Radiation Simulation Questions

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Vera1966
Vera1966 Member Posts: 21

Could anyone possibly walk me through their experience of radiation simulation? I am concerned because I am being asked to do it just after my first chemo treatment. This seems strange to me, but the doctor felt that he could do a better assessment before chemo changed my breast. I am worried because I am somewhat nauseated and also have pain after the neulasta injection, plus I am mildly claustrophobic. How long do you have to lie still? How long are you in the CT scanner? How "contained" are you, did it trigger claustrophobia for anyone? How long does the whole process take? Thank you for any help.


Amy

Comments

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2018

    if chemo changes your breast, wouldn’t they need to redo the similation, or are they doing it to be sure they get the whole area. I would ask for clarification.

    I don’tRemember exactly how long it took, but I’d estimate an hour.

  • Vera1966
    Vera1966 Member Posts: 21
    edited February 2018

    I guess it had something to do with measuring the area for the boost as they are unsure how well that can be accessed. Maybe they will do an additional simulation afterwards. I don't know. Thanks for the feedback.

  • gb2115
    gb2115 Member Posts: 1,894
    edited February 2018

    I think maybe the port films they do right before the first treatment would at least verify correct treatment... right? I am surprised though that they want to do simulation so early. Maybe they will repeat after chemo to double check (I would hope so). I would ask the RO how they will know the treatment will still be effective with such early simulation. There has to be a way to verify it I am sure. Maybe the port films.

    My simulation was a brief CT scan, followed by getting tattoos placed. No claustrophobia, the CT was very open. It was fast too. Some women get molds made to hold them in position, that might take longer. I did not have molds...they just used the tattoos to line the beams up.

  • Vera1966
    Vera1966 Member Posts: 21
    edited February 2018

    Thanks gb2115. I'll have to ask a lot of questions tomorrow. I'm glad to hear that yours was brief. I don't think I can tolerate a long session right now.


  • sweetp6217
    sweetp6217 Member Posts: 365
    edited February 2018

    Sorry to piggy back on this important thread but what if I already got my tattoos and photos done, but want to change the plan to include two more lymph node locations? I just got a second opinion that recommends supraclavicular and internal mammory lymph node radiation treatment in addition to just the axillary and the breast.

    P.S. Treatments haven't begun yet.

    Amy, did your MO (medical oncologist) prescribe anti nausea pills? When I got chemo, they started me off with antinausea meds, and told me to take those pills (as prescribed) prior to times when I felt I might experience nausea. Also, for the pain, I tried (and my MO recommended it) taking claritin before treatments. Ask your MO though.

  • Katiejane777
    Katiejane777 Member Posts: 109
    edited February 2018

    It isn’t like a MRI machine it is a lot more open from memory. I shut my eyes a lot and go to my happy place in my head. (Bali) You are there for a while getting various scans, tattoos and measurements done. I’m sure if you warn the Radiation Therapists you are feeling nauseous they will be kind and do it as quickly as possible. I was a baby and cried all through my simulation. I think the whole cancer thing had just hit me hard that day and I had a lot of family stress (not cancer related) at the same time. It honestly has been fine since. Big hugs because cancer stuff is hard and confronting. You can get through this bit too though. X

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