Bone Mets Thread

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  • Minnie31
    Minnie31 Member Posts: 501
    edited January 2018

    Thank you Lita57. Had a feeling it was nerve. Will talk to Dr.

    Thank God for all you knowledgable ladies out there

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  • Minnie31
    Minnie31 Member Posts: 501
    edited January 2018

    Thank you Lita57. Had a feeling it was nerve. Will talk to Dr.

    Thank God for all you knowledgable ladies out there

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  • bigbhome
    bigbhome Member Posts: 840
    edited January 2018

    I just want Aurora to know that I am thinking of her and praying for her and her family.

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  • SheliaMarie
    SheliaMarie Member Posts: 302
    edited January 2018

    The thing is, I’m only on an AI and endocrine therapy. No chemo. Think these will help with lymph node mets, too

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  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2018

    Lynne, thank you for letting us know about Aurora. Please add me to her list of sincerely caring well-wishers. She's in my prayers.

    Raisin, I too was in absolute agony when first dx'd with diffuse and extensive bone mets. Multiple pain meds, lidocaine patches, constant heating pad. Some of my pain was due to undx'd fractures -- first rib (dx'd w/PET scan); then femur & pelvis that were eventually dx'd when the pain became unbearable. Those required surgery. But my all over burning and aching pain got so much better after my first line tx, which was Anastrozole, kicked in. And when I had progression on that med and was suddenly in a lot of pain again, my next regimen, Faslodex + Ibrance, thankfully made a huge difference. So don't despair or feel like the pain you're experiencing is part of the process and will only get worse. But you need to be sure you don't have any undx'd fractures, and hopefully whatever tx you're on will address the rest of the pain. In the meantime, be sure you are taking your pain meds as RX'd. If you are waiting for the pain to resurface, you're waiting too long. You need to stay ahead of the pain. And if the whatever pain meds you're on aren't working, ask to try something different. We all react differently to pain meds, and sometimes it takes the expertise of a palliative care doc (over an onc) to figure out your needs and get you relief. Don't be afraid to ask for additional help.

    Hugs to all ~ Deanna

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  • SheliaMarie
    SheliaMarie Member Posts: 302
    edited February 2018

    Just wanted to share this poem written by my daughter in her marketing class. They had to “brand” themselve...

    “I Am a Brand”

    By C. Wess

    I am not who you think

    Or who I think either

    Sure, I'm a girl, a classmate, a believer

    A sister, a friend, I have all this to offer

    But mainly who I am is simply my mother's daughter

    See, I was raised by a woman

    Who was strong, and independent

    Caring, hardworking

    Who held no resentment

    She's struggled, and overcame

    The most gracious of all dancers

    The calm before the storm

    And then there came cancer

    I was in fifth grade

    And didn't really understand

    Why mama was always sleeping

    Or why people were always asking how I am

    The doctor's office quickly became a second home

    Her hair, her happiness, her good spirit

    It was all gone

    But that only lasted a year

    And it's okay because she won

    The battle of her life,

    Thankfully the cancer was done

    8 years went by and I grew up

    almost forgetting that year of my life

    my mom went back to being my mom

    and everything just seemed right

    I grew up and my mom

    Easily became my best friend

    I don't say that lightly,

    Because she was truly a godsend

    My foolish mistakes, the worst of all days

    She always made me feel better

    And I grew up knowing that there was sincerely

    Nothing that me and my mom couldn't weather

    Well in May of last year,

    We kind of hit a slump

    Mother's day was the day

    that she told me that she found another lump

    And I was frozen in that moment

    Because I'm old enough to understand

    That when cancer takes a second round,

    There's no hope, it really is the end

    This woman spent 20 years living her life for me

    And I'll spend the remainder living mine for her

    So you may see a classmate, maybe even a friend

    But when I look in the mirror, I see my mother's daughter

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  • Micmel
    Micmel Member Posts: 9,450
    edited February 2018

    Gulp! Sigh! Just had a good cry. So true. So sad. I hate cancer. So very much. I Don't post much here these days, but that poem drew me in. I very much read poetry. Thank you for sharing. ~M~

    Found out today my daughter is getting married and that poem hit me really hard. Especially today wow! What timing. 😢

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  • zarovka
    zarovka Member Posts: 3,607
    edited February 2018

    crying.no words.

    Z

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  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited February 2018

    Beautiful poem!

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  • theresa45
    theresa45 Member Posts: 314
    edited February 2018

    What a beautiful, beautiful poem! My daughter was in 6th grade when I was diagnosed and left for university the month I learned I was Stage IV. I'm crying, but feeling so very grateful for my daughter and for yours. Theresa

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  • babs6287
    babs6287 Member Posts: 2,021
    edited February 2018

    There are no words! I lost my mom to bc when she was 42 and I was 19. She only lived 1 1/2 years after her diagnosis. I am 5 years since dx of bc and 3 1/2 stage IV. All I want is to be here for my dtr so she doesn’t have to miss me during the most important times of her life. I’ve made 3 that my mom missed- college graduation marriage and 1 st baby. Just hoping and praying to make many more for her!

    Babs

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  • Lita57
    Lita57 Member Posts: 2,437
    edited February 2018

    Wonderful poem.

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited February 2018

    beautiful poem. That could be published

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  • Minnie31
    Minnie31 Member Posts: 501
    edited February 2018

    says it all. Wonderful

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  • JoynerL
    JoynerL Member Posts: 1,393
    edited February 2018

    Lovely, Swess....go hug your child (again)...

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  • Leapfrog
    Leapfrog Member Posts: 464
    edited February 2018

    Hi all, I've had the results from my scans and the CT scan shows that, after a year of treatment with Ibrance and Letrozole, my organs are still clear. The bone scan is still showing stable disease so I'm delighted. Regression would have been better but stable is good enough for me. My oncologist was obviously a little bit disappointed but he reminded (himself mainly, I think!) that I do have a lot of disease in my bones and that Ibrance/Letrozole is a slow acting treatment regime. But I'm happy. I can go about my life and wait for the next scan in three months.

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  • MargaritaMS
    MargaritaMS Member Posts: 199
    edited February 2018

    What a beautiful poem, Swess. Thank you for sharing.

    Leapfrog, stable is good! Especially with the news that organs are clear. Yay

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  • MJHJAN1014
    MJHJAN1014 Member Posts: 708
    edited February 2018

    Wow-just an amazing poem -MJH

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited February 2018

    Swess, I have no words except beautiful and touching. Thank you for sharing

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  • Lindalou
    Lindalou Member Posts: 647
    edited February 2018

    Beautiful poem, and what a special connection you share with your daughter.


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  • Maire67
    Maire67 Member Posts: 768
    edited February 2018

    Swess, what an amazing young woman to write this poem. It touches my soul that such wisdom exists in the next generation. It brought tears to my eyes. Blessings to you both.

    Leapfrog. Great news. Stable is a good word.

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  • zarovka
    zarovka Member Posts: 3,607
    edited February 2018

    Leapfrog - I am so happy to hear your news. You are doing great! Here's to many more stable scans ...

    >Z<

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  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2018

    Swess, your daughter's poem is amazing! Thank you so much for sharing it.

    Leapfrog, wonderful news! So happy for you!

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  • Iwrite
    Iwrite Member Posts: 870
    edited February 2018

    Wow...that poem! Thank you Swess!

    Great news Leapfrog

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  • babs6287
    babs6287 Member Posts: 2,021
    edited February 2018

    Happy to hear your great news Leapfrog!!!!

    Babs

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  • Jaylea
    Jaylea Member Posts: 478
    edited February 2018

    Leapfrog, wow! One year under your belt, let's go for another one. I think 2018 is your year.

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  • Grannyof3
    Grannyof3 Member Posts: 36
    edited February 2018

    Swess, what a beautiful poem. It brought tears to my eyes.

    Great news leapfrog! Stable is always good news

    Micmel, congrats on your daughters engagement.

    May we all be around long enough to celebrate many more milestones

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  • Leapfrog
    Leapfrog Member Posts: 464
    edited February 2018

    Swess.....I missed seeing your poem last night. Thank you for sharing those beautiful words. So poignant, so true.....

    Thanks everyone. You really are amazing, as always. We all understand how much it means to us to be told that our disease is stable

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  • IntoLight
    IntoLight Member Posts: 1,701
    edited February 2018

    Swess, beautiful poem. Says it all...

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited February 2018

    leapfrog, wonderful news!

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