Being "forced" to volunteer
I am still undergoing treatment. Recently, when I mentioned to another breast cancer patient whom I connected with online about my plan to get back to work after radiation therapy, she immediately "lectured" me that I "refuse to let go and take life slowly". I told her I already took a sabbatical just before my diagnosis so I am eager to go back to work as I feel bored. She then lectured me again that since I have been through breast cancer, I should volunteer and help other patients too - e.g., accompanying other patients to the hospitals during their chemo.
To be honest, I was a little pissed at her because she was trying to dictate what is right for me to do and to make me feel guilty if I don't volunteer.
I am not unhelpful - people who know me would definitely tell you I am always very eager to help. I am more than willing to help if people ask me questions. But:
1) I do feel I am not ready to be so involved by accompanying complete strangers to their treatment appointments;
2) I have to visit the hospital quite frequently myself so I don't want to go there again so much so that my life revolves around breast cancer 24/7;
3) The reason why I prefer to help out by answering questions instead of volunteering is because I am not ready yet since I myself am still going through treatment.
Does anyone here have similar experience?
Comments
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None of us are required to do any particular kind of work related to our diagnoses! Many want to, and that's wonderful. It sounds like you want to get back to work, which is also great. I can't imagine spending more time at the hospital than I already do. Maybe someday, but for now that's not for me, or for you, from what you say here. And that's ok. Congratulations on turning the major corners necessary to see yourself back in the work part of your life. You have nothing to feel guilty about!
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I have no desire to spend time in hospitals helping cancer patients and I it never occured to me that this particular lack of interest might be bad. The thought hasn't even crossed my mind. I help others in other ways (I'm a teacher). I was eager to get back to work after my surgery and feel I made a good choice to go back as soon as I could. Don't feel guilty: there is not a script for what you should or should not do after diagnosis and treatment.
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Hi Rumba,
I'd say, as my doctor says : you're best placed to know what is good for you ! And truely, this is what I believe. We all react differently to life (hence to dx too), and it's quite normal. If volunteering is the right thing to do for your acquaintance, fine for her. But this doesn't mean everyone should do the same, or help in the same way. You should in no way feel guilty.
If you feel going back to work is the right thing to do for you, than do so! By this I mean, if you really want to go back - not feel obliged too. Which was my error after my first occurence of cancer. I felt I had to go back as soon as possible. Not that I really feel I needed it for myself, but more as some form of duty. Cancer soon showed me, it wasn't what I needed ;-) .
I couldn't say better than : listen to yourself. Find what is right for you. ... and don't care about lecturers.
Big hugs to you
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Thanks everyone for your replies! Really help put me at ease. I feel I need to take care of myself first before I can take care of the others and right now, my own health (physical and mental) should come first.
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You don't need to justify your decisions to her. You get to choose, which is especially important since you just went through a significant experience that you didn't choose.
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I was trained to work for hospice and ended up telling them I could not do it since it is hard for me to handle. I spent years working with the homeless professionally and volunteering in the community. Volunteering in the breast cancer area should NOT be done during or after your own experience, any more than a person who suffered a recent loss should work for hospice.
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Ugh, rumba! What a guilt trip. I remember that the organizers of the local Relay for Life visited us in our chemo chairs, asking if we would buy lottery tickets! I bought a few, but felt a little weird about the experience.
Getting back to your job doesn't mean that you're turning your back on other cancer patients. There are any number of ways you can give back to the community. For example, I work at a local university, and can use my experiences to guide my research into health policy and treatment. I have also helped a colleague construct a survey of cancer survivors and their views on follow-up care.
((Hugs))
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As the airlines tell us, "Put on your own oxygen mask before helping otherrs."
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I echo the other's sentiments. I learned early on that one patient's breast cancer is not the same as another patient's breast cancer~ there are many variations. Do what feels right for you without guilt. As an aside, I asked to volunteer at my cancer center in the infusion clinic after the bulk of my treatment was over (other than hormonal therapy) and was politely declined since I was still an oncology patient there. I was slightly bummed, but with a few months perspective I find being in that environment would be the last place I would like to be!
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Yikes. Honestly, I think what she said is simply garbage. To volunteer with a population that has problems you yourself have experienced, you have to be really comfortable in where you are now. Substance use and homelessness are not something I've experienced, but I've worked with people who are homeless and often have substance use problems for almost 18 years. We often have formerly-homeless people or people in recovery work in our programs, sometimes even as paid employees, not just volunteers, and unless they're really solidly doing well and have their own issues managed, it's often disastrous. Really disastrous. They get triggered, and then we end up with two patients, not one. I don't think there's any way a person could have their own issues managed during treatment, and for a lot of us it takes quite a while.
If you are lucky, you do what makes you feel fulfilled and you do what you are good at. Not everybody would be a good volunteer with cancer patients, and not everybody wants to. The world wouldn't work if every current and former cancer patient up and left their job and dedicated themselves to volunteering to help other patients.
Then there's her attempt to control your life. Where does she get off? It's odd and crosses boundaries, and the whole premise is ludicrous.
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Sound super pushy and it would be 100% appropriate for you to say no clearly and without guilt. Personally I won't be able to give back much because I have to get through treatment, go back to work and take care of my kids! Once my kids are a bit older then I will probably want to spend my time giving back. We all have emotions and we all have responsibilities. You will need to take care of yourself and your responsibilities first. Its a lot to ask a cancer patient to give back so soon if you ask me.
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I think you should just get back to work and rebuild your health before even considering volunteer work. I’ve done a lot of cancer volunteering and I’ve never heard anyone put pressure on a recent patient to become a volunteer.
Also, hospitals and other institutions don’t take volunteers without a serious training program being undertaken. This would likely put more pressure on your time and be further stress that you likely don’t need.
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For me, I find the expectations that our society seems to have around cancer, and breast cancer in particular, to be rather appalling. When you have gone through cancer, people EXPECT you to give more time and money than average. I some how ended up on the fundraising list for the new cancer treatment facility being built. Don't know how they got my name except from some listing that I had been recently diagnosed. Do these people really think that someone at this stage, anxious about treatments and how they will pay for them, should even be asked? I donate a buck here and there throughout the year. I help and support my friends and acquaintances with cancer. It adds up.I am a migraine sufferer. That has a much greater effect on my daily living, year after year. You don't see/hear people trying to GUILT you into volunteering or giving for migraine research.
l no longer let people "should" on me.
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Good point about the lack of funds and fundraising for migraine research SummerRain. On the topic of fundraising I have to say that while volunteering is OK by me, expecting me to donate following the persistent bleatings of the pink charities is another thing altogether. It's amazing that we're even targeted for donations after going through treatment and all the attendant financial toxicity that it involves.
BC charities make more money than nearly al the other charities put together. Many of these charities spend half of what they take on marketing costs so only around half of your donations do any good. Then often the money is wastedon worthless "awareness" raising or duplicate research projects.
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Go back to work. I'm a teacher, worked through chemo, and radiation happened in the summer. I finished on a Thursday & school started Monday, with me at my desk ready to jump back in with both feet. I loved my job and I didn't want cancer to be my REAL LIFE. It's great if someone wants to give back by volunteering; and I volunteer for some things, but not 'cancer stuff' as it is always going to be too close. The one thing I will do; if a friend or acquaintance is diagnosed, I refer them to BCO and will check in on them, answer questions etc. if they want me too. Everyone handles it differently, and how each person handles it needs to be respected by others. I would drop a 'friend' who doesn't understand that.
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As Aretha sang "R-E-S-P-E-C-T find out what it means to me." We all have our lives to lead and only we know what fulfills us. "Should" can be banished from our vocabulary: I prefer "I want, or I need, or I feel...". As women we are the ultimate caregivers, but we do need to think about ourselves as well.
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Thanks again everyone for your inputs! Big hugs and all the best!
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Rumba,
Your story resonated with me so I want to despond...
This person has a vision of how she thinks things should go and articulated it and projected it onto you. Good for her. You can respond however you like. Best for you is all you need to focus on.
If someone "guilts" or "shoulds" us, good for them. They got it out and said what they needed to say. Then we can do and say whatever we need to for what it is best for us. Every human being is so different. The very best thing you can do is to know and love yourself well. Honor your needs. You and your quality of life is what is important now.
I wish you the best is your journey and trust you will be your own best friend and will mnkw what is best, above anyone else.
Fondly,
V
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