TNBC 2nd re occurance

Laraz · January 2018

Diagnosed May 2015, age 46, did 6 rounds of Tac; mastectomy and radiation.

Complete pathological response. 6 months later re occured, so Ij did 6 cycles of Gemzar and cisplatin followed by more surgery. Again a very good result but 6 months later it back again! More surgery, a bit more complicated this time due to damage from radiation and vein involvement. Going for cat scan and sonar and if all clear will follow up with 6 months Xeloda didn't even ask what if it's not

Dr says we still aiming for a cure, but I find that hard to believe. Has anyone else had two re- occurances so quickly and then gone on for years clear? I would really like to believe it's possible.

VL22 · January 2018

Laraz - so sorry you are going through this! Pcr and then 2 recurrences?! Have you had genetic testing done?

I’ve definitely seen TN women on here have recurrences and then go one to live their lives.

If you google John Hopkins breast cancer forum there is an ask the expert section that is extremely helpful. Might be good to get a sride cons perspective

I will be thinking of you and hoping for clear scans!

Laraz · January 2018

Thanks, I will look at the John Hopkins site. I have had BRCA testing, it was negative as was my sisters who has also had breast cancer. Hers was found while still DCIS and hormone positive so fortunatly hers hasnt progressed / re occured

buttonsmachine · January 2018

Hey Laraz, I'm not TN (I'm ER/PR+, Her2 negative, grade 3, high oncotype) but I *might* be having my second local recurrence too - also within a very short period of time. Anyway, I will have a biopsy this week to know for sure, but I'm pretty sure it's cancer because I know how my cancer feels. Some doctors said it might be a "persistence" rather than a true "recurrence" - I don't know if that might also be the case for you. I did the expanded panel of genetic testing and there was nothing, also no family history. My MO said a similar thing to yours - that we are still looking to cure it, but I am also getting worried. If the new lumps are cancer, it is now spread out across a greater area than is was before my mastectomy surgery. Anyway, I am sorry you are going through this. I have wondered if I am the only one. Best wishes to you!

Laraz · January 2018

So results are in, rather unusual. Cancer has spread to lymph nodes on opposite side. Now considered stage 4, metastatic. No other spread which is the up side. Chemo regime will now combine Taxoter with the Xeloda. Didn't think I could do more Taxoter. Still have lots to absorb and learn. How long can you live with stage 4. How can I suddenly have a 3cm lymph node when cat scan 4 months ago was clear in that area!

VL22 · January 2018

I am so sorry - I can’t even imagine how you must be feeling. What lymph nodes is it in on the opposite side?

Have you considered a second opinion and/or looking into clinical trials?

buttonsmachine · January 2018

Hi Laraz, I'm sorry to hear you have metastatic BC now. It does seem unusual that the cancer spread to the opposite side! Cancer behaves in such crazy ways, there's just no telling what it will do sometimes. I hope you are holding up as well as possible.

I got my biopsy results back, and I am now confirmed as having a second local recurrence - but they are sending me for another PET scan because mine is suspected to be metastatic too. Like you, I had a clear PET scan four months ago.

Hugs and best wishes to you while you process everything.

Laraz · February 2018

Auxillary Lymph nodes. I am so great full to have the Dr I have. I believe they are the best team in the country (they were my 2nd opinion) my Onc has being looking for clinical trials for me from the start. I live in South Africa

Robby05 · February 2018

hello

Am new to this community. This Is my first time sending a reply. Am so sorry to all going through these situations. I am recently diagnosed stage 4 metastatic breast cancer spread to the Longs I am triple negative and just got my foundation one test results back which suggest there are no treatments for this Form of aggressive cancer that I have. I progressed through taxol, had radiation that's when they found it in the lungs.they are looking for clinical trials for me but I don't qualify for Many and now I think I might have Mets to the skin. is there anybody in a similar situation. Any advise.

VL22 · February 2018

Hi Robby05 - I’m very sorry you have to be here. I wanted to reach out so you don’t feel alone. I would suggest you also go on the threads for metastatic BC - there is one for lung Mets and one for triple negative stage 4 - I’m sure those ladies will embrace you and can offer you the support and information you’re seeking.

Hugs.

aterry · February 2018

Hello Robby05, It's good advice for you to reach out to the threads that VL22 mentioned. Also, perhaps if you add the details of your diagnosis and your location to your profile, someone from your area will reply to discuss resources near you. I will keep you in my pocket.

TraceyLou · February 2018

Hi Laraz - i'm saddened to hear your news. cancer just sucks. I'm sure you're still getting your head around it all but you have already accomplished and beat so much. Keep that in mind you can do this! Sending lots of good wishes..

TraceyLou · February 2018

Hi - ugh i'm sorry to read this. I will keep my fingers and everything else crossed that PET comes back with better news. I hope you are holding up ok. Sending hugs your way..

DoubleBloom · February 2018

Laraz and Robby05,

I'm praying hard for both of you. Hoping that anything and everything will send the recurrence into the longest imanginable hibernation.

Angel23 · March 2018

Laraz, sorry about the cancer re surfacing again. Sending you positive vibes and prayers.

TNBC 2nd re occurance

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