If you are not Stage IV but have questions, you may post here

Hope I'm posting in the right place. Went to dr today because I have a hard, movable, oblong knot on my right rib cage below my implant on nonBC side. It hurts. It is appropriate 1 & a half inches long by 3/4-1" wide. It feels like the original one I had on my left side that was BC. But it's movable. I've seen where women have had subcutaneous BC. Anyone here had it or signs or symptoms? Any info would be much appreciated!!

X-ray wasn't able to be read while I was there. She said I may need an ultrasound

GreenEyes-If it were me, I would get to my oncologist to have these symptoms thoroughly checked out.

Genny- thinking of you just now. The waiting game is horrible. May the force be with you as you wait for results.

TMMTN-glad you are getting the imaging. I wish there was a "forget" pill we all could take while waiting.

Best, MJH

greeneyes- my apologies, I see that you have been to MO and had a CT. You must be so frustrated. Easy for PCP to say wait til we try meds before neurology consult. Meanwhile you are in agony. Thoughts are with you. MJH

TNMTN- great! Now you can get more information towards resolution. Nice when MDs behave like good girls and boys! MJH

Thank you! I'm actually sitting in my drs office now to try to persuade her to just cut these things out to see what they are!

that would be great. I have a BIRADS 3 spot....I wish they would just confirm a 100%.

Hi Ladies,

For the last two years my gastro has been trying to figure out why my ca19-9 have been fluctuating. After many scans, upper/lower procedures, and eus's, it is not my liver or pancreas. I have thickening of the colon wall. Which would explain my severe nausea. My gastro told me 5 months ago, we've ruled everything out, now we're looking for cancer. So does this mean, no cancer at all since liver and pancreas are fine. Do mets travel to colon? He's ruled out diverticulitis, ibs ect.

Last Tuesday I had an eus and a cat scan. Now I'm scheduled for a colonoscopy next week.

Thank you

Michel

hi Michele, I am sorry you are gling through this. I dont have input but know others who mat have experience with this will be by soon. Im so glad your doctor is taking this all seriously and doing appropriate tests to determine what xould be wrong.

Good luck, I hope all goes well.

Pajim, gosh my last pet was 3 years ago. This has been a mystery for my onc and gastro. 2 years ago, I had an ultrasound and found I had gallstones. We thought forsure taking my gallbladder out would make my tm's go down. It has been a cat and mouse game.

My symptoms now are no appetite and nausea fits. They come out of nowhere and last 20 seconds. Nothing ever comes out, just very loud. The no appetite is a puzzler tho.

I always think those c cells are sneaky

Michele, I had to look up CA19-9. If that's what you're getting, it looks like it's a test for pancreatic cancer markers. Is that your understanding of it?

The tests commonly used for bc are CA27-29 and CA15-3, as well as CEA, which is also a marker for colon cancers. I would hope that one of your docs would check those as well.

I'm not familiar with thickening of the colon wall, but agree with Chrissy that nausea can be an early sign of a liver issue. I also had a friend who recently had gallbladder surgery, only to discover that the severe nausea that surgery didn't help was due to an infection they'd missed in the duct attached to the gallbladder -- not the gallbladder itself. In his case, very yellow skin was another sign that something wasn't right.

And if you haven't had a PET for 3 years, I would think that might be a logical screening tool at this point -- just to be sure everything is covered!

Good luck, and please keep us posted! Two years is a long time to go without a dx. Deanna

Genny-I'm not stage 4 but I have a pebble in top of my implant. MRI came back that it was nothing. Can you describe yours

Jumpship,it feels like a thumb is the best way I can describe it. The breast surgeon thinks it's nothing to worry about, she thinks maybe the alloderm shifted and scar tissue formed over it. I have the MRI on Wednesday and meet with her on Friday so I should have it all figured out by end of next week. I'm really not nervous about it anymore, decided there's just no point. 

pajim, I know what you mean, worrying is useless, just makes us tired. I'm getting better at not doing it.

Im asking for my wife.

She is currently stage 2b and all her scans except CT on her chest showed small nodules at the bottom of her lungs. The doctor and report didnt say they were suspicious but follow up is needed.

She just finished her 6 rounds FEC-D and follow up scan is next Monday.

Is there anyone else that had spots on their initial CT scan? If so, what were some of the characteristics of the spots did the doctors say made it suspicious. Our doctor just advised he didnt see anything else suspicious because if he did, he wouldn't have put her through FEC-D right off the bat.

Any info would be great.

Stage 2B Grade 3 Tumour

Hi Ryan,

I - too - had a nodule show up on my first CT. I've have a few CTs done to follow-up (to make sure it isnt really anything). And, it just stays there. Not bigger, not smaller. Just there. And, harmless. I've heard these are pretty common...and not unusual at all to have more than one.

Hope that helps! And, God Bless you for being such a wonderful support to your wife!!!

Hi girls, still waiting, had mri breast MRI yesterday, should hopefully get the answers today, see BS again tomorrow morning. Should have lots of answers before the weekend. I've been battling the flu/cold whatever the heck this crud is for over a week. Woke up this morning feeling like I've turned the corner, I still sound like a 13 year old boy but getting better. Knee replacement in 6 days, phew! Off to work. I'll keep in touch.