Aeroform Tissue Expander - any experience?
Hi, I am getting ready for surgery the end of November and my PS recommended Aeroforum TE's - which rec'd FDA clearance last December.
Did you use them? What do you think? Any Experience ? Any feedback?
Thanks.
Comments
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Yes. I had a single side. It was convenient because no trips to hospital to fill, you do it yourself at home with a remote control, it was painless. No needles, plus you fill it very slowly every day so no big expansions at once.Another advantage, the breast surgeons werent qualified to use it, so I was given plastic surgery consultant doctor that had much better stitching skills and I got a really good scar that has almost faded only 6 months later. Another advantage, the air is contained within the boob, once the air runs out the expander will slowly deflate and there is no way of getting more air in. This was a plus for me as a public patient as it meant I was on a priority list to get in for my exchange surgery, whereas some people have to wait ages . This is the Australian system tho, different to yours.
Disadvantages, I had it done in major city hospital and none of my local breast nurses or doctors had ever heard of it, it was hard to get any advice because the technology is so new. It felt extremely hard and sat very high. Mine was a 600 cc as I am a d cup so it looked really stupid near the end like a barbie doll boob, and I started feeling very paranoid and not wanting to go out. But its not the same final shape the implant is , its only temporary. I definitely couldnt sleep on my side for the 3 months it was in as it had a hard edge around it . It was pretty tight and uncomfortable, but I wouldnt say painful. All in all I would reccommend for the convenience, and as no needles I guess it follows the infection risk would be lower. I had no medical complications. I also think because the technology was so new I was treated with extra care. Hope this helps. xx
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Aussie - thanks! Yes, our HC system is a bit different, I won't worry about the replacement date. I see that it is very new and my PS suggested it when I said I was sick of coming back to the medical facilities. I like the idea of adding a little at a time and somehow thinking the air will be lighter than the silicone? I will have both sides, so I guess no sleeping for a fair amount of time, as I am side sleeper
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Hi! I just started the aeroform tissue expansion yesterday for both breasts. The doc did one in the office and accidentally was locked out of the second one (if you make a mistake or move the controller it will register as a fail and then you have to wait 3 hours - probably a safety feature). So, I did the second one at home last night. It was really easy.
Just read the directions. You can’t fly (due to change in pressure) and you’ll set off metal detectors. I need to remember to bring the ID they give you as I often have to go through detectors for work. Can’t tell you exactly what the reason is, but I feel so much relief. I’m also using a sports bra for mild compression which helps. My doc did not say anything about sleeping on my side. I’ve been sleeping on my back since surgery 11/21 and using lots of king sized pillows and a soft blanket on the side my head to make my head feel like I’m sleeping on my side. Lol.
The TEs expanded first in the cleavage area. I wonder if it will fill in different areas depending on where you place it — considering Aussie’s comments. If I end up looking stupid, I’ll just try to wear scarves or something. I’ll worry about that later - I don’t plan to be a d cup, so maybe that might help.
All Best,
Ceci
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Ceci -- thank you for the info -- I did end up going with them and my first fill is Thursday - 2 days from now. I am excited to start the process -- the next stage.
I asked my PS like 5 times if I could fly with them -- she said yes, you will just set off metal detectors and they give you something for that - I am going to be one unhappy camper if I can't fly until the exchange surgery - I travel for both work and pleasure
-- we shall see what she says again on Thursday.
It will be one lonnnnngggg drive to get to my destinations - as I am ready to go!
Onward -- let me know if you run into any interesting finds and I will do the same.
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Hi Shelley,
I just want to clarify my statement: “just read the directions." I was largely talking to myself. I've had to read them over and over, and did today's fill only after reading and rereading. I'm sure I'll get the hang of it. It is really easy once you understand the meaning of the lights and sounds. Which is to say, I'm surprised that its easy, because I am nervous about making a mistake.
As to flying, the accompanying booklet says “you should not travel by air in a non-pressurized cabin while the expander is implanted." So, I was wrong to make the blanket statement that you cannot fly. As to commercial, it says “the expander will grow in volume. This may cause discomfort, and potential pressure-related wound complications. Your surgeon will assess your healing progress and the volume in your expanders."
That was something that kinda scared me. I am the first patient to use them under my PS's physician's assistant, so she said nothing about flying and I didn't think to ask. When she got one of them locked out, she suggested I might call the manufacturer with questions. The AirXpanders, Inc. customer service # is 1-877-349-2479. Apologies if you have this info already.
One of the benefits I like is that in the controlled trial, the fill time was half that of saline and theaverage time to exchange surgery was faster (3.5 months) compared to saline (4.5 months).
Ceci
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I currently have them. I had a bilateral mastectomy with latissimus dorsi flaps on 10-13. I filled them 2-3 times a day. I held off a few weeks while waiting on oncotype. My oncotype score was low, so no chemo(YEAH). I resumed filling and now currently full at 600 cc's.
YES they look like Barbie boobs. They are plastic and uncomfortable, but not painful. I can sleep on side with no problems. I was able to fly with no problems and did not set off alarms. I did carry card with me just in case. I did fill them slightly inflate. Doc compared to taking a bag of chips, they will fluff up and then go back to normal.
I loved the convenience and ease. I never really felt them filling till the very last. I am scheduled for exchange on 1-24-18.
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Ceci -- Thanks for the clarification on the air travel and the number for help. I look forward to my training and first fill. That will come in handy.
Adrachim - Thanks for the info, so helpful. So happy to hear that you had no problems with air travel -- I am one happy deflated foob camper right now
And congrats on the no chemo, fantastic.
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I would like to start reconstruction in January or February—I am about 2 hours from Philadelphia and Baltimore. What plastic surgeons are using these
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Jenny -- you should ask aeroform that question on the website -- I rec'd my remote controls on thursday and the fills are eazy peazy -- small doses of 10cc at a time.
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Thanks for posting. I tried to start up a conversation on this as a way to control how much a person feels comfortable with but I got shot down by some BCO ladies that thought it sounded dangerous.
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Meow13 - I don't really understand your message/question -- is there a question that you have?
40 cc 's and counting .... they started with 10 at time of surgery and I have done 3 doses myself.
So far so good -- I am going slow and just trying to do 10cc's a day and I skipped yesterday -- just to see if I could sleep better. I haven't done more than a 10 a day - mostly cause I have time ... and why not go slow ?
My sleep is still not a full 7 or 8 straight hours since my last round of chemo/surgery -- I am three full weeks from surgery today - so I am hoping it gets better. One more week of limits on exercise (other than walking) - so I am hoping that will help and will ramp up the walking and stretching.
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No question, I suggested using Aeroform on a thread that was a complaint thread on fill pain. It sounded like such a good idea. Instead of getting a large fill all at once at the doctor's office you would control the fill at home.
They dismissed it as dangerous only a doctor should do the fill. More people should check into this, it may reduce the pain.
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Meow13 - it is FDA approved as of 12/2015 -- so yes, spread the news Perhaps they aren't aware of it. Both my oncologist and oncology breast surgeon didn't know about them, it was PS that suggested it.
10cc at a time -- i dont' really feel it. That reminds me, I had planned on doing a fill this afternoon. Off to do the fill ...
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Travel, I have a friend who was working in Alaska and used to get overfilled in Seattle every month and she had to take pain meds. It took forever for her to get her implants. This would have been a good solution for her.
Good luck to you
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I am scheduled for my PBMX with TE for 1/10, and had my final appointment with my plastic surgeon today. The good news: he will let me use these expanders, and had no issue with me using them even though I have a work trip overseas scheduled for early March. The bad news: he won't do the exchange surgery for 3-4 months after I am completely filled. I am a bit nervous about how it is going to feel being so filled for that long...and how I will be able to sleep (on my side) with them.) He seemed to indicate that I won't have to completely fill them...he said that that was actually an advantage of this over the regular expanders--I had told him that I did not want to be any bigger than I am now, and would be ok being a little smaller.
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Shadie - my PS won't do the surgery before 3 months either -- you can slow roll the fill, no need to keep them filled that long -- you can just fill slowly
My PS told me to stop when I liked the size ... you don't have to fill them to capacity just to the size you want and again, you can go S L O W L Y -- 10 cc at a time is slow -- pace them apart and you won't be so full for that long.
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Jennyliz- Dr. Gedge David Rosson at Johns Hopkins Hospital in Baltimore is my PS and placed my aeroform TEs. The TEs were filled at 200cc at the time my BMX, so I woke up with some shape. I also had nipple-sparing, skin-sparing so I never felt boob-less. I was amazed at how normal I looked. I'm now at 300cc of the max 400cc and have had no discomfort. A few days I've filled twice, but I'm not in a hurry so will just do 10cc per day.
I'm a little concerned about why I have the small ones - I don't want a big profile, but more fullness, like a C cup, and I don't know how a wide implant could fit in the narrow space. My PA thought I could still get 500cc or 600cc silicone implants at exchange. I hope to get more answers when I see my PS on Jan 4.
My PS will also not exchange within a 3 month period.
Travel - my PA said I could fly, too. So apologies again for the misinfo. She just said they will inflate in flight and deflate when you land.
Wishing you all smooth recoveries. I had no idea how complicated this would be!
Cec
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So glad to find some Aeroform sisters. I feel like I am getting different info at every visit. To be fair, I may just be too anxious to be hearing it. I am BRCA2 (*see below) and I had a nipple sparing mastectomy and 600cc Aeroforms placed on December 11th. I've inflated up to what I believe to be 420cc including starting volume. I am 5'7", have very broad shoulders and weighed 145 before all of this (now twenty pounds more). I want to be a C. They already look like that to me, but I don't know if that's even relevant. They are numb and the skin feels sooooo thin to the touch. It's creeping me out. The whole thing feels like a crapshoot. Help.
Thanks!
*I also had a salpingoopherectomy. The pathology report came back with STIC (like stage 0-1 cancer) in my fallopian tubes. My GYN surgeon said I was weeks to days from it spreading to my ovaries. After I healed, I had everything else removed including my omentum, which is something I didn't even know I had. That pathology came back clean. Moral of the story: BRCA isn't a joke.
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Johns Hopkins in Baltimore
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Jennyliz- Johns Hopkins in Baltimore!
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Dragon -- thanks for the post on your ooo 'something' -- it is next on my list. Oddly, I haven't tested positive for any of the markers they have found so far -- although I have now had 2 BC's and my mother had ovarian - so I am following the BRCA protocols -- cause something is there they just have not found yet ...
I know I am getting an ophoretomy - my pcp wants me to think about my uterus too -- i was like -- what!!! stop already ... just a good reminder, to have an open mind.
Ceci and others - my plastic surgeon said the footprint of the aero base takes up more room than traditional - so they can put in big expanders beyond the 'cc counts you are putting in.
Now -- back to your comments Dragon - I am 5 7' and weighed about 145 pounds before I started this recent double MX journey - I went the other way and I have dipped below 130, which won't last long ... and I am trying to figure out what a smallish C is -- not a big C - i was a big C -- pretty much a D with my last implants after my first BC -- lumpethomy and to be honest it was too big for me - I had a hard time finding shirts and made me look bigger than I am. So trying to get the smallest C - I bought a bra in that size of my brand that i had before -- and the shape is so different - it is really hard to tell.
I don't even have 200 cc's in yet -- I suspended for a bit waiting to see my ps over the holidays. My Primary care (who I visited yesterday - said she thinks they are big enough - doh! I said not sure...). My replacement surgery is March 8th, my pre-surgy consult is Feb 20th -- so my ps said to make sure I was the size I wanted to be before then ... i say help as well
I am happy to send you a private photo if that helps - I just want to warn you - i have lots of scars due to my previous BC, port, etc. So it ain't pretty! I am not sure this helps - just thought you might like to know we are similar size and are having the same issue!
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So glad to hear from other Aeroform users. A small (400 cc) was inserted at time of MX with 160 cc. Started expansion 8 days post surgery. Could only tolerate one expansion every day or two. Maybe at age 72 my skin just doesn't easily expand. My breast became hot and red, but PS said it was normal. Stopped filling at 270 cc on December 15. I am happy with the size and hope my PS is too. My next appointment was delayed due to travel and conflicts, but I will be seeing him this Friday and hope to set a date for the exchange.
I was able to sleep on the MX side fairly early (maybe 3-4 weeks?) with a small pillow under the breast, but experienced pain sleeping on the other side due to shifting from gravity. In the last couple weeks (10-11 weeks post-op) I have found that I can sleep on the other side as well. So it definitely gets better.
I, too, was able to fly several weeks ago without discomfort. I set off the alarm on the metal detector but assumed it was from my artificial hip (although that is not usually a problem). I just had to go through the x-ray instead. I don't think a card will make any difference to TSA.
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I set off the alarm as well -- card did not work. Flying was fine - I have done it a few times
I think i have the 400'c size as well -- and my 'fill percent' is on 3 bars on side and 4 on the other -- which is so strange! I am not even at 200 -- I don't even think I can get to 270 - so strange on the sizing. I can't tell what size I am/will be
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My experience with these TEs will soon be over. My exchange surgery is scheduled on Feb 14 - so I will get new boobs and a bit of lipo for Valentines Day. I've been filled to the max of these 400cc TEs for a few weeks now. I could hardly feel the expansion, and I actually felt better the more they expanded as they smoothed out - no more hard plastic wrinkles poking into me. I have no pain, but the left one detached when I had a really bad cold and coughed so hard that I think I ripped a muscle under my arm. My expanders are pre-pectoral, so I can move the TE around quite a bit. It actually looks more normal than the right one.
I was on Capitol Hill last week and told the security guards that I had medical devices and they were very kind and just wanded me instead of making me walk through the metal detector.
I was pretty self conscious going back to work because the right one sits so high and has a really high profile, but I just wear scarves and jackets. And knowing this is just temporary helps.
Hope you all are doing well.
Ceci
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So far, I have had a positive experience with them!
I had my skin and nipple sparing PBMX, pre pectoral TE placement, on 1/10. My plastic surgeon put in a medium-sized Aeroform Xpander and filled it with 200ccs. On 1/23, he pulled the drains and gave me the gizmos to expand at home. I had no problems or real discomfort putting in 20 or 30ccs a day. Six days later, I stopped at 340ccs--my doctor said to stop when I was happy with how I looked in clothes. Yesterday, I saw the doctor again, and he was fine with me stopping, and will not require me to fill anymore. It boggles my mind--when I look in the mirror, exactly three weeks out, I look pretty much the same as I did before surgery. (OK, there are some scars under the breasts, and yes, the expander does jut out a little, but still...I would say I am about 85% "normal" looking.) I told my doctor that I want to be the same size as before (about a 36C) or a little bit smaller, and am currently about 90-95% of my pre-op size.
He now tells me that I can do the exchange as soon as 3 months after the initial surgery, so if I am lucky, and the timing works out workwise, I might be done with this by late April.
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I have been researching this for some time and it is good to finally find some feedback. It appears that everyone likes them and I would like them for myself. Has anyone had any experience in Newport Beach, CA area? Would be willing to travel if necessary
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Update on my experience:
I recently flew overseas for work (10+ hours flights) and did not feel any change (pressure, pain) while in the air. Set off the alarm everywhere, however. I had to practically swat away the hands of the TSA agent who was making grabby hands towards the boobs ("I just had a BMX, so don't touch them!") The security forces in the country I visited--at the airport, in their government offices, at the entrance to cultural institutions--let me pass through without issue, once I said I just had a BMX.
Like Ceci, mine seem to move a bit, particularly at night, since I sleep on my side. For a couple of days, I was really concerned because it seemed to have moved from the side to the top of my right breast, forming a hard flat ridge that was visible through my shirt. However, in about three days, it migrated back to its normal position.
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I also have the Air inflated TE and 2 weeks ago had to have the right one surgically removed - the ADM that was used when my expanders were put in disintegrated and created a hole in my skin which opened on its own and fluid began pouring out. The left expander is still in place - I am so worried it will also have to be removed. So I have to wait 2 months for surgery to reinsert a TE on the right side - he will put my implant in on the left side during this same surgery. Trying to stay positive but it is very hard. The right breast is now drain draining serous fluid through a hole where a stitch was removed after surgery
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bump for implant option
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Ceci -- I was so glad to read your post. One of my TEs sits higher than the other, and it's been kind of freaking me out. It's good to be reassured it's only temporary.
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