2017 Diagnosed-- A Place To Share "What's Next"

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Joy, I love it! Your daughter looks ecstatic! I would be, too. Enjoy! Should be GREAT therapy!

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Felix looks so cute, just want to kiss that little puppy. We should have pet picture day!

    Finished my radiation... woot woot!!! OMG, what a journey! Now I’m jumping on the AI wagon in couple weeks. Please be gentle to me please.


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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited January 2018

    paulettek- Congrats on finishing rads.

    Look at what you have made it thru.... a warrior!

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited January 2018
    Congrats Paulette!!
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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited January 2018

    Congrats Paulette!!

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Thank you everyone, we all be a team to kick Cancer out the door.

    image

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  • TaRenee
    TaRenee Member Posts: 464
    edited January 2018

    Congrats Paulette!

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  • PeachyJeanne
    PeachyJeanne Member Posts: 161
    edited January 2018

    Yay Paulette! You did it!!!

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  • Annbee
    Annbee Member Posts: 208
    edited January 2018

    congratulations Paulette!

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  • Castigame
    Castigame Member Posts: 752
    edited January 2018

    Congrats Paulette!

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited January 2018

    Peachy:

    I haven't used those for scars but have read good reviews. My derm suggested BioCorneum. Got it on Amazon. Not super cheap but lasts a long time. (Liquid silicon.) I used on my lymph node scars and it looks pretty darn good. Using on BMX/Exchange scars now (under breast/IMF fold).

    My PS said silicon sheets work, BTW.

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  • 53nancy
    53nancy Member Posts: 497
    edited January 2018

    Joyseeker, what a sweetie! Give Felix a pat from me.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Paulette, Mic drop - you are done, girl! Woot!

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  • Joyseeker
    Joyseeker Member Posts: 312
    edited January 2018

    I would highly recommend puppy therapy. Hard to be stressed with a cutie curling up next to you. Gives me purpose and gets me off the couch. Got my Rads consult dat. Feb 6. They will do it all in one day. Mapping. Simulation. I will be going to Calgary (boo) instead of Lethbridge. An hour and a half further. But now I’m going to take Felix with me 💜

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    DodgersGirl, I have a question about green tea, do you still apply green tea to your skin after you finished radiation? If you do, how long should we continue?

    Thank you!

    Kim, it is about time to finish this treatment, it has been long journey. Thank you.


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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited January 2018

    paulettek—. Is your skin still hot or red? As long as the skin is intact but hot/red, I would do the tea for awhile after rads. I had to stop the tea because of the skin breaking down from bolus but I did continue with aquaphor and calendula for 2-3 weeks after rads. My skin is just tan now. Doesn’t look like it’s been thru the ringer at all

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    DodgersGirl, my skin is pretty red and some small breaking down. I used the green tea and it stinged a little. Let me post a picture for you to see.

    image

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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited January 2018

    Paulettek—. If the tea is stinging, I would not use it any longer. Stick with what your RO advised to treat your skin with.

    Looks pretty red and angry. The good news is this stage is short lived

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  • dmjmom
    dmjmom Member Posts: 79
    edited January 2018

    Wow! Still really red Paulette! Did your RO prescribe any Silvadene? It might help with that burned area.

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  • 53nancy
    53nancy Member Posts: 497
    edited January 2018

    Paulette, I hope you heal quickly. It looks so painful. Hugs.❤️❤️

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  • Rhyfelwr
    Rhyfelwr Member Posts: 88
    edited January 2018

    Paulette, I used Silvadene, and it was a-m-a-z-i-n-g. It has a cooling feeling under the skin almost instantly. My RO prescribed it, but it was wickedly expensive, even after insurance. I had a friend give me some of hers. I see that CVS has a version of it. It might be worth a try. I found that a combo of that, plus some of the lidocaine I had leftover from my port-numbing days, helped me through the worst of it.

    https://www.cvs.com/shop/cvs-health-anti-microbial...


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  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited January 2018

    my RO would not prescribe Silvadene but I did have RadiaGuard with lidocaine that I mixed with aquaphor when skin was sore

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    I’m using 4% lidocaine Miaderm and it is helping, yesterday I felt the sting, I’m much better today, I will go to CVS and pick up that cream just in case I got more burns show up thank you Rhyfelwr!

    It actually looks worse than it feels, I think it’s the new skin coming out, my RO called it dry peeling,

    Thank you ladies, DodgersGirl I am going to stop green tea just use warm water to watch it.


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  • Tpralph
    Tpralph Member Posts: 487
    edited January 2018

    my ro orders flamazine is it the same as silvadene?.  i don't need it yet but he said if i did that would be what he would order. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Paulette, I hate to ask what may be a stupid question, but why are you so red halfway up your neck? Were you turning your head to the side? They do have me turn my head to protect my esophagus, but I guess I am just surprised to see you so red in that area. :( Sorry. I am tired this afternoon.

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  • PauletteK
    PauletteK Member Posts: 2,205
    edited January 2018

    Kim I didn’t even have to turn my head to the side, had two positive lymph nodes so they rads treatment to my nodes near my collarbone. I believe Amy got the red on half way her neck also.


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  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    Yes I think it must be because they are radiating the nodes.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Ok. I had so many bad nodes, I can possibly prepare for this as well. It's just day 10/33 today. So happy it's Friday! Little gifts along the journey. :)

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  • PeachyJeanne
    PeachyJeanne Member Posts: 161
    edited January 2018

    Happy Friday all. I went for my first infusion yesterday and happy that I have the port. I put some cream on prior to leaving for my appointment and when it was accessed I just felt a slight pinch. It was much easier having my arms free.

    Since this was the loading dose, it was a long one. Got in the chair at 3 and left the building at 6:30. Nurse said next time the time will be 90 min less and then after the CMF portion is discontinued it should bring total time down to ~60-90 min for just Herceptin/Perjeta. These time decreases will be the milestones I'll look forward to checking off along with the possible exchange in the Summer. Keep moving forward!

    All in all, I'm feeling okay. Was up a few times overnight. Part bathroom breaks, part hot flashes and part steroids. I took an anti-nausea pill before bed as a precaution. I'll find out if I'll need Imodium soon enough I guess.

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  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    Saw my MO today and signed up for the PALLAS trial. I may not get in because you have to start within one year of being diagnosed and that is Tuesday. They have to have my tissue sample from pathology and that generally takes 3 days but they are trying to expedite. Hoping I get in. Anyone else on this trial?

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