awful dr visit!

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Bkmkmom
Bkmkmom Member Posts: 2
edited February 2018 in Not Diagnosed But Worried

hi all. A while back I noticed a lump on my left breast at the 9:00 position. I watched it for a few months and when I hadn't gone away I made an appointment with my dr. She sent me for mammogram and ultrasound that day. The results came back that they believe I have a benign mass with dense tissue and scan again in 4 months to compare. She decided to send me to a breast specialist as a precaution and it was an awful appointment. He hardly did an exam. Said I'm young (34) and healthy and he doesn't feel this mass?? He told me I can comeback back in 8-12 months to recheck if i want. I'm confsed that I, my husband, my dr and radiologists feel this lump and he made me feel crazy like I wasted his time. He also didn't want another scan. What do I do now?

Comments

  • Outfield
    Outfield Member Posts: 1,109
    edited February 2018

    I think your doctor did you no favor by sending you to the breast specialist with imaging that looked benign and a radiology recommendation to recheck in 4 months. That recommendation is really reassuring - if the radiologist thought it looked bad, you wouldn't be waiting 4 months. The 4 months gives you some follow-up because, even though the radiologist thinks the probability this is something serious is low, a follow-up is some insurance that if this one is the rare exception it will be caught, and also, secondarily, it keeps the issue on the burner as something for you to think about so that if it got larger you wouldn't be thinking "That's completely done with, it doesn't matter that it's 10x bigger" That's all entirely reasonable if something looks benign.

    This isn't the type of situation where a breast surgeon would want to be involved. Breast surgeons get involved when there's either a question of whether or not an excisional biopsy is needed, or if you know you have cancer. Recommendation for follow-up imaging in 4 months is pretty far from considering excisional biopsy. Basically, you did waste his time, but it wasn't your fault and it was really inappropriate for him to make you feel that way. The fault lies with the doctor who referred you, but it wouldn't be appropriate for the surgeon to make her feel bad about it either - what that would accomplish would be to make her wary of ever referring to him. There are ways he could have politely let her know he doesn't need to see people in this situation, thereby avoiding shaming anybody while educating her.

    I'd do the 4 month follow-up as originally recommended. Let your doctor know the breast specialist was a jerk.

  • wrenn
    wrenn Member Posts: 2,707
    edited February 2018

    Using the position of a clock to describe it makes me wonder if you are focusing too much on "cancer" and that is increasing your worry? The position is meaningless but is one used clinically in a cancer setting for clinicians to know where to look.

    I would get on with life and follow the advise to have it checked in 4 months.

    Peace. :-)

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited February 2018

    Just chiming in to agree with Outfield. Sounds like the referral was unnecessary but it's unfortunate the second doctor was cranky instead of calming. When you go back for the check-up I hope you can get more of your questions answered by your primary care physician or the radiologist. Getting copies of the mammogram and ultrasound reports may help also.

  • Bkmkmom
    Bkmkmom Member Posts: 2
    edited February 2018

    My mother and sister (at 26) have both had breast cancer so I think my dr was just being overly cautious in trying to make sure I was clear and trying to ease everyone's fears. Of course the thought of cancer arises when you have a new lump. Everybody person I've been in contact with so far has used the clock position so i just assumed that was the correct terminology. I'm glad to see that you think it's most likely nothing. I guess I was hoping this Page would help me decide what to do when there are two totally different opinions with the recheck. Thanks for the input

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited February 2018

    You're welcome and please don't worry about using the wrong terminology or expressing your fears here. We get it. and wish you the very best.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2018

    Have you been to see a genetic counselor? A family history of that early onset certainly warrants a visit in my opinion. They may recommend a high risk screening program. Also if your breasts are extremely dense an MRI should be up for discussion. Good luck. You are right to be your own best advocate.

  • Outfield
    Outfield Member Posts: 1,109
    edited February 2018

    Your family history does up the ante, I get that. Much more important than if you have had genetic testing, did your sister or your mother? If any one person in the family were to get testing, it would be much, much more useful for it to be one of them than for it to be you. That way, if they have something identifiable, any testing you might have could be focused.

    That rationale can be a little hard to follow, but it's what a genetic counselor would tell your family. If you are worried about having an increased risk because of your mother and your sister, and it turns out they have "X," then really your question is "Do I have "X" too?" not "Do I have any bad gene?" The "Do I have any bad gene?" question is the one a person starts with when they are the one who has cancer at a weirdly young age or has cancer and there's a lot of cancer in the family.

    If neither of them had genetic testing, or if nothing was found, then you need to talk with your doctor about what farmerlucy has mentioned - referral to someone who can help quantify your risk (much harder without a specific genetic problem identified) and/or you need to be screened using a high-risk protocol.

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited February 2018
    Your family history is significant and you should never feel that you are being dismissed. You, your mother and sister should all go to a genetic counselor. Remember, though that even if you come back with no BRCA genes, there may still be a genetic component that hasn’t been found yet. That is what the counselor told me after my sister had breast cancer and my father, pancreatic. Please keep us posted.
  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    Hello, I have had a similar experience. I had a rash over the summer just my left breast that felt like an itch I couldn’t reach. It was just a blush red all over, no bumps. It eventually went away after months of rubbing all sorts of different medicating creams on it. Then in September my family doc and I felt a weird thickened area on that same breast up at 1:00. U/s and mammo showed no area of concern. It is now February and the area now has become a hard lump that my doctor and I both can feel. He sent me to a surgeon (a pulmonologist ) and he said it doesn’t feel like a cancerous lump. He stated that an MRI would give so many false positives that he won’t do it . Can a doctor feel a lump and know it’s nothing ? The area has changed from the earlier diagnostic procedures. I’m concerned but also feel that the doctor was very dismissive and condescending.

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited February 2018
    Why were you sent to a pulmonologist and not a breast surgeon?
  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    peregrinelady I only found out he was a pulmonologist because I googled him. My doctor sent me to him. He said he wanted me to see a surgeon . I belong to an HMO and I don’t pick the doctor I see, they do. I really wish I would have been sent to a breast surgeon/doctor.

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited February 2018
    I’m sorry, that’s like sending someone with a broken leg to a gynecologist. Just doesn’t make sense. Do you have a family history of BC? Sometimes that will justify a MRI.
  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited February 2018

    get a second opinion

  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    I agree! I will be calling my family doctor and asking if I can see someone from gyn or a breast specialist. I definitely don’t want to se this doctor again. My maternal grandmother died of ovarian cancer and I have a cousin on my maternal side that has recently been diagnosed with breast cancer. But I have not done any genetic testing

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited February 2018

    Make sure every Dr. you talk to knows your family history and let us know what happens.
    Their age at diagnosis is important, as well, especially if they were younger than 50.
  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    Thank you so much for your responses, Peregrinelady, I am concerned and it helps to talk it out. My grandma was in her late 50’s and my cousin in her early 40’s. I will keep in touch :

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2018

    Bkmkmom

    Can you post the entire US report?

  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    I will ask for my own copy of it. I don’t have any of my medical records but I see I am going to have to request them all. I will post it when I get it. Thank you for the su

  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    djmammo,


    My records state:

    in 2012:
    TECHNIQUE: CC and MLO views of both breasts using Digital
    Mammography and CAD.

    FINDINGS: The breast tissue is heterogeneously dense. This may lower
    the sensitivity of mammography.

    BOTH BREASTS show normal parenchyma with no suspicious masses or
    secondary signs of malignancy.

    In 2013:

    DIGITAL BILATERAL SCREENING MAMMOGRAM WITH CAD

    FINDINGS:

    Images were acquired digitally. CAD program was utilized.

    The breast tissue is heterogeneously dense. This may lower the
    sensitivity of mammography.

    There are no dominant mass lesions or malignant appearing
    calcifications in either breast. No suspicious abnormality is
    identified.

    The left breast is unremarkable. On the right there is a developing
    nodule in the outer breast middle third seen best on the CC view but
    probably located inferiorly on the MLO view. 90degree lateral film,
    compression views, and possible ultrasound are suggested.


    Follow up Date: 12/16/2013 :

    Impression

    IMPRESSION: RIGHT BREAST: BI-RADS CATEGORY 3 - PROBABLY BENIGN
    FINDINGS.
    Recommend short-term follow-up with repeat study in 6 months.

    The findings and recommendations were discussed with the patient at
    the time of the exam. The patient has a skin rash at the right
    inferior breast for which clinical evaluation and treatment is
    recommended.

    POSITIVE ALERT

    The results of this study have been annotated as abnormal in EPIC,
    the patient's Group Health electronic medical record.
    Alert was placed due to presence of clinical concern/symptoms.

    Narrative

    [HST]: Rt add views + poss US

    HISTORY: Right breast density. The patient also has rash at the right
    inferior breast and is worried about inflammatory breast cancer.

    TECHNIQUE: Additional views of the right breast included 90 degree
    lateral view, rolled CC views and spot compression magnification
    views. Digital mammography was used. Right breast ultrasound was
    obtained.

    FINDINGS: There are scattered fibroglandular densities (approximately
    25-50% glandular).

    The previously noted. Asymmetry at the inferior right breast does not
    persist on the additional views, and therefore, represent parenchymal
    summation artifact. In the lateral mid breast, on the CC view, there
    is a persistent macro lobulated density measuring approximately 1 cm
    in greatest diameter. This is similar to the study of 7/30/12. Based
    on the rolled CC views it is positioned slightly superiorly.

    Ultrasound of the RIGHT breast in the lateral breast in the
    corresponding location and shows no sonographic abnormality.

    The findings are likely benign and may represent an intramammary
    lymph node. 6 month mammographic follow up is recommended with
    standard views.


    06/14:

    Rt 6mo f/u mammo[SAS]: due 6/14HISTORY: Six-month followup of right breastTECHNIQUE: CC and MLO views of the right breast using Digital Mammography and CAD.COMPARISON: 12/16/13, 11/23/13, 7/30/12, 8/7/08FINDINGS: There are scattered fibroglandular densities (approximately 25-50% glandular).The RIGHT breast shows normal parenchyma with no suspicious masses or secondary signs of malignancy.

    Then no mammos until:

    09/17:

    Narrative

    [HST]: left breast discomfort and area of thickened breast tissue at the upper outer quadrant with chronic inflammation of the skin on the breast

    HISTORY:left breast discomfort and area of thickened breast tissue at
    the upper outer quadrant with chronic inflammation of the skin on the
    breast

    TECHNIQUE:SYMPTO MAMMO BI , US BREAST UNIL /L.Diagnostic bilateral
    mammogram. CC and MLO views of both breasts were obtained with
    additional lateral and spot compression magnification views of the
    left breast. Images were acquired digitally. Left breast ultrasound
    was performed.

    COMPARISON:3/16/2016, 11/23/2013

    FINDINGS:There are scattered areas of fibroglandular density.

    The RIGHT breast shows normal parenchyma with no suspicious masses or
    secondary signs of malignancy.

    The LEFT breast shows normal parenchyma with no suspicious masses or
    secondary signs of malignancy. 2 triangular markers were placed over
    the 2 palpable areas of the left breast, upper-outer quadrant. No
    mammographic abnormalities are seen.

    Ultrasound of the LEFT breast was performed in the 2 areas of
    concern. At 1:00, 6 cm from the nipple, the breast is sonographically
    normal. At 1:00, 6 cm from the nipple, also the breast tissue appears
    normal.


    I realize that these results are very normal and good, it's just that I noticed after the last U/S Mammo, the thickening area became a lump. My doctor felt it too and that's why he sent me to the surgeon. The surgeon felt it and said it was nothing. Just normal lumpy breasts. So that's why I was asking if a doctor can tell just by feeling it. I am so embarrassed and felt like I was wasting his time. But I just can't shake this worried feeling. Thanks for listening and any comments in my behalf are so appreciated.


  • bcsharder
    bcsharder Member Posts: 7
    edited February 2018

    Also of course I'm sorry, I should have started my own board instead of writing on bkmkmom's post!!

  • ColoradoJT
    ColoradoJT Member Posts: 8
    edited February 2018

    You can also call your HMO or go onto their website to find a breast specialist that is in your network. Then when you go back to your GP/PCP, you can give the office the name of the person in your network. It shouldn't matter to your PCP office where you go, as long as it is covered by your insurance and has the right type of specialist.

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