Hair after taxol

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Tewks
Tewks Member Posts: 105

I have a rather unusual situation in that I had to skip the last of four A/C treatments because of the side effects, and then had only one taxol before my oncologist cancelled that too. My heart, neuropathy in both hands and feet, severe fatigue being the main concerns. Oh yea, my skin peeling off my hands and feet pretty badly too. ?

So now, with the last taxol on November 3, I still have only about 1/16" of hair visible in my head, sparse eyebrows and even sparser eyelashes. It's been almost 3 months and to me that seems an awfully long time for my hair to grow back. I know, everybody's different, but isn't this a little exaggerated ? I fully expected to give up the scarves by now if not the hot and dreaded wigs, but I still have a shiny bald head.

I start targeted Proton radiation next week and do hope it doesnt set this back further. I'm so impatient to look somewhat normal, even if I'm not.

All comments are welcome

Comments

  • avmom
    avmom Member Posts: 324
    edited January 2018

    Hi Tewks,

    I did dose dense AC -T, and my hair came out early. As I recall, it was at least three months after my last treatment before I had even a shadow of fuzz on my head, which sounds much the same as you. By six months post chemo, i had what looked like a cheap buzz cut, and occasionally went out with that “look”. I wore headcovers and scarves, mostly. I wore a wig for about a year, if I wanted to present myself “with hair” to the outside world. Others have their hair grow back much more quickly. I’m three years out from diagnosis now, and have a short haircut. My hair came back in a “patchy” way, and I still have some thin spots that show if I grow my hair longer than a pretty short style. There are still days that I wear a wig, if it is very cold. My hair isn’t really enough to keep my head warm, and it is soft and easily disturbed if I wear a warm hat, and having smashed down hair isn’t suitable for my job. If I am wearing a “hair hat” (wig),no one expects me to take it off, and frankly, the sensation of having shoulder length hair just feels right some days. I didn’t wear wigs much in the summer, but I do live in a cold climate, so that was a never a huge factor for me.

    I had no/sparse eyebrows for a long time, and I’m pretty good at filling them in with cosmetics. I never had thick eyebrows, so I think that’s pretty normal. My eyelashes did grow back, but slowly.

    It could take a while, but it sounds like you are on the way. Best wishes and gentle hugs as your rads start

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    If you're getting some growth (1/16") then I wouldn't sweat it. If I still had no growth at all, I'd start to wonder what was up. Hair tends to grow slower in the winter and faster in the summer. Others try Biotin, which you might look into. Just be sure that you clear it with your MO first.

    Good luck!

  • Misstic
    Misstic Member Posts: 115
    edited February 2018

    Hi Tewks,

    I've never heard that A/C and Taxol weekly regimen are bad for scalp. What dose of Taxol did you received ? It needs time to regrowth but hair come back. Here is my experience with the weekly regiment: I wore the cold caps and 80% of my hair remain on my scalp. After that I had a two months shedding leading me to 65/60% percent of my hair. Then a very quick regrowth.

    Taxotere is a complete another story because there is a risk of final damage to the follicules.

    I am pretty confident that your hair will regrowth.

  • Tewks
    Tewks Member Posts: 105
    edited February 2018

    Starting on September 8, I had 3 biweekly DD A/C infusions and cancelled the scheduled fourth treatment because of my severe reactions to the side effects. After a four week hiatus I had one Taxol treatment and that, too, caused a severe reaction. That last treatment was November 3.

    I start radiation next week, and will do that every day for six weeks, barring any bad reactions.

    Perhaps I'm just overly anxious to put this all behind me. I'm sick of wigs. But thank you all for the comments with your own knowledge/experiences.

    My next topic is looking for experiences/info on sugar cravings


  • Denise-G
    Denise-G Member Posts: 1,777
    edited February 2018

    Tewks - Your hair sounds like it is right on track. Some people just take awhile. I'm more concerned about your health.

    You don't say what your diagnosis is, but I did see your post on another page that said your toenails were discolored. That

    is pretty unusual for one Taxol treatment.

    Have you sought another opinion from an NCI Designated Hospital especially with what you are dealing with?




  • Tewks
    Tewks Member Posts: 105
    edited February 2018

    I was diagnosed in October of 2016 and took Femara until surgery in June of 2017. I had a single mastectomy and flap reconstruction. At that time my oncologist and surgeon said all cancer had been surgically removed. Trace cells were found in 2 of my six lymph nodes so I followed my oncologist's recommendation, to be on the safe side, and started DD A/C chemo on September 8. I had three biweekly infusions and severe reactions to each, at which time she stopped the chemo. I took a four week break and had one Taxol treatment on November 3, to which I also had a bad reaction. At that point she cancelled further chemo, told me to take a break again and start radiation after Mid January.

    With no existing tumors anywhere this seems to be a very reasonable treatment path to all doctors I've seen. Exactly why does this make you concerned? I'm at what's considered to be the top east coast cancer center and wouldn't have a clue who'd be any better to see for a second opinion. What exactly is a NCI Designated hospital? I've never heard of that.

    That I've had every side effect known to oncologists is unusual, yes, but my Dr has also told me that as unusual as I am, I'm still not bad enough to make it into any of her medical journal articles.

    Other than discolored nails, fatigue and very little hair I do feel quite healthy. I guess if there's bad news I'll find out with the bone scans after radiation. After radiation I'll resume the Femara, probably forever.


  • Denise-G
    Denise-G Member Posts: 1,777
    edited February 2018

    Okay, forgive me, I've never heard of anyone waiting so long to have surgery. Was there

    a reason to wait the 8 months? I am glad you are at a top east coast cancer center.

    An NCI Designated Cancer link is as follows to tell you where

    NCI Designated Cancer Centers are in the USA. If you are at a top east coast cancer center,

    it should be listed.

    https://www.cancer.gov/research/nci-role/cancer-ce...

    My concerns were that I had absolutely no idea of what your diagnosis was because it is

    not in your signature.

    Having been through my own Stage 3 diagnosis, the Stage 1 diagnosis of my mom, and the

    Stage 3 daignosis of my sister, I am always overly cautious to make sure patients are getting

    the appropriate care. I've heard so many shocking stories through the years.

    Sending my best to you for radiation.

  • Tewks
    Tewks Member Posts: 105
    edited February 2018

    Of course it's listed.

    8 months was the amount of time it took to diagnose, treat with hormones and schedule surgery

    Are you a health care professional?

  • CBK
    CBK Member Posts: 611
    edited February 2018

    Tewks-

    I’m curious, did your hair thin on femora? I’m wondering if it could have something to do with slower growth with hormone shift and all? Maybe ask Doc that?

    I just did all the things that are posted on Hair, Hair Hair Boards. Biotin 5000 mcg I started taking once I started taxol infusions. Washed with Nizoral and a gentle organic hair thickening shampoo. Rubbed my cueball head and eyebrows that were not there with castor oil and added in B complex vitamins.

    And then I eat all the hair growth foods I possibly can!

    I’m 8 weeks PFC and I certainly don’t anticipate going without a wig anytime soon, but have maybe 1/2 inch to an inch of hair now. It’s not consistent throughout my head. Started growing more toward back at first. Im sprouting sideburns this week, Ha

  • Tewks
    Tewks Member Posts: 105
    edited February 2018

    CBK -

    Nope, no thinning on Femara but what I’m beginning to understand is that “everyone is different.”

    Glad for you that all your efforts have paid off. And I hope you’re having good healthy results overall.

    Thanks

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