Exchange City
Comments
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Flynn-
I had major asymmetry during the expansion. My right expander was leaking (long story but chose to kept rather than have another sure to replace it). Anyway we just refilled it every couple weeks. But It would go nearly flat while I waited for the next fill. I took all the liners out of my sports bras and put them in the right side of the sports bra I wore. At least in clothes you couldn't tell too bad!
Oh the joy of expanders!
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Flynn I had both expanded, then one side deflated for radiation, then re-expanded. My knitted knockers helped a lot with everything looking pretty even under clothes!
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I’m new to this thread. I had nipple sparing UMX in May 2017 (recurrence from lumpectomy in 2009). I had rads in 2009 and my skin is pretty thin. I’ve got pre pec TE and will be doing exchange surgery sometime in 2018. I’m debating about what if anything to do with the native breast. Right now I’ve got “perky” (te) and “droopy” (native). Any umx-ers out there that want to share their thoughts or experiences?
Thanks!
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Mom-mom,
I am a umx-er and had the same concern/issue while I had my TEs in. I am now done with my exchange, and I have to say that my PS got things pretty right, even though I might have a minor revision. The choice was mine to be conservative, after he explained things to me. So, for example, I definitely wanted the native breast lifted. How could my native compete with the hang of an implant at my age??(51 years). So, a lift was a definite from the beginning of our plan.
Next, wanted the volume and shape to match (as sisters, not twins, per se). That part turned out pretty well, too, mostly because my PS chose the right implant size and projection for my body. I didn't try to tell him what to do, but I did let him know that I didn't want "rack!" I work out a lot and would not be used to my breasts getting in the way. So, although I wanted the native to be fuller (we did fat injection on that side) I wanted things to look natural.
All said, the volume is right and even on both sides. The only thing that we might revise is the upper pole (topside) area of my native breast. Right now, about 10 week out from surgery, the implant upper pole has more fullness. It has dropped into the pocket quite a bit over the past month, but I don't think that it will settle to look like my native side. That can be fixed with a tiny implant or additional fat, depending on the location. We just need to wait and see. I will have another appointment with my PS in mid-March and we will decide on next steps. I asked him about doing that type of implant---on the native side--during my exchange surgery. However, he felt that it is best to add an tiny implant when you know you need it. If you add it, and things then settle differently, removing the tiny implant would leave a non-optimal result with skin, shape etc. I agreed. Cancer has taught me to be patient. I also trust my PS.
Until any revision, I am still really happy with the way things look right now in my bra and clothing. Incidentally, my cup size is much bigger than before, but it looks very normal for my body. I am glad that I didn't oversteer my PS to remain small.
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Welcome newbies Sweet Pea, Ghionik, Flynn, and Mom-mom!
There are so many variables.
My PS uses drains with anatomicals, plus I had a lot of pocket work during exchange, so I had drains for about 10-12 days. I had drains for 14 days after BMX. Recovery after exchange was much easier than BMX, even with the extensive pocket work.
I didn't notice any major asymmetry during expansions, although left TE went into my armpit. I looked symmetrical enough in clothes.
Best wishes to all.
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How long were you out of work after exchange surgery? I have an office job and will ask my PS (he tends to say things like, "well, that's up to you!"), but am even more interested in your experiences. Thanks!
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Hi Sweet Pea, I think it really depends on what work you do. If it's light work where you're not carrying heavy stuff or pushing and pulling with your arms it's one thing and I think it's quite another if it's strenuous manual work. I'm four weeks out from exchange and aim at moving back into work over the next two weeks or but having said that I do have long and very stressful days at work, where I am using my arms all the time. And I'm on my feet all the time. And when I am tired I will not be able to say I'll stop here and continue tomorrow. I essentially stop and leave work when I have finished my work and on a bad day that can mean easily 9-10 hours at work. Also if I am on call it can mean driving back to work even if I have just arrived home.
What do you do and what conditions will you be under when you get back to work? Will they let you go easy initially?
The exchange is nothing like the initial surgery, but I still found limitations in certain arm movements and also I still get chest pain at the sternum if I do a little bit more than I should. I am not taking painkillers as I believe that when I get pain, it's my body telling me not to overdo it!
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Glad things are going well for you Scrafgal. It's such a great feeling when you feel you can trust your PS. I am 4 weeks post exchange and for the first time, I put on a normal soft foam bra as I was going out for a coffee with a friend. Oh gosh was it great to remove that post op bra and strap... and cool I really liked the look of me in the mirror with the bra on! And yes my friend said I looked great!
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SweetPea
I am a professor/college administrator and I had surgery on Friday and taught on Tuesday...I had not planned on the exchange mid-semester, the TE started to leak so it was moved up to an inconvenient time.
This comment is simply to say it really depends on what you do for a living, I have an office job, seated except for the classes I teach.
I am a UMX not BMX...so it really depends...my PS was also of the mind "it's up to you".
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Sweet_Pea I can work from home for my job and had surgery on a Thursday and was back at work on Monday (but at home.) I did plan light days for my first few days. But I didn't need painkillers other than Tylenol so working wasn't a big issue since for me is mostly conference calls. I did have to sit in a more supported type of chair (I chose my recliner) where I could put a pillow in my armpit because rubbing between arm and armpit wasn't comfortable and using my mouse a lot, etc. I got a rollerball mouse which helped. (I used a little pillow in my armpit.)
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To Flynn - about a bra when your breasts are two different sizes.
I found a sports bra at Bed, Bath and Beyond (of all places). It fastens in the front and has removable pads. I have just finished expansion (to 270 cc) and expanded breast is bigger than natural so I just removed the pad from the MX side. If necessary, I think that pad could be added to the natural side. It's called Copper Fit and it runs very small. I usually wear a 34C and would take a Medium but had to get Extra Large, but I also didn't want it fitting too tight.
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Hey ladies:
I had my bilateral exchange on Wednesday. No drains. Post op bra. Minimal to no pain. Seriously. I did have a bit of revision on the right side. PS said she lifted the breast up a bit. It is more sore on that side than the other - this is the minimal pain. I don't need pain killers.
I do have restrictions. No lifting over 10 lbs, no lifting arms above 90 degrees, no pushing/pulling heavy things for six weeks. I must wear the post op bra for 24 hours a day for 2 weeks minimal and then a very supportive bra for 24 hours for another 4 weeks - even the post op bra if I want. So, my job does have some heavy lifting, but I feel so normal now, I am returning to work tomorrow and will not do heavy lifting. I will drive first time tomorrow. I am nervous to return in case I over do it. After reading on here, it seems that its common to be feel "normal" soon after this surgery and it fools you into doing too much. Especially with all the restrictions on me, I don't want to hurt myself. But at the same time, I am eager to get on with living. I guess I am looking for reassurance from you all that returning to work this early is doable and some have you have done it.
I had larger implants placed than my natural breasts, but I gotta say, I looked ALOT bigger in my TE's. I do not think I am am bigger than my natural breasts. According to the implants put in, a full projection were placed, so they should, in my opinion look bigger than I was naturally. Maybe its just the compression of the post-op bra. I did however, have a shower today (first one since surgery) and naked, my boobs look same size as I was. PS mentioned that my natural boobs were around 320cc and she put in inmplants of 560cc on the left (same as TE) and 485 cc on the right(same as TE - I had fat gratting on that side so I look fuller on that side with smaller implant ). I must say, my boobs are quite symmetrical and same size looking though. Is this a common thing? I thought this was my chance in life to be bigger and now it doesn't seem I am. Sigh... Anyone else experience this?
wallan
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Wallan:
I'm glad you're doing well! Be careful, though. Because we do tend to feel so much better after Exchange.
I can't answer your question about sizing. I was so small before (AA) that anything I could have done or did would be larger! LOL I think I would say that most everyone I've read about feels TEs are larger -- and certainly more projection. Maybe too much. Also, my experience was that my implants did not settle and look "good" to me until about 3 months out.
Hoping others will chime in with info for you!
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Wallan - I thought the same after my exchange, that I was no bigger than I was going in, even though my implants were 50% bigger than the tissue removed during my MX (300 cc implants vs. 200 g). It took a while for things to settle out so that I now have greater projection and wear a larger cup size than I had before. I also had 2 fat grafting procedures after exchange to cover up some rippling and even things out. I think this really helped.
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Wallan, glad that you're healing. Sorry that you're not larger than you had hoped. Very glad that you're symmetrical and "same size looking."
Many folks are not symmetrical after reconstruction, for many reasons.
I can't help you with size. I happily downsized from BMX to reconstruction.
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Thanks ladies for your replies.
I am so pleased that I feel great day 6 from surgery. I do have a bit of minimal pain still where the revision was on the right side, but otherwise I feel like I didn't even have surgery.
I drove for the first time the other day with no issues. Today I am back at work .
I have my surgical follow up next week. I will see how everything settles out over time. I do have a compression type bra on, so this squishes things smaller and that may be the issue.
We shall see. I just am very glad to be done and hoping it all stays well.
wallan
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ave never posted anything on any type of board before. Please forgive me if I I don't get it quite right.
I was interested in Shoregirl's post on 1/4/18. Could you please tell me how your implants are anchored? I didn't realize that was an option. I have had 3 surgeries so far and everything continues to flip. My original surgery was in June of 2017. I had a bilateral mastectomy with tissue expanders, alloderm and 4 JP drains placed at that time. Two drains were removed at two weeks, one at three weeks and one, on the left, at four weeks.
The original plan was to replace my expanders with implants at 8 weeks after all drains were out. However, both of my expanders flipped backwards so that the ports were facing my chest wall. My ps decided to move the te/implant swap surgery up 2 weeks. So that (my 2nd) surgery was done in September. Within 2 weeks of that surgery I developed a cellulitis on the left side. It resolved with antibiotics.
My right implant was much too lateral and neither side looked quite right to me or my ps. The nipple surgery I had scheduled for November was replaced with a revision surgery to see what the problem was and to move the right implant more medially and fix the appearance of both. During that (my 3rd) surgery, he discovered that both implants were flipped backwards. He removed both implants, tightened the pockets, moved the right pocket more medial and put the implants back. I remained in an immobilizer for several weeks, then switched to a sports bra for two more weeks and spent all of that time sleeping in a chair. As soon as I was allowed to sleep normally in a bed, both implants flipped. My ps encouraged me to flip them back if possible, which I did. If I lie on my side, within minutes the implant nearest the bed slides perpendicular. When I sit up, I can push it the other direction so that it flips back to the correct position. However, if I lie back down, even with a maximum support sports bra on, they flip back. So I have been wearing a support bra and sleeping in a chair.
The idea of repeating a revision surgery that didn't work before is overwhelming to me. He doesn't believe the pockets are too big. The only suggested change is the possibility of textured implants to see if that helps. Before my initial surgery he said he didn't want to use textured implants because of the increase in a possibility of developing another cancer, ALCL.
Anyway, I guess that's a lot of information to just ask a question about anchoring. But I thought someone else might have had a similar experience.
Thank you all so much for sharing. I don't mean to be negative. I'm just very lost and discouraged. -
Sorry about your issues. I'd be running to a second opinion. He's had two chances to get it right and didn't get close.
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discouraged - I agree. I think it's critical that you get a second opinion. Even if you have to drive to another city.
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discouraged, I am so sorry to hear of your wayward implants! I absolutely agree with VegGal & MinusTwo. I don't know HOW she did it, but my new PS (my 2nd opinion doc I fell in love with!!) said at my consult she would anchor them and I didn't ask how. She, as well as the 1st ps had never seen implants flip backwards before, and neither had a ps I consulted with at John's Hopkins. So it is a rare phenomenon to be sure!!
The new ps also had suggested to me we move to a textured implant, but I did not feel comfortable so she stayed with smooth round but switched brands. I have had no problems at all with these flipping. All I know is, when I leaned over with the old implants, they would dangle off my chest. When I lean over now, they stay close to my body. By any chance did your ps have you massage your implants daily? My original ps had me grasp each implant at the each side of the bottom part and squeeze the lateral and medial edges toward each other firmly so the implant would rise up the chest wall away from the pressure 5 times on each implant every day. The ps at Hopkins suggested this may have kept the pocket too loose, allowing the implants to flip. But you said even your TEs flipped...that is crazy!! Please, please please go see another ps!!
Shoregirl
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What of the surgery list did everyone take to *exchange* surgery? I assume many things aren't necessary, or maybe they're just necessary for a shorter time?
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Hey discouraged:
I am sorry that you are having these complications.
I agree with the other ladies. Your PS does not sound very experienced at this or very talented at it. This may not be true, but you need a second opinion. Something is not right.
I did not realize that implants could be "anchored" either. I know that my PS expanded the TE's to the same size as the implants would be and she sutured up the pockets tight she told me. I am wearing a compression bra right now for two weeks so the implants stay put too. So far, there are no issues. Its only been a week though.
I hope that you get your issues sorted out discouraged. Let us know.
wallan
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Sweet pea:
I prepared for Exchange in many ways like I did for BMX. Colace, arnica (for bruising), protein for healing, etc. But the recovery part -- oh, I made sure I had pillows and everything was clean.
But it's just SO much easier than UMX or BMX. You'll have to keep yourself from doing too much.
Maybe get the front button shirts and stuff like that ready to go again. But you're only one side, I think, so you may be ok there.
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exchange 1/31/2018
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Jaynefirely, how was your exchange surgery? I have mine finally scheduled for next month.
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Flynn, I also go to Moffitt. I travel there from Destin. Wanted to do a DIEP but due to weight loss during chemo am not a candidate. My PS wants to do a lat flap and implants. I originally did not want implants (the fills are going to take longer due to traveling) but do not really see an option. A flap is needed because I have had radiation twice on the same side and the skin just can not handle TE. I am learning a lot from reading all of the experiences here. Thank you all!
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Cindyanne, have you considered autologous fat transfer (AFT)? I hear it does wonders for radiated breasts!! It can be done in conjunction with an implant or without implants. Much less invasive than flap! I can't stand my implants and am in the process of replacing with fat. It can be done even on slim women. Are you in Destin, FL? I used to live in Ft Walton Beach, love Destin!! If so, there are some good doctors in FL experienced in AFT, if you want to look into it. Dr. Khouri of The Miami Breast Center, and there is a lot of info on Dr. Hartog in Orlando website, and a number of drs come up on RealSelf.com. There is also a thread on here about fat graft to the entire breast.
Best wishes!!
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Cindyanne, have you considered autologous fat transfer (AFT)? I hear it does wonders for radiated breasts!! It can be done in conjunction with an implant or without implants. Much less invasive than flap! I can't stand my implants and am in the process of replacing with fat. It can be done even on slim women. Are you in Destin, FL? I used to live in Ft Walton Beach, love Destin!! If so, there are some good doctors in FL experienced in AFT, if you want to look into it. Dr. Khouri of The Miami Breast Center, and there is a lot of info on Dr. Hartog in Orlando website, and a number of drs come up on RealSelf.com. There is also a thread on here about fat graft to the entire breast.
Best wishes!!
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Shoregirl I would love to do AFT but I still need skin.......which is why the lat flap or any flap but due to lack of tissue lat flap seems only possibility. Yes we live in Destin, Fl but travel to Tampa for medical. All of the Doctors in or around Destin are not interested in treating only fishing
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Thank you to everyone who posted a reply about my flipping implants. I will get another opinion, probably two. I'd love to find a ps who has dealt with this before. The ps I have been seeing is the most recommended in my area. He is kind and has done a great job for others I know. However, I just don't think I can have a 2nd revision surgery with him for the same issue when the 1st one failed.
Shoregirl, can you give me the name and location of the ps who was able to help you? Also, if anyone else knows of someone who has a fair amount of revision experience in the Denver area, I can easily drive there. I'm sorry you had to go through all of this but I can't tell you what a relief it is to hear someone was able to fix it. Thank you so much for sharing your info.
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