Diagnosed with extensive DCIS with IDC at 31

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Nikki0828
Nikki0828 Member Posts: 3
edited February 2018 in Just Diagnosed

I don’t know what to do at this point. This all started with a little bleeding from my right nipple. After I had my mammogram last week they found multiple new areas of segmented heterogeneous calcifications throughout my right breast. None of this was there two years ago. I have heterogeneous dense breasts which makes things hard to see. I had two stereotactic biopsies Wednesday to test the easiest to reach areas. I got the call yesterday that showed extensive DCIS and IDC. they also found a 2mm mass that they are doing additional testing on. Luckily I got a breast mri as well. Since my mom died from breast cancer at 36 I am high risk. Unsure of staging or hormone involvement until the final pathology report comes back from my two biopsies. My MRI showed my left breast is clear but my right breast shows in addition to the areas biopsied there is a large area which the radiologist is sure is also cancer. It doesn’t look like there is muscle invasion or lymph node involvement. This whole process has been a nightmare including the way I’ve been treated by healthcare professionals. Little to no compassion from the radiologist when she told me I had cancer. As a nurse myself I would never talk to my patients that way. I have to meet with my surgeon on Thursday. I feel lost and that the world is falling apart. I have two small children. Just recently went back to school to pursue my masters in nursing for family nurse practitioner. That will obviously be put on the back burner. I watched my mom die from this. I don’t want to die too and leave my babies alone. I keep trying to rationalize with myself. Maybe they made a mistake. Maybe the pathology was accidentally switched with someone else’s. I was naive to think after my BRCA1&2 came back negative a few years ago I wouldn’t get breast cancer. Now here’s i am. I don’t know if anyone is reading this. I guess it’s like therapy for me

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  • arghh
    arghh Member Posts: 9
    edited February 2018

    I'm sorry I cannot help, but I just want to send <<HUGS>> and good luck on your upcoming results.

    I also have to say, having started to read posts on this site, please don't automatically put your life on hold. Maybe you can do what my friend did, use your nursing background and dx to reach out to others at some future point?

    I think there are also condition-specific forums that you could get help from, and read about others with your dx.

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  • bew66
    bew66 Member Posts: 81
    edited February 2018

    Nikki, I'm so sorry you are having to deal with this. It's just not fair. I have no advice to give you, just wanted to let you know that someone is reading this and sending kind thoughts your way. Hang in there! Everyone here says it gets better once you have all the info they can gather and you have a treatment plan in place. My heart is aching for you and your two little babes.

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  • ColleenS80
    ColleenS80 Member Posts: 271
    edited February 2018

    I’m so sorry. I was diagnosed on 1/12 with IDC and, although my tumor is small, I also just found out it is in my lymph nodes as well. I have a 9 year old and a 5 year old so I completely understand that fear. I’m having a pet scan Tuesday to look for metastasis, which is terrifying.

    I just wanted to say I have already learned it is a cycle of panic, calm, fear, empowerment, crying, laughing, etc. etc. The waiting is the worst, but as you find out more and more, you will feel more in control and ready to deal with what you find out.

    You and your family will be in my thoughts and prayers as you begin this journey that none of us want to take. <3


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  • Tibbs11
    Tibbs11 Member Posts: 6
    edited February 2018

    Nikki, I'm reading. Treatments are better today and we are finding cancer earlier, so your mom's story will not be your story.

    Your story will be one of courage, strength and victory. A positive attitude can make things easier, but a deep conviction, the absolute belief that you will beat this thing, well, that's gold. It's a difficult journey, but you will get to the end of it, and one day realize that you haven't thought about cancer once all day.

    Give yourself all the love you can. Hug yourself, be kind to yourself, forgive yourself. I will keep you in my thoughts and prayers.

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  • Falconer
    Falconer Member Posts: 1,192
    edited February 2018

    Nikki, I agree with Tibbs that treatments are better than when your mom was 36. I understand your fear; we all feel it. I'm sorry to hear you were treated poorly. Please feel confident in your breast surgeon and oncologist. You are not alone.

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited February 2018

    Nikki:

    We are reading this -- and we're here for you. I'm so sorry about your diagnosis. And I can only tell you, as a relative newbie myself, that the fear and what I felt was extreme anxiety lessen as you gain more information and develop a treatment plan. It's terrible that you have family history in play as well (my mother also had BC but is a survivor and currently doing well).

    Just hang in there and know that you are not alone. Come here to vent, ask questions, ETC. Lots of us have young children, too. We get it.

    {hugs}

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  • Nikki0828
    Nikki0828 Member Posts: 3
    edited February 2018

    Thank you all for your support and prayers. It’s encouraging to feel support and recieveadvice. I’m thankful for this website to know I’m not alone in this fight.

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