Bone Mets Thread

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  • babs6287
    babs6287 Member Posts: 2,021
    edited January 2018

    Lita. Those meatballs sound delicious!

    Today my boss made me use the vein stimulating electronic stimulator Sox and it really made me feel better. I’m still in pain but at least while I’m sedentary it’s working on my veins. He even made me take them home to wear over nite!!! He’s great. Can u believe a months supply of the injections is $600? Crazy!!! I’m trying to find it for less. I hope so!

    My good friends surprised us and brought us dinner tonight. They wouldn’t let me do anything! So sweet!

    Babs

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited January 2018

    So nice that you have good friends looking out for you Babs! Have been keeping you in my prayers

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  • NettaGER
    NettaGER Member Posts: 134
    edited January 2018

    Leapfrog: Thanks for your welcome and input. I have a very good physiotherapist for my back. Last time I asked her about my hip and knee pain, which came up during the last weeks. She showed me some great muscle strengthening exercises to help stabilize the joins to avoid pain. I hope this will help.

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  • NettaGER
    NettaGER Member Posts: 134
    edited January 2018

    Leapfrog: Thanks for your welcome and input. I have a very good physiotherapist for my back. Last time I asked her about my hip and knee pain, which came up during the last weeks. She showed me some great muscle strengthening exercises to help stabilize the joins to avoid pain. I hope this will help.

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  • Maire67
    Maire67 Member Posts: 768
    edited January 2018

    Thanks Q. That’s a relief. Now if my insurance denial can be reversed ...that would be good. Maire

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  • RyanT
    RyanT Member Posts: 19
    edited January 2018

    Thank you so much for your reply Lynne!

    My mom is hormone positive, her2 negative. The doctor did say they would keep her on hormone therapy and later do chemo, which scares me because I know chemo is very difficult. Her scan is Thursday and she has a followup with her oncologist on the 24th so hopefully we will get more answers. We hate waiting but I'm trying to keep my mom in a positive mindset.


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  • babs6287
    babs6287 Member Posts: 2,021
    edited January 2018

    Hi All

    Feeling so frustrated today. Radiation did nothing but has caused me issues-burned back no treatment so lots of progression.

    I hope tomorrow is a better day!

    Bab

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  • Kaption
    Kaption Member Posts: 3,192
    edited January 2018

    Babs,

    So sorry for your frustrations. When was your radiation? Maybe it's not done with it's job yet. .?

    Gentle hugs!


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  • zarovka
    zarovka Member Posts: 3,607
    edited January 2018

    Babs - Not the news we were looking for. Frustrated would be the appropriate emotion. Really frustrating. Let's hope the radiation does its thing with time. Not a radiation pro ... does radiation do that? Delay its response?

    >Z<

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  • Lindalou
    Lindalou Member Posts: 647
    edited January 2018

    Oh Babs, I'm so sorry to hear that. My tumors are radiation resistant as well. I also found out that I have a rare genetic mutation that makes my cancer radiation resistant, however, I did a little pain relief from them for a period of time and I hope you do as well. My best to you.

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  • bigbhome
    bigbhome Member Posts: 840
    edited January 2018

    Babs - Radiation does take time to work. My first group of rads took 3 months, at which point they had shrunk my tumors 68-80%. I hope that happens for you! So sorry that your back was burned. You are always in my thoughts and prayers!

    My Skittles, in desperate need of a bath! I think these little guys are wonderful! 7lbs of unconditional love!

    image

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  • MJHJAN1014
    MJHJAN1014 Member Posts: 708
    edited January 2018

    Babs- sorry for the news, no wonder you are frustrated. The Lovonox injections are alarmingly pricey. My mother had it and it was a hardship for them. Do you know how long you will need them? You can also get heparin IV at hospital, but not the most inviting option. Could it be that the RADS haven't kicked in yet? I love that your friends are pampering you- so kind and you are so deserving. Are you doing a lot of Facetime with your DD and new grandson? Sending love and best wishes for improvement STAT. MJH


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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited January 2018

    Babs, adding my hope to the others that the radiation will continue to work on the cancer with time.

    Ryan, so sorry you have joined our group. How old is your Mom? My Mom did chemo years ago for ovarian cancer and she was 79. It wasn’t easy on her but she made it through. Will be saying a prayer for you and your Mom

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  • Eddy405
    Eddy405 Member Posts: 5
    edited January 2018

    Chrissy I was just diagnosed with bone Mets in my spine Any suggestions or ideas that helps you keep going. I just had my first grandbaby I’m 61 and in shock

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  • Iwrite
    Iwrite Member Posts: 870
    edited January 2018

    Babs- So sorry the treatment caused new issues rather than providing relief/healing of some sort! Sending prayers for effective treatments so you have years to feel good andlove that little grandson

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  • zarovka
    zarovka Member Posts: 3,607
    edited January 2018

    Eddy - The main thing you need to keep going is a reason to live. It sounds like you have that covered. Bone mets are manageable and move slowly. Hang around here, let us know how you feel, ask specific questions. You will get through this.

    >Z<

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2018

    So grateful to be able to share that my bone scan came back NEAD. I’m in shock that there is no tracer uptake anymore in the acetabulum which is where I had a big one when diagnosed. Lots of mentions of bone sites in the CT scans but I guess we don’t care about those (?). Organs are clear too according to CTs and the blood clots in my lungs are nearly all resolved. With such good scans I feel bad to be going in to meet with my docs to tell them how shitty I’ve been feeling.

    Babs, I’m so sorry the rads don’t seem to have helped. I had zero pain relief when I had mine done until a couple of months after. Is there a plan tthat move you to Eliquis for your clots - it’s a pill and doesn’t require mounting blood tests. They gave me a choice and I was quick to decline the shots.

    Patty, glad to hear from but sorry for your pains and discomfort. Praying chemo brings relief.

    Thinking of everyone and reading along. I’ve been in a funk so not posting much

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  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited January 2018

    Jen, how fantastic for you!!! - enjoy it and celebrate, do something special for yourself that wasn't already on your lists of things you wanted to do in 2018- its as good as it gets!!!

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  • marylark
    marylark Member Posts: 178
    edited January 2018

    Yay Jen! Such wonderful news! I'm thrilled for you!

    Mary

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited January 2018

    Jen, WOOHOO! That is great news. I am doing the happy dance for you.

    Lynne

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  • zarovka
    zarovka Member Posts: 3,607
    edited January 2018

    Jen - wonderful news but the funk is very troublesome. Does it rise to the level of considering anti-depressants? do you have ideas on how to pull yourself out (besides getting a great scan, which has been accomplished)?

    >Z<

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  • Maire67
    Maire67 Member Posts: 768
    edited January 2018

    Babs I hope these women are right and that the rads give some relief in a short time

    Wonderful news Jen. So happy for you

    Maire

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  • Jaylea
    Jaylea Member Posts: 478
    edited January 2018

    Love the pics of everyone's fur family. Their love is so simple and true.

    Jen, hands clapping for great scan. Funks come and go, we've all earned the right here. But seconding Z, if it goes on a while, consider treatment, just like you would any other SE from this crap disease.

    Eddy, so sorry you're here, but welcome. The initial diagnosis is shock-inducing. It may seem impossible now, but things will get better as you adjust to a new normal. Bone mets are manageable in many ways and treatments are doable. We're here for you.

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited January 2018

    Thanks for asking about my funk. I'm on Effexor 75mg and am thinking a bump up is in order but am holdingoff until someone can tell me that the contraindication with my blood thinner won't become a bigger issue than it isn't now.

    Also got permission to cut back at work abit today, which will give me time at least three days a week to exercise. I'm so happy about this.

    Last thing I'm having checked is my thyroid. We slight reduced my dose, and then my energy and mood plummeted. Maybe that's the issue.

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  • silviah
    silviah Member Posts: 46
    edited January 2018

    I just found out that a lady I work with has been diagnosed with mbc. She doesn't know that I know. The day that she was diagnosed, she quit work - which was just Friday. My boss is not wanting to accept her resignation... she wants to discuss FMLA with her. I want to reach out to her. ..but I think I should wait until she reaches out to me?


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  • Kaption
    Kaption Member Posts: 3,192
    edited January 2018

    Silviah

    I do think you should reach out. If she’s not ready to talk with you, let her know you are ready when she is. She may be aching for someone who can really understand.


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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited January 2018

    I agree with Kaption. I don’t think you should wait. She might think you wouldn’t want to be bothered because of yourcancer

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  • Quaatsi
    Quaatsi Member Posts: 385
    edited January 2018

    open the door she can either clise it ir walk th

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  • zarovka
    zarovka Member Posts: 3,607
    edited January 2018

    Jen - the exercise alone can fix the funk. Great plan. As usual ... you got this!

    >Z<

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  • Quaatsi
    Quaatsi Member Posts: 385
    edited January 2018

    wow. That was some typos there. Open the door. It is her choice then to close it or walk through. But fir me, I would like the choice. Q

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