MRI Results: Completely the Last Thing I Expected!

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  • SavedbyGrace1972
    SavedbyGrace1972 Member Posts: 105
    edited January 2018

    Girls

    Today I had my bilateral MRI biopsy and the Valium helped so much!!! It was so much better than before. Still noisy but not as imitating!!! So here is what I am dealing with,

    Known cancer IDC ER+ PR- HER2- grade 3 in the left breast.

    Another mass was also found in the left breast and the right breast. Today both those masses were biopsied.

    My plan is to have a boob going away party!!! Those suckers don't like me so I'm saying sinora suckers!!!

    Thursday I meet with the surgeon and the results should be in by Wednesday. The radiologist says we just want to know what we are dealing with!!! So comforting. Knowing is better than not knowing!!!

    That way we can beat up the bully!!! Show yourself bully!!!

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    Hey, Grace! My known cancer is like yours (left breast, IDC, ER+ PR- HER2-, grade 3). What size is your tumor? Mine's 2.1 cm.

    Still awaiting some biopsy results on the unexpectedly discovered mass in the right breast (found a couple weeks after the first one). My next consultation with the docs is Wednesday ... same as you!

    I like your attitude. Let's kick some cancer butt!

  • SavedbyGrace1972
    SavedbyGrace1972 Member Posts: 105
    edited January 2018

    I like cats,

    We have the same type of cancer. Left IDC ER+ PR- HER2 m- Grade 3. Had bilateral MRI guided biopsy of newly discovered masses in both breast. So now I have two masses in my left breast and one in my right breast.

    Let's hope for good results!!!

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    Grace ... you bet! As down in the dumps I get and how much anxiety I have right now, I am trying to remain hopeful. Within a single day, I go from despair to optimism. Sort of a weird spectrum, and it really plays havoc with my life. Still, I hope for the best not only for myself but for all others traveling this rough road.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited January 2018

    When I was first diagnosed they sent me for an MRI before chemo started. Some areas (3) were seen in the other breast, but they didn't warrant biopsy. My follow up MRI after chemo showed those 3 areas were gone but another was present. Again - no need to biopsy. Just recheck in 6 months.

    No thanks. No one knows if a lack of hormones from chemopause caused those areas to dissappear or if the chemo itself did. Pathology after BMX showed no cancer anywhere

    I'm a worrier. One of my biggest fears was having to do this over again because of the other breast. I know it's unlikely. And I can still get a recurrence after a BMX. But at least the vast majority of breast tissue is gone.


  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    Hi, all. I have a preliminary update on the pathology report on the right breast (left breast was previously confirmed with IDC Stage IIA in December; right breast mass found "incidentally" on a pre-surgical MRI).

    Anyway, the pathology report says the RB has both invasive lobular (grade 1) and invasive in situ. Hormone receptor and HER2 results not ready.

    So, I am in fact dealing with synchronous bilateral BC. I have an appointment this afternoon with my SO and MO.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited January 2018

    I'm sorry, ILikeCats. It's good that the second side is grade 1, though. The standard of care treats the worse cancer, so they'll probably focus on the left side.

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    Thanks, SummerAngel. I have learned from this website that treating the most serious/worst tumor is the protocol, and I imagine that's what my SO and MO will tell me. As I mentioned earlier, the silver lining in this cloud is that they found the tumors in the second breast now rather than later. Would definitely not want to go through two separate surgeries and treatments, like so many women have had to do.


  • Snickersmom
    Snickersmom Member Posts: 926
    edited January 2018

    I Like Cats - Hang in there! I did not have the same situation but I did have BMX instead of UNI. I didn't want to have to worry about my "good" breast. I don't regret that decision at all.

    Glad you got Xanax. If it hadn't been for that, I probably would have killed my husband, my neighbors, and anyone else I could get my hands on! I just couldn't cope with it all. There's no cancer at all in my family except for my brother. He went to Duke where he was told that most likely it was from Agent Orange in Vietnam. He tested negative for BRAC genes so they know mine and his were not related. Anyway, I think that because I come from pretty healthy stock (my mom died last year at 104), it really threw me for a loop. I'm on Zoloft now and probably will be for a long time but I don't care. Keeps me calm! Just don't stay on Xanax for too long because it's addictive.

    I'm a cat lover - I have a gorgeous but cranky Maine Coon (named Snickers).

    Don't jump to conclusions. Wait until you have all of the information and then you can figure out what you want to do. Just make sure you write down everything. Your brain will be so addled that you won't remember stuff.

    Keep us posted. Sending you lots of big comforting hugs.

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    That is great advice, Snickersmom. Much appreciated! There's no cancer in my family on the paternal or maternal side, so, like you, I was completely floored by my diagnoses. I'm totally all right with the possibility of BMX. I prefer not to spend the rest of my life in fear that I'll get another breast cancer.

    I'm being very careful with my Xanax dosing and frequency. I take "as needed" rather than the prescribed "three times a day". Most days, I end up taking 1.5 or 2 tablets, and there are some days when I don't take any. All the same, maybe I should ask one of my doctors about Zoloft or something else besides Xanax.

    I had a Maine Coon tortoiseshell cat, but she passed away from kidney failure a couple of years ago. She was a very sweet little thing. My husband and I have two cats living with us now. One is old and cranky, and the other is young and full of antics.

  • SavedbyGrace1972
    SavedbyGrace1972 Member Posts: 105
    edited January 2018

    ILIKECATS,

    I just received my pathology report from the bilateral guided MRI biopsy that I had Monday. Looks like I have two tumors in my left breast. One known malignant tumor is IDC grade 3 HR + PR- HER2 -, the other is DCIS grade 3. Full pathology report isn't available yet.

    On to the right breast. The tumor in the right breast is benign. But just knowing it's there makes me decision to get a bilateral mastectomy much easier. First I debated but now I'm sure.

    Meeting with surgical oncologist today @1:15 this afternoon.

    My plan always included a mastectomy of the left breast!

    We got this girl!

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    SavedbyGrace: You sound like you are decisive and have a plan to move forward. That's great news (well, great news in the face of a bad situation!).

    As I think I mentioned, my left breast cancer, which has been tested in every way imaginable, is IDC 2.1 cm, grade 3, HR+ PR- HER2-, just like yours. I did finally receive the full pathology on my right breast yesterday at my appointment with the SO and MO: ILC grade 1, 1.2 cm, HR+ PR+ HER2-. There's also an LCIS, but the doctor said LCIS is no longer considered cancer by most specialists; rather, it is considered a marker or possible precursor.

    My MO ordered an Oncotype DX, but that'll take three weeks for results, and she is also setting up an appointment with a genetic counselor. Apparently, for bilateral BC, those things are "standard of care". My SO is setting up an appointment with a plastic surgeon for a consult.

    So, nothing really scheduled yet as far as surgery. The results of the Oncotype and genetic testing should help me make up my mind on lumpectomies in both breasts vs. bilateral mastectomy. I'd been leaning toward the latter but I need to really think about the pros and cons of each.

    Finally, my MO gave me the option of starting on Arimidex for 3 months because the tumors are both ER+. The hope is that it will shrink both tumors, although neither one is actually considered large. I figured what the heck and will start on it right away. The MO said she'll check the tumors in 3 weeks and if there is no change in size, we can move directly to surgery. Or, if the tumors actually grow larger in that time, we'll definitely schedule surgery. (The Arimidex might also completely eradicate the LCIS, she said.)

    Guess it's time for me to start on some research. Lots of decisions to make in the next 3 weeks!


  • timetobebrave70
    timetobebrave70 Member Posts: 83
    edited January 2018

    sending you prayers and love for both of you ladies. I like cats and savedbygrace. I am going now to see my breast surgeon for the first time. I will find out more about my IDC.

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    Prayers and best wishes for you, timetobebrave. I went back and read your earlier posts to learn what I could about your situation. From what other posters have said, it sounds like the IDC was found early and that you will have a very good prognosis. Hang in there, keep breathing, and let us know what the surgeon says.

    (Saying "keep breathing" sounds silly, but there were times when in panic I realized I was holding my breath and getting light-headed! Panic and anxiety can do weird things to a person.)

  • Snickersmom
    Snickersmom Member Posts: 926
    edited January 2018

    I did the same as you - took only 1 or 1-1/2 Xanax almost daily. My prescription also read 3 times a day but I think I would have been a walking zombie (they were 50 mg) so I didn't take that much. The Zoloft is only once a day and it is perfect for me. I'm still a Type A, but a fairly calm one, if there is such a thing!

  • Gbet333
    Gbet333 Member Posts: 3
    edited January 2018

    I just got bad news from my MRI. Abnormality in Breast Bone and two more lumps that need to be biopsied. I'm FREAKING OUT about the abnormality in Breast Bone. Hoping and praying it hasn' spread to bones.

  • ILikeCats
    ILikeCats Member Posts: 29
    edited January 2018

    So sorry to hear that, Gbet. I see you are new to this forum (me, too!). What other tests and diagnoses have you had so far?

    I don't know much about abnormalities in the sternum/breast bone, but I did a quick google and saw something that said breast cancer can spread to the breast bone without going through the normal route of the lymph system. If that's the case with you, it sounds like it could still be considered regional or local cancer (i.e., not metastatic).

    I wish I knew more about the topic, and I wish you could get some quick answers so that you know what you are dealing with. Do you have a folllow-up appointment to discuss this new finding with your doctors?

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