Provide feedback/advice about our site and campaigns?!

so what is phase one? What is being thought of about phase one. Every mod response to someone is the same thing. I too think with all these ads that i dont remember seeing when i was a lurker 3 years ago that this is going in a direction we won't like. Who are the user testers? Are they really bco members?

We, the users, are Breastcancer.org. We provide the daily updates, the support, the energy, the time to care for others going through breast cancer. I think there are way too many forums, which can get people lost. Threads are kept in the forums that they should be in, but Stages could be Stage I, II, and III, with a separate Stage IV. I too think that MBC plastered over the pages of this site, scares alot of women, and some are very young. Personally, I think showing that women live active lives, even during diagnosis, surgery and treatment, is a far better message than showing the most vulerable. This site probably has scared away women who could contribute, but the imagery is just too much. There is more than one face of breast cancer, and we are strong, resourceful, independent, and fierce. We are not "Brave" "Couragous" "Fought the Good Fight" like the slogans like to brand us. We are street fighters, boxers, and MMA. We do not need a website that controls us, but empowers us.

I do think there are forums that require more than a general password, to keep out nosy curiosity seeking individuals. I also think that a person should be a member for several months, before they can access the entire site. Users should earn points for their posts, and be granted their own blogs and moderator positions, where possible. I don't think our messages between each other should be monitored. Messages should be private.

Perhaps I should not chime in here not having read the proposed changes but I am a privacy freak due to recent events. In hindsight I shared way more than I should have on such a public site, but early on I was naïve, venerable and scared and never fully realized the ramifications. Going forward I am far more careful of what I divulge and share, but what totally unnerved me was when I made a random Google search and one of my posts popped up on the world wide web for all eyes to see.

Our member's posts go back many years and are never purged. What purpose does an old treatment plans serve with this ever changing science of BC. Doesn't that just lead to confusion and misinformation being disseminated? In that regard I find the "Search" a disservice.

I will also add that I now censor my post knowing that anything I post will be hanging here for all eternity and all can view (members or not). I am becoming a lurker at best and not a contributor. I have wondered if those beautiful women that were so hopeful, warriors and bound and determined to win their fight and died, are their posts at least deleted or can the world peer into their lives like a soap opera or a train wreck? I never had the balls to check.

My thoughts... this is a great site if you want to stay current on the latest science yet know enough to stay away from the "search" and rather make a new forum. As to sharing anything from the heart, anything personal,....know that you are exposed forever.

My thoughts, going with the myth that after 5 years we are "cured" can BCO do the same and purge our old outdated posts after 5 years? They serve no logical purpose except to make the site look good with numbers but at our expense.

UPDATE: I googled my Breastcancer.org name, Michelle_in_Cornland, and found that it had been appropriated. The following is the result of my search. It seems that some of the things that I wrote on here, became tag lines for porn. You be the judge.... should my alternative name be Michelle_in_Pornland??? Even more reason to make our posts private.

Breast Cancer Forum: Hormonal Therapy - Before, During and After

https://community.breastcancer.org/forum/78

Skin Deep - Youthful skin and nails while on Tamox and AI's. 16 Posts 247 Views. Created by:Michelle_in_cornland on Jan 20, 2018 05:55PM. Latest post: 2 hours ago by Michelle_in_cornland ...

Breast Cancer Forum: Emotional Crises: Anxiety, Depression & Other ...

https://community.breastcancer.org/forum/102

Mammoversaries // Cancerversaries. 37 Posts 536 Views. Created by: Michelle_in_cornland on Jul 30, 2017 01:30AM. Latest post: Jan 24, 2018 01:50PM by Oceanbum ...

Breast Cancer Forum: Hormonal Therapy - Before, During and After ...

https://community-heroku.breastcancer.org/forum/78Uplifting and Lively Messages. No holds barred.. 824 Posts 9,272 Views. Created by:Michelle_in_cornland on Dec 12, 2016 01:06AM. Latest post: 3 hours ago by Claire_in_Seattle ...

Femara days 610. Awesomepitcher.ga

awesomepitcher.ga/mietrajil/femara-days-610124.phpMichelle_in_cornland. Hyaluronidase Glycoproteins. The COC states that low dose rate brachytherapy is usually given over several days as an. T have a chance these days in this economic climate, he says. Prolatis drive ingredients. M afraid independent traders on the high street don. Five animals developed a red vaginal ...

Porn version of google - Naked women and girls

https://thetraderr.ga/forum/78/topics/859659katie holmes nude photos thick puerto rican pussy 20 hours ago free 69 sex videosMichelle_in_cornland wrote: party in the nude How old are you? Your doctor will probably not prescribe birth control for you ever again, since you were hormonally positive. Will you be taking an anti hormonal - Tamoxifen, etc.? As for the ...

Big ass milf sex - Naked women and girls

https://thetraderr.ga/forum/6/topics/852739nude mature women photos naked black body builders Feb 21, 2017 11:30AM black teen gangbang tubeMichelle_in_cornland wrote: pam anderson sex pics She may need space and time to heal, both physically and mentally. That process is something that you cannot help with, it is instinctual and internal. Since you ...

Naked jessica biel pictures - Naked women and girls

https://thetraderr.ga/forum/102/topics/857447?page=2

michael jackson had sex best porn free movie Aug 30, 2017 08:32AM hip hop porn clipsMichelle_in_cornland wrote: free xxx sex vid Trish, we completely understand. Just having the diagnosis said to you is irreversible. We all feel something around the time of year, days of mammogram, days of diagnosis, day of surgery, ...

Japanese strap on sex - Naked women and girls

https://pavrodies.ga/forum/5/topics/860105

Nov 13, 2017 - the pussy cat dolls miss california poses nude Nov 13, 2017 06:41PM pix of naked girlsMichelle_in_cornland wrote: mass effect 2 sex Your nodes look good, and that is something to hang onto right now. The rest they won't know until biopsy and surgery. We have all been in your shoes and will be here for ...

Play boy porn sex - Naked women and girls

https://pavrodies.ga/forum/78/topics/859659

mark's bookmark free porn brother sister porn movies Oct 25, 2017 05:47AM eliza dushku sex picsMichelle_in_cornland wrote: top tranny porn stars How old are you? Your doctor will probably not prescribe birth control for you ever again, since you were hormonally positive. Will you be taking an anti hormonal - Tamoxifen, ...

Patient talks about Psychologist and Frequent Urination | Treato

https://treato.com › Conditions › Frequent Urination

Michelle_in_cornland I'll probably just wait until I go back to the states (in early March) to see a psychologists. ...It will be next to impossible here without traveling for 2 hours (public..." Comment Helpful? Save ...

NotBroken, you are absolutely correct. I have googled some catch phrases in my postings, and they have come up for all to see. But, I knew that when posting. I am hoping that someone, one day, who needs "see" to the days of the life of Tamoxifen patient, can read my thread. I have had several people write to me and let me know that my Uplifting and Lively Messages in the Hormonal Forum, gave them hope of living a full life while taking the medication. After five years of posting, I might feel different. But you made some excellent points.

Thank you Moderators, for letting us know that someone is reading our posts in this thread!!

Michelle, I am so sorry that is happening to you and your posts. I don't think I want to try to google myself!!! That is partly why these unknown changes in the BCO website are such a huge concern. BCO tells us they want to incorporate their medical content with our threads which appears to me that we will experience more invasion of our privacy, targeting, and tracking, perhaps not only on this site, but from the predators on the Internet. We need to work with BCO to improve privacy not enhance the web's ability to use us. Now this is frightening!!!

BCO, it's full disclosure time!!

I think the site works perfect and it very important to so many of us. Why do you feel the need to change anything? I don't want to be tracked! You will be doing a big disservice to turn this website into a complicated forum that is not needed,

All websites and their users are more or less prey for internet predators, and for the owners of those sites with forums, it's a constant battle to keep out spammy posters and others looking to hack the code. And all website owners have access to very keystroke placed on their sites. Of course, search engines like Google know everything you do on the internet, including what you post and where you post it, as well as your search history. They will also publicly index forum content based on appropriate search terms. Community members here need to balance their privacy concerns with their desire to give or receive help, and to socialise, support friends, and share information.

Concerning ads on the site, the only ads I see are BCO ads. Obviously, while Outbrain has been contracted to monetise the site in the US, they are not showing them in all other countries. Outbrain would be using the keystrokes of people here to determine what they are interested in and therefore what ads would be displayed to them. As to the appropriateness of the ads, it's up to BCO to give Outbrain some guidance as to which ads should appear where.

I do remember the Outbrain fuss on BCO a couple of years ago, and I believe ads were subsequently removed from the forums due to continued protests and due to the disparate nature of posts as far as determining suitable advertising content went.

Perhaps management could outline here their plans for advertising on the new site.

I think old posts should be locked, but not purged.

Older posts provide an important history, both for individual diagnoses and treatment plans, in cases where someone returns after a number of years, and to show the advancement of treatments and how protocols have changed. I dig into old posts all the time to find information.

And some of the information is still relevant, particularly those threads that refer to dealing with issues related to breast cancer, rather than being specifically about treatments.

For those of us who have lost friends from this board, deleting their conversations and wiping them away, would be painful. That said, if there is a way to remove old posts from public Google searches, that would be good.

Edited to add:

Here's how to do it. Create an Archive and put all posts older than X years into the Archive. Do not make the Archive available to Google searches. Within the discussion board Search function, don't include Archive posts within the current "Search" but create a separate "Search Archive" function so that newbies won't accidently re-activate old posts, but those of us specifically looking for old posts will be able to find them.

I think that viewers should have to be "signed in" to view any content on here. It should not be a free for all, with all of our posts.

Traveltext, then what does stop search engines? Anything?

To step away from the privacy issue (interesting and important as they are), I'd like to respond to this goal:

"3. Integrate the medically-reviewed and community-generated content into one cohesive experience
We want to encourage more of the visitors to our site to register to join our community so they benefit from both medical and patient expert points of view. Likewise, we want more of our community members to have access to our expert content."

1) Visitors can already benefit from both the medical and "patient experts" point of view. There is nothing at this time dictating otherwise. Changes to the site may LEAD more people to do so, of course. I am concerned however that not infrequently there are outright erroneous statements made by community members, statements that may contradict what's seen in the main pages. I sort of cringe at the idea of actually leading neophytes to some of these statements.

Yet some of our members provide deeply informed and considered insights and analysis, often much better than the information on the same topic that might be found (if at all) on the main site. How are neophytes to distinguish between what's reliable and what's not? Intermingling posts and the main site to create "one cohesive experience" may lead to certain amount of confusion. Doing so could, conceivably, also create some liability for BCO.

At the same time, much of the stock content on the main site is, in my opinion, pretty simplistic and much of it does not reflect the latest information. Some of the Ask the Expert posts are, as I recall, over a decade old and are pretty stale. I really see the need for both more advanced information AND updating on the main site.

2) Members DO currently have access to the expert content. It's not an either or situation. Again, I think much of that content could be stronger. Offering an option for advanced info on a topic might be helpful.

Our private messages are not private? Then why in god's name are they misleadingly called private messages? That's insane. They should be called, 'we can open your mail and read it even though we would go to jail for that in the real world', messages.

As for old posts being nuked into oblivion. Hmm. I vote no. Here's why. Google searches brought up old posts that time and again brought me here. And back here. And oh look, here I am on BC.ORG yet again. A trail of crumbs kept leading me back to this site until I checked it out in its entirety and was BLOWN AWAY by the vast collection of breast cancer voices. I feel there is HUGE value in old posts. If you are of a mind to do your own research and gather your own statistics and form opinions based on what you read in people's bios, how many posts they made, what their last posts were about ... you can get a feel for subjects that might concern you. I think deleting old content is erasing the voices that may yet have something to give. It also skews information by removing outcomes based on older treatments. We need to know where we're going but we al so need to know where we've been. Rewriting history by editing it is for dictators and lunatics.

I agree with those who said that switching up the look of a forum can turn people off in droves. I have seen it happen countless times. Make it miserable and you won't have to delete content, you'll be machine gunning your own members.

Melissa Moderator, I got the feeling when reading your last post that this is a done deal. That no matter who says what, no matter how PLAINLY AND CLEARLY you are being 'zoomed' here, you have no intention on responding to any of this. I would also like to know numbers. You say you these changes are in response to members asking for changes. How many members out of the total? Were these long term members or people who flew in and flew out with 3 or 4 posts? Were they actual breast cancer patients or planted posts by vested interests? Are these requests for changes and upgrades public? Were they posts that someone made, in a thread, on the site? Or were they private messages asking for forum upgrades? If they were posted in threads, can you please provide links to the threads? If they were private messages, can you please make them public, since private messages are, apparently, not actually private.

Agree with BarredOwl on this. Plus, it's not an efficient or organised way to get feedback. Why run a video conference, which even with a big boost in publicity will only attract tens of people rather than thousands. You can easily survey all 192,000 of us with a survey form that asks direct questions and solicits suggestions. I'm guessing you are going shock, horror at the thought of process all those replies, but modern survey apps do all the collation for you. And, since a 10 percent response is considered good, the job would be manageable. The most commonly used survey app is SurveyMonkey.