery date drew closer, my confidence began to waver but now that surgery is over, I'm feeling much better.
Read a bit more about mastectomy versus lumpectomy and continue to do your research. You should never be worried but it is good to go into this with all the information you need. Keep us posted on your progress! It sounds like you have a good plan already made.
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thanks Kellyoc519! I’m happy to hear that your surgery went well and you are confident in your choice. That’s HUGE!
I hope I didn’t come across as insensitive in my post. I am guess I am worried/concerned but also feel really good about my options and how far BC treatment has come. I’m happy to be diagnosed in 2018 rather than 1998. Does that make sense?
I guess that with everyone else being SO worried for me that I feel like I’m missing something. Should I be more concerned?
Believe me, when I was waiting for results from my biopsies, MRI, etc. I was a nervous wreck. It just seems like the DR’s nowadays seem to know how to handle this and I feel like I’m going to be okay. I think we all will be just fine :
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Not at all. You have a great attitude and plenty of reason to be optimistic. I found some people reacted the same way but it was their way of expressing sympathy.
Keep the faith and keep us posted.
Diane
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Greeting. Wow I feel the same way. While waiting for my diagnosis and biopsy results, I was such a nervous wreck I had panic attacks! But once I was diagnosed and then met with my treatment team I feel very confident things will work out. I was diagnosed with IDC, 2.7 cm, ER+, PR+, HER-. Waiting for a genetics panel, then mastectomy. If my lymph nodes look ok hormone therapy. My cancer subtype is Luminal A. I appreciate all of the support and prayers I am receiving.
I would like to add, that during my many sleepless nights and whenever I feel afraid, I read the many posts on this site and feel comforted.
Thanks everyone!
Monica!
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Good luck to you both. Rationality is a good thing, and absolutely, the care we are getting is so much better than 10 or 20 years ago.
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well, I felt absolutely the exact same way. I had big DCIS but tiny invasive. I thought I was in like flint.
And 2 years later...50 Lung mets. So let me warn you that it is great to be positive and feel secure with your docs. But breast cancer is a beast and never to be trusted. Always be aware of your body and on the lookout for changes
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You know, I think it's good to be optimistic but I think maybe the part you're missing is that cancer likes to come back. It's recurrence that scares me.
If you go on to one of the calculators like Predict you can see what the 5 & 10 years stats look like. http://www.predict.nhs.uk/predict_v2.0.html
On one hand, compared to many other cancers, the fact that so many people will be with us for that time is great. (But I think Predict counts all survivors, including those who had, or are battling a recurrence).
But I've already been on the wrong side of the stats once by getting this thing in the first place (even though I was very low risk on paper) so when I see the group of people who did not survive, I do worry a bit.
fwiw, I think you might want to ask your doctors if you qualify for Oncotype testing which would give you a better idea of recurrence risk & might help your team decide whether you should consider chemo. -
It's great that you're feeling good! The statistics for breast cancer are very good, and worrying helps absolutely nothing and no one. I, personally, don't understand it when I see someone apparently trying to get a poster to worry more, it makes no sense at all.
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I agree with Summer Angel. Your attitude is refreshing. I felt the same way but my focus at the time was on the health of a family member, which was a distraction of sorts. Many of the posters on here feel strong once the diagnosis is made and the action plan is set. You just follow the steps and get through it. Make sure to really think about your choices and do needed research, get second opinions, whatever you need to feel really good about your path.
I am curious, did you have an Oncotype Dx test done?
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I also had a very positive outlook especially once treatment plan was finalized. I had IDC 1.2cm, ER/PR+, HER2-, stage 1, no node involvement, oncotype score of 6. BMX meant no rads, natural tissue reconstruction meant I went into BMX surgery with the old breasts and came back out with new ones made of my own soft, warm tissue (no implants). Had oophorectomy after severe side effects with tamoxifen and genetic testing results. So now I'm on an AI for 10 years. Do I worry about recurrence or Mets? Yes. I'm always observant for any changes in my body and seek medical advice for them promptly even if I think it's unrelated because cancer can be a sneaky thing and not always present in a common manner. Do I let it get in the way of living my life? No, life’s too short for that no matter how long you live. I believe this is where Beatmom & Moth are coming from. They are not saying worry more/you should be worried and they’re not trying to bring anyone down. Rather, they are saying Be positive, be confident in your treatment path, but still be watchful and aware of any changes in your overall health and seek prompt medical advice for those changes because the reality is there is still risk present.
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Exactly Lula! I don't think people should wallow in misery or fear - not at all!
But I worry that there's been some normalization of breast cancer and some people think it's just a minor thing. We don't want to be so blase that we don't recognize the seriousness of this diagnosis while deciding on treatments and further precautions to prevent recurrence. -
Thank you everyone for your comments! I really appreciate the feedback.
I’m still learning more about my personal diagnosis. I haven’t received my genetic testing results yet or had oncotype testing done. That could changes things for sure.
For now, I know my cancer is ER+ PR+ HER2- (my doctor also told me that my ER & PR numbers were really high (DCIS 99/99, main tumor 86/78) which I thought was a good thing.
I had a lymph node biopsy that came back clean.
MRI found nothing else.
All of which I am celebrating. One day at a time, right? I will remain cautiously optimistic. My surgeon did a great job of explaining all case scenarios to me. The different treatments and what we will do to lessen my chances of reoccurrence. She really made me feel comfortable and that I’m ready to face this battle.
Warm wishes to all the ladies here.
Thank you
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CoComedy:
You're about to get a college level med class in breast cancer with everything you'll learn over the next few months.
There are many who know more than me but high ER/PR IS good because you have more treatment options. Lymph node and MRI results are good news as well. I mean, this diagnosis does pack a punch but we have to keep on truckin' right? (To use a beloved 70s saying.)
They ran my Oncotype on the surgical tumor sample, so I believe that could be done then. Perhaps they run on biopsy samples sometimes, too? (I'm not sure.) This determined if I was going to do chemo. NO for me on that. Genetics were also done - especially since my mom is a survivor. But all ours were clean, which leads me to believe they have not found it yet. But press for any and all information they can give you. I wanted to know all I could to make informed decisions.
You're doing all you can. And I think keeping a positive attitude helps a lot. I've met so many wonderful people along this journey and learned a lot. I've had my bad moments and absolute fear, too, however, trying to take it one day at a time and appreciate the joy in the moment (even while the scary stuff is occuring) is so good if you can maintain.
Keep us updated and know that you have a BC posse out here.
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It’s great to be positive and to have faith in your team. My note to you is to not be too confident or too trusting until you have done your homework and doctors have earned your trust. Always question, do your research, and always drive your treatment. THEN you can feel confident because you know you have done everything you can.
I am not saying you haven’t done the above! This is my general advice to all newbies.
Best Wishes!
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