How Much to Share with People in Your Life

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32B
32B Member Posts: 238

Hi Everybody,

gly supportive group of coworkers. I recently received my DCIS diagnosis and went out of my way to tell my coworkers that this was Stage 0, extremely good prognosis, all the "good" things about DCIS. It's a small office and hard to hide the fact that I'd been to a lot of recent doctor appointments, so I wanted to be honest and make sure everyone knew not to worry too much.

Now that's it's looking likely that I will need an MX, people who are trying to be nice are very surprised that I would need such major surgery for such an early stage cancer, and asking a lot of questions about it. As I'm sure you all know, it's hard enough to wrap my own head around this, do my research, ask the right questions from my doctors, and discuss it with close friends and family.

Has anyone else dealt with well meaning but nosy acquaintances? I am very lucky to have people in my life who are concerned and trying to help, but sometimes just accepting the information I'm offering and then letting me get back to work would be the best thing.

Anyone have similar experiences or tips?

Thank you all! This forum has been so helpful! I'm very grateful that I found it.

Comments

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited January 2018

    Hi 32B. First of all, sorry you are here but I'm glad that you are feeling good about your surgery choice and your prognosis. Depending on the size of your office and how much you want to share going forward, I can think of a few options:

    • Answer questions with "Unfortunately the cancer was in a larger area than I thought at first. I'm still dealing with it myself." Then follow any other lines of questioning with "I'm still grappling with this so have nothing else to share...but I think the client needs will be taken care of [or some other strictly work-related topic]."
    • Appoint a spokesman. That's what two women I work with did. Have that person tell everyone that you are dealing with a lot, and she will take questions, offers to help, etc on your behalf.
    • Send an email. Make it short and to the point, with a business purpose upfront. Tell them only pertinent items like when you'll be out for surgery, and ask them straight up not to ask you to talk about your health in the office.

    Best of luck to you.

  • 32B
    32B Member Posts: 238
    edited January 2018

    Thank you! These are great tips!

  • kaywrite
    kaywrite Member Posts: 219
    edited January 2018

    Hi 32B - I've had the same experience. Very early on (which is not that long ago) I decided I would not make my diagnosis general-public, including work, until I had a pathology report in hand. That will be this Friday. If I need radiation every day for three weeks, for example, I'll have something concrete to say. So until then, I've been selective about who I tell, always offering that it is Stage 0, that it is the best bad news one can get where breast cancer is concerned, and I'll be sure to update them when I have something to say. What I will add, though, is that it is important to distance yourself from people who think this is the end of the world. I was very careful who I shared this with, knowing I'd need moral support. A couple of friends were morbidly upset and I felt like I had to spend too much time assuring THEM that everything was going to be ok. This is not helpful or supportive or where I want to spend my energy.The people in my circle know this is not a secret, but until I have more info I will not share it - and they should behave accordingly. Of course the husband of one of them just randomly wished me a good pathology report on FACEBOOK, causing a flurry of WTFs. Anyway, mostly I want to encourage you to become your own best advocate and not worry about how other people feel about your cancer right now.

    And, I fully agree with Georgia1, upstream.

    Best of luck.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2018

    Dear kaywrite,

    Welcome to the community. We are glad that you reached out to our members to share your story. We hope that you will stay connected here and keep us posted on how things go for you. The Mods

  • 32B
    32B Member Posts: 238
    edited January 2018

    Thank you. Yikes! The guy who said something on Facebook! What was he thinking??

    Good luck on Friday! I hope you need as minimal treatment as possible and can get back to your normal life!

  • kaywrite
    kaywrite Member Posts: 219
    edited January 2018

    Thank you both 32B and mods - I'm nervous about Friday, but ready. I think. Re the public blunder: I know, right? It was a well-intentioned comment, but in a completely unrelated post about a dinner party. Just not well thought out. He was sorry.

  • Okkate75
    Okkate75 Member Posts: 151
    edited January 2018

    I've told everyone and gotten great support at the office and in my community. Being open about it has been great--I'm really lucky for that. That said, I can totally get wanting to keep it private--it's private! I appointed one close friend/co-worker who has done all the big communication for me to everyone, and that's been amazing. Everyone should have an Amy (my work friend) in their lives! Good luck with surgery!

  • 32B
    32B Member Posts: 238
    edited February 2018

    Thanks for the tip, okkate. Things have gotten better at work. I'm in a better emotional place now to talk about it, which is helpful. Best wishes to you in your ongoing treatment!

  • amygil81
    amygil81 Member Posts: 165
    edited February 2018

    I tell people the short version of what my surgeon told me: I had a very early form of breast cancer. But it was in several places, so they had to remove my entire breast. No, I didn't have reconstruction; my left breast is fake now. That's usually enough for BC civilians. Best wishes for a speedy recovery.

  • 32B
    32B Member Posts: 238
    edited February 2018

    Thank you for the tips. And congratulations on being done with treatment for so long. Stay cancer free!

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