Just Diagnosed- IDC
Hello-
I was just diagnosed with IDC Nottingham grade 2 and have no idea what this means and I’m scared and confused. My GP just left the practice right before this all came up and they left me in the hands of a very new P.A. They referred me to a general surgeon that cannot see me for 2 weeks but not sure that’s the type of doctor I should be going too? And then to a breast center that cannot see me for 3 weeks. I had the mammogram mid December and biopsy 2 weeks ago and just got the results this past Monday.
I am very new to the area as I only moved here 2 years ago and have been to a dr 3 times since the move.
Any suggestions on what I should do?
Thanks
Comments
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There are a lot of knowledgable women on here who I'm sure will reply. I just wanted to let you know this is the hardest part. You have some information but not the full picture. Once you have everything and have a plan you will feel better. Grade 2 is in the middle. Three is the most agressive and one is the least so yours is in the middle, so is mine. You'll still need to find out the type (fueled by hormones or not). My first visit was also with a surgeon so you are on the right path. The waiting is awful. Ask lots of questions here, the women in this site are so helpful and supportive. Best of luck.
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Good morning TGM and I'm so sorry about your diagnosis. As OCDAmy points out, Nottingham 2 is not particularly aggressive and you have some time to learn and plan. My own suggestions would be:
Get a copy of your mammogram, ultrasound and/or biopsy reports. They should give you helpful info like size and ER status.
Research surgeons in your area who truly specialize in breast cancer. I don't think a general surgeon will know enough to help you talk through options. (Again, my personal opinion). I know waiting three weeks to get into the breast center seems long, but that's typical. If there's another hospital near you make that "second opinion" appointment now, while you're waiting.
This early part is the pits but we are here for you.
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tgm, welcome to Breastcancer.org,
We're so sorry to hear of your diagnosis, but we're really glad you found us. As you can already see, our Community is full of very helpful members always willing to lend some advice, support, or share their experience. We hope you come by often, ask lots of questions, and get the support you need as you navigate your diagnosis and treatment!
In the meantime, you may want to check out the main Breastcancer.org site's pages on Your Diagnosis, which helps you walk through what each piece of your pathology report (including hormone receptor status, and grade). Also, there's a helpful section on IDC - Invasive Ductal Carcinoma, which can explain this type of breast cancer. Also, there's a great IDC forum here too with lots of helpful members.
We hope this helps and we look forward to hearing more from you soon! We know the wait is terrible, so come back and chat with us. We're all here for you!
--The Mods
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I chose a breast surgeon; had to travel 1.5 hours to see him but well worth it. my tumor was near the chest wall and he was able to get clear margins of 1.5 mm so phew! didn't need more surgery. I don't think i would want a general surgeon unless he had lots of experience with breast cancer; however, depending on where you live you may not have a lot of choices. My grade too was 2. from the time of my diagnosis to surgery it was 9 weeks
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I just wanted to expand a little on what the other posters have mentioned. Your biopsy report has a lot of useful information and you should get a copy of it. From your tests and biopsy they have a good idea of the size on the tumor and whether any of the lymph nodes look positive. This could change during surgery but is a good guess right now. That determines what stage you are. So if you have a tumor like mine, 1.5 cm, no positive lymph nodes then you'd be stage 1.
Your hormone receptor status is listed - ER and PR, usually listed as percentages. They also tested to see if you are Her2 positive or negative. If you are Her2 positive then chemo will most likely be recommended, maybe even before surgery. Also, if you are ER/PR negative then chemo is recommended. If you are ER positive that's good because then you can take endocrine therapy, a really powerful drug to prevent recurrance.
If you don't have your written report then call your PA and find out all the things I mentioned above. The more information you have the easier it is to make decisions.
Like the others, I recommend having a breast specialist do the surgery. I just feel like someone who does this all day every day will do a better job. If you tumor is small the surgeon will most likely recommend lumpectomy plus radiation but if you prefer you can choose single or even double mastectomy, with or without reconstruction. That is for you to decide, whatever feels best for you. You can often skip radiation if you have a mastectomy so that is a good question to ask your dr.
I know you are super scared right now. We've all been there but I'm going to tell you what my dr told me: "you will be fine. This is just a bump in the road. A minor inconvenience. You will be fine". And you know what, she was right. Everything was way easier than I ever expected. Somehow we have a way of imagining the worst but that's not at all what happens. You'll have a rough couple of months but, no matter what, you'll get through
Please post when you get the information I listed above. We're not dr's but we've all been through it so can give you some more opinions on what to expect. Also, when you go to your appointments it's a good idea to take someone with you who can write down what the dr says. Your mind will likely be in overload and it's hard to remember all the important details.
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Thanks so much for the information. I received very limited information when I picked up my images and report and it doesn't have any of the numbers you mentioned. But I will definitely reach out and get those as they obviously are very important. I am going to reach out to my PA and get the full report as well as asking for an breast cancer specialist, that was one of my major concerns.
I will post again, once I have more informaiton. Thanks again for realing me back in, I will breathe for now
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Thanks for responding, I appreciated it so much.
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