Do these symptoms mean anything?
Hi everyone, I was diagnosed stage 1 back in 2016 & opted for a double mastectomy, no reconstruction. Surgery was in September 2016. They believe that all the cancer was removed (no lymph node involvement), so no chemo or radiation. I am on tamoxifen. I had checkups in January & August 2017 which consisted of bloodwork and office visit with my MO. Everything seemed fine. MO said in August he didn't need to see me for a year, so I'm still 8 months out from my next checkup.
In the meantime, I've had a few things going on but I always seem to attribute them to other causes. For instance, fatigue... I've been extremely low energy and can sleep for 12 hours and still want a nap. But I also have depression and my psych is currently switching up my meds. I've had constipation... Which I've just told myself things change as you get older. I also have what the kids and I call "cancer brain" where I make silly mistakes in speech, memory, and decision making.
Yesterday I got a new symptom. Shallow breathing and a heaviness in my chest. Kind of feel like I've been running, when your lungs burn. I would call it mild though. I was on my feet most of yesterday doing housework and Christmas baking. I felt very tired in the chest and it is not better this morning. I know with the time of year, it could be a chest cold...but I NEVER get chest colds. Doesn't matter if my whole family has one and then I get a cold too - it is ALWAYS nasal/sinus related.
Of course, my mind goes to lung mets. I know it's very early with that symptom only starting yesterday but I wonder if I shouldn't have downplayed the other symptoms. Maybe they all add up to my body telling me something. It's always in the back of my mind whether or not my team's & my choice not to do chemo or radiation was the right decision. Have I just been allowing small lingering cancer cells to grow and spread? Is only being checked once a year so soon after initial diagnosis normal? I need your advice & expertise! Thanks!
Comments
-
Hi! Hoping you are feeling better - but this is where my head went -
You need to go get checked out....number one any time you feel heaviness in your chest or shortness of breath, it requires at least a phone call to your doc...constipation can come and go and be impacted by so much, fatigue can be many things as well. I would say if your symptoms are not better within the next 3 days - call your primary care and get an appointment. If you don't have a good primary care, then this may be a great time to find one....
-
Call your MO too, tamoxifen has se’s too beyond hot flashes. But DO call!!!
-
Thanks for your advice. Nothing has changed yet. I've noticed that it's worse when I bend over though. Not sure what that means. Think I will call my doc tomorrow if I'm still the same.
-
So today I tried my family doc first because I know she is cautious and I was hoping to actually get a chest x-ray and bloodwork at the least. She was out of the office today. Having talked it over with my husband, we decided to call my MO. I'm not sure why but I had the feeling he wouldn't be so cautious and I was right.
After leaving my symptoms with the receptionist, about 5 hours later I got a call back from a nurse in the office saying that fatigue isn't really a reason to come in to see them but I could follow up with my family doc and maybe drink more water. (...really....) I asked, "You're not concerned about the discomfort in my chest or shortness of breath?" She kind of mumbled that the receptionist didn't note all of that but I should still just follow up with my family doc.
I hung up the phone and just started crying because 1) she made me feel dumb for calling them when I was already really sensitive to being overreactive and 2) I know there's something going on with me beyond "I need to drink more water." Maybe it's not cancer but maybe it's an infection or a heart attack or who knows? But I know what I'm feeling is not normal for me. Maybe it's time to find a new cancer team??
It's just so frustrating that we're constantly being told to be our own advocate and air on the side of caution and get checked out and then my doctor is so dismissive. 😔
-
Johnnygirl, I have no idea what type of insurance you have, or if it even matters to you, but , I would go to urgent care if you are having chest discomfort and ongoing shortness of breath. I have worked as a nurse for many years before I retired, and believe me nobody is going to judge you for demanding to be seen with that combination of symptoms with your history of breast cancer.
You have every right to advocate for yourself, and ignore dismissive physician practices, get your needs met first and foremost. Getting a chest X-ray at the very minimum could dispel fears of lung mets if the result turns out to be benign.
I am older and could care less what folks think of me anymore, I get virtually NO flak for my new attitude btw! Breast cancer has made me a more assertive individual. I like that! Best wishes as you get to the bottom of these distressing symptoms.
-
Johhnygirl....sorry you are going through this. I really can't believe your doc was so dismissive about chest pain and shortness of breath. Those symptoms can range from very serious to not serious but if it continues you should get it checked out. Good luck and keep us posted.
-
Thanks guys. I'm seeing my family doc this afternoon and will let you know what she says.
-
Your symptoms can be a number of things, but taken together your shortness of breath and continuing fatigue can definitely be signs of anemia, as can some mild confusion - make sure you get a CBC (Complete Blood Count), at the very least, to check your hemoglobin level.
-
I am glad that your family doctor is seeing you.
I fired my first MO after he was dismissive of lumps and told me I was not at risk for recurrence. He was wrong. My current MO is fabulous!!!
Chest pain should never be disregarded
-
My family doc was great yesterday. She talked with me about my symptoms for a good 45 minutes, did an ekg in the office and ordered a chest x-ray and labs. I just went and got that done this morning and she said she will let me know this afternoon already.
I'm starting to think it might be a blood clot. Anyone on here have blood clots while on tamoxifen?
-
I ended up in the ER after telling my family doc about becoming winded and lightheaded after one trip around Walmart. I also had a pins and needles tingling in my left arm after I got home that lasted for about 15 minutes. So I headed to the ER. They did labs, ekg, and a cat scan. The only thing abnormal they found is enlarged lymph nodes. They suggested that I follow up with my MO after Christmas. But they saw nothing else in the cat scan, no blood clots or anything else.
I don't know what to think.
-
What lymph nodes were enlarged?
Glad there is nothing obvious wrong. Sorry you are having all of those symptoms though
-
Johnnygirl, I am so sorry your MO has been dismissive. Some of the nurses at my MO are dismissive too, and it makes me super angry because they are the only line of communication I have with my MO. I call the nurses, nurses tell the doctor what I said *if* they think it's anything important. Basically, the nurses have dismissed a couple things that weeks later my MO seemed to be surprised/concerned about during my appointment. So frustrating! At first I felt bad for pestering them, but then I decided since it's my life on the line, I don't care if I bother them. It's their job anyway.
Hope you start feeling better and that you get some answers soon.
-
Johnnygirl, I noticed that you had mentioned in your original post that you had depression, and that your doc was "changing up" your meds? This, could be a real cause of your most recent symptoms. I, too have depression and anxiety issues, a lifetime condition, and can attest that the depression and anxiety themselves can cause sensations of shortness of breath and chest pressure. Side effects from the new meds perhaps could as well
As an aside, I really believe that I have developed PTSD from my two encounters with this breast cancer beast, and from recent study reports,and just talking with others who have had this nightmare befall them, I know I am not alone.
Hope the lymph node issues are not a big deal.... sending positive thoughts your way!
-
I had the same symptoms from a panic attack. I am glad you are following up to get answers.
-
Thought I would update after seeing my MO today. He ordered a pet scan to make sure there's no cancer recurrence. Otherwise nobody seems to know why I was having those symptoms. I started to feel better around Christmas and I'm not having the shortness of breath or chest discomfort anymore. So that's good news. I also mentioned while I was there that I've been having a radiating pain in my spine when I sit down. It only lasts 5-10 seconds but figured I might as well put everything out there. We'll see what the pet scan says but I'm not too worried. Waiting on the call from scheduling. Will update again after.
-
Let us know how it goes.
-
Had my pet scan this morning, results tomorrow afternoon. I have to say I've gotten considerably more worried while waiting... Guess that's that nasty scanxiety! I've just been so dang tired all the time and Google (I know, I know) isn't giving me a lot of very feasible reasons to have enlarged mediastinal lymph nodes besides cancer. (COPD and miner's lung don't sound like me
Cancer seems more likely at this point sadly..) anyone else have enlarged nodes in the chest that weren't cancer related? I never had chemo or radiation the first time around, hoping that wasn't a mistake! Gonna be a long day waiting for results...
-
Hoping he lymph nodes were enlarged from infection. Since you can't feel those nodes, you are not going to see many people post benign findings on them simply because they do not know if/when they are enlarged. They're only seen on scans. Hoping you get benign results. No matter what the results though, you made your decisions about chemo using the best information you had available. If you had a low oncotype, the chemo likely would not do much good, but could do harm. Thinking of you and hoping you get good news......soon!
-
Lymph node enlargement is a common symptom with connective tissue diseases. I can't say specifically that the site you mention is typical, but usually those of use with these types of issues don't get scanned (which would be necessary for that area), we just notice that we can feel enlarged nodes in various places at various times. Also, any infection in a nearby area can cause swollen lymph nodes, and the difficulty breathing and chest discomfort could have been the cause of the swelling.
-
Thanks for your guys' positive thoughts and comments. I got a good report today! No cancer showing anywhere outside of the lymph node. The lymph node itself was somewhat inconclusive. Doc ordered a bronchioscope just to get a closer look but he thinks it's merely swelling caused by a virus. So....not totally out of the woods but it looks like after all this it probably is just a virus. 😊
-
Great news
-
I have another update after finally getting in to see the pulmonologist. Bad news: the enlarged lymph node isn't from infection. Could still be cancer but he thinks it's sarcoidosis. Going to be having a biopsy in a couple weeks. Anyone have any experience with sarcoidosis?
-
Johnnygirl I stumbled across this thread and just wanted you to know my mom has been living with sarcoidosis for several decades. I think primary symptom *has* been fatigue--tough to do stairs sometimes--but she doesn't mention it much any more. She's occasionally taken steroids when symptoms flair. Not fun to live with but also not life-threatening.
-
Given your tumour profile, I wouldn't think mets. Chest heaviness and breathing (and fatigue) can be anxiety related as well. That they went away at some point is good news. As cancer survivors we always ask "could this be cancer" with everything. I hate cancer. It hurts so many people. I have that heaviness in my chest and a dry cough after a cold, and as well, flipping irregular heartbeats after coughing so much. So, going for a check up and echocardiogram. Crikey.
-
My DH has had sarcoidosis for 16 years. Most people do pretty well with a course of prednisdone and some inhalers. The vast majority will go into remission within. 2 years. A very small minority will go on to have progressive disease, like my DH. His biggest issues have been fatigue, shortness of breath, chronic cough, and immunosuppression from the steroids. Sarcoidosis does not seem to cause any cancers.Feel free to PM me if you want to talk.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team