HER2 positive, Estrogen Progesterone positive

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Anonymous
Anonymous Member Posts: 1,376
edited January 2018 in Just Diagnosed
HER2 positive, Estrogen Progesterone positive
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  • tld2017
    tld2017 Member Posts: 102
    edited January 2018

    Hi Ladies, My head is whirling. My hands are shaking. My nurse navigator called and said I am HER2 positive and Estrogen and Progesterone positive. My breast cancer surgeon appt is tomorrow. What does this mean? Will I need chemo and mastectomy? They were so sure I would not be positive on all three and I am.... Is there a specific place on these threads to talk about this when you are positive on all three? Is this what is called triple positive cancer? Can anyone tell me good news about this? I feel I am desperately seeking hope when there is none....

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  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited January 2018

    I'm so sorry. It's really hard to hear those words and there's a lot to learn. Try to remember to breathe.

    There is a triple positive thread on here. And tons of support everywhere. I remember how I felt to learn I had cancer and then find out it was HER2+ as well.

    The good news? Yes - you'll probably need chemo and targeted therapy. This is good news because what used to be a very dismal diagnosis is now a much more treatable one.

    And if you have chemo, it will probably be first. That gives you time to decide about the type of surgery you want to have - both what is recommended and how you feel about it.

    Good luck tomorrow. I hope the appt goes well. And consider a second opinion as well.


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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Here you go, sweetie. It's a link for the triple + group. It looks like a pretty active group and I'm sure they will take good care of you.

    For good news, I seem to keep reading about all the research and new treatments developed specifically for HER2+ women like yourself that are really effective! That's a good thing.

    Please know that you WILL be okay, and we all get the shock and terror you are feeling right now.

    Big hug.


    https://community.breastcancer.org/forum/80/topics...

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  • ColleenS80
    ColleenS80 Member Posts: 271
    edited January 2018

    I was just diagnosed “triple positive” as well. Met with my oncologist today. I will have chemo and herceptin for 12 weeks, then surgery, then radiation. Herceptin will continue for a year. All of this could change if I have the genetic mutations, or if they find anything else in my MRI next week.

    Whether I have lumpectomy or mastectomy will also depend on those last two things.

    I was scared of the HER2+at first as well, but I’m coming to look at it as not so bad of a situation. The targeted drugs for it are amazing, and my oncologist told me today that, while they used to think of it as a more aggressive cancer, they are now starting to wonder if that’s not the case. Just a different type. Try to hold on to the positives! I am right there with you and I know how scary it is. But we will get through this.

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  • Dennyj
    Dennyj Member Posts: 106
    edited January 2018

    tld2017: I was diagnosed with Triple positive BC 8/25/2016...I learned a lot in a short amount of time. The hardest time is right now because so many emotions are happening....like why me? Why did my body let me down like this? Will I be here next year? What is the next step?....Yet, as crazy and confusing as this time must be for you...once you have a plan from your doctors then it will get easier. Being diagnosed with BC is never easy and it sucks but you can get through this.

    Never give up hope...I constantly remind myself the definition of hope...Hope is the belief that a positive outcome lies ahead. Sometimes I look at the word "hope" and it looks meaningless to me but I remind myself the true meaning of it. Stay strong, fight hard, advocate loudly, and stay faithful. I wish you the best.

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