Burnt Tongue Post Chemo

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bravepoint
bravepoint Member Posts: 404
edited February 2018 in Chemotherapy - Before, During, and After

I am closing in on 11 months PFC and still have a very sore tongue. It began to get a burnt feeling during Taxol. Any suggestions on what might help? I know some things that I eat aggravate it (bananas, salt, anything with vinegar) so I try to avoid those things. Last night, I had a pretty "tame" dinner and my tongue was killing me. I have tried rinsing with Biotene, baking soda and water but no relief.

Gail

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  • indahood
    indahood Member Posts: 152
    edited February 2018

    Soda water?

    hope that helps?

    laurie indahood

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited February 2018

    Have you had a Doc look at it? Maybe something simple like nystatin would help. I’m 3 years out and can’t eat anything spicy hot...pepper. My. Mouth used to break out in sores if I ate pecans.....now I can eat them

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  • bravepoint
    bravepoint Member Posts: 404
    edited February 2018

    Thanks, Indahood and Beatmom for your suggestions. Soda water helped during chemo when my tongue was sore but not any more. I'll be seeing my MO at the end of the month and will mention it. He's never sympathetic about anything so I doubt he'll say much. Certain foods do make it worse, bananas, anything salty, lime juice, vinegar. I'm trying to avoid those things and rinse with Biotene often.


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  • Bonnie7
    Bonnie7 Member Posts: 57
    edited February 2018

    Hi there,

    I too have had a painful tongue, sorry to tell you but from 2002, it started after radiotherapy and started tamoxifen, not sure whlch was the catalyst! It comes and goes, I did see numerous Doctors but honestly started to feel like a hypochondriac as they had no answers, pretty sure hormones play a part!

    I too will try the soda water, sorry I can't be more helpful! X

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  • bravepoint
    bravepoint Member Posts: 404
    edited February 2018

    Bonnie7 - Thanks. I started making a list of food that bother my tongue so to try avoid those things. It's getting longer.....

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